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Number of publications: 18

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Authors: Wu XC, Prasad PK, Landry I, Harlan LC, Parsons HM, Lynch CF, Smith AW, Hamilton AS, Keegan TH, AYA HOPE Study Collaborative Group (Schwartz SM, Shellenberger M, Janes T, Lynch CF, West MM, Somers LA, Kato I, Bankowski A, Stock M, Cress R, Agha G, Cruz M, Wu XC, Chen V, Prasad PK, Keegan T, Allen L, Loya Z, Shelton-Herendeen L, Hamilton A, Zelaya J, Trinidad U, Harlan LC, Smith AW, Keel G, Eisenstein J, Potosky A, Bellizzi K, Albritton K, Link M, Friedman D, Zebrack B)
Title: Impact of the AYA HOPE Comorbidity Index on Assessing Health Care Service Needs and Health Status among Adolescents and Young Adults with Cancer.
Type: Journal Article
Date: 2015 Dec
Journal: Cancer Epidemiol Biomarkers Prev 24(12):1844-9
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Age Factors;  Comorbidity;  Female;  Health Services Needs and Demand;  Health Status;  Humans;  Logistic Models;  Male;  Neoplasms;  Quality of Life;  SEER Program;  United States;  Young Adult
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Authors: Shnorhavorian M, Harlan LC, Smith AW, Keegan TH, Lynch CF, Prasad PK, Cress RD, Wu XC, Hamilton AS, Parsons HM, Keel G, Charlesworth SE, Schwartz SM, AYA HOPE Study Collaborative Group (Schwartz SM, Shellenberger M, Janes T, Lynch CF, West MM, Somers LA, Kato I, Bankowski A, Stock M, Cress R, Agha G, Cruz M, Wu XC, Chen V, Prasad PK, Keegan TH, Allen L, Loya Z, Shelton-Herendeen L, Hamilton A, Zelaya J, Trinidad U, Harlan LC, Smith AW, Keel G, Eisenstein J, Potosky A, Bellizzi K, Albritton K, Link M, Friedman D, Zebrack B)
Title: Fertility preservation knowledge, counseling, and actions among adolescent and young adult patients with cancer: A population-based study.
Type: Journal Article
Date: 2015 Oct 01
Journal: Cancer 121(19):3499-506
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Counseling;  Female;  Fertility Preservation;  Humans;  Male;  Neoplasms;  Surveys and Questionnaires;  Young Adult
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Authors: de Moor JS, Alfano CM, Breen N, Kent EE, Rowland J
Title: Applying evidence from economic evaluations to translate cancer survivorship research into care.
Type: Journal Article
Date: 2015 Sep
Journal: J Cancer Surviv 9(3):560-6
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Cost-Benefit Analysis;  Delivery of Health Care;  Humans;  National Cancer Institute (U.S.);  Neoplasms;  Quality of Life;  Research;  Survival Rate;  Survivors;  United States
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Authors: DeRouen MC, Smith AW, Tao L, Bellizzi KM, Lynch CF, Parsons HM, Kent EE, Keegan TH, AYA HOPE Study Collaborative Group (Cress R, Agha G, Cruz M, Schwartz SM, Shellenberger M, Janes T, Kato I, Bankowski A, Stock M, Wu XC, Chen V, Tompkins B, Keegan T, Allen L, Loya Z, Shelton-Herendeen L, Lynch CF, West MM, Odle LA, Hamilton A, Zelaya J, Lo M, Trinidad U, Harlan LC, Smith AW, Eisenstein J, Keel G, Potosky A, Bellizzi K, Albritton K, Link M, Zebrack B)
Title: Cancer-related information needs and cancer's impact on control over life influence health-related quality of life among adolescents and young adults with cancer.
Type: Journal Article
Date: 2015 Sep
Journal: Psychooncology 24(9):1104-15
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: none
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Authors: Parsons HM, Harlan LC, Schmidt S, Keegan TH, Lynch CF, Kent EE, Wu XC, Schwartz SM, Chu RL, Keel G, Smith AW, AYA HOPE Collaborative Group (Cress R, Agha G, Cruz M, Schwartz SM, Shellenberger M, Janes T, Kato I, Bankowski A, Stock M, Wu XC, Chen V, Tompkins B, Keegan T, Allen L, Loya Z, Hussain K, Lynch CF, West MM, Odle LA, Hamilton A, Zelaya J, Lo M, Harlan LC, Smith AW, Stringer SM, Keel G, Potosky A, Bellizzi K, Albritton K, Link M, Zebrack B)
Title: Who Treats Adolescents and Young Adults with Cancer? A Report from the AYA HOPE Study.
Type: Journal Article
Date: 2015 Sep
Journal: J Adolesc Young Adult Oncol 4(3):141-50
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Cohort Studies;  Female;  Humans;  Male;  National Cancer Institute (U.S.);  Neoplasms;  Survivors;  United States;  Young Adult
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Authors: Kent EE, Breen N, Lewis DR, de Moor JS, Smith AW, Seibel NL
Title: US trends in survival disparities among adolescents and young adults with non-Hodgkin lymphoma.
Type: Journal Article
Date: 2015 Aug
Journal: Cancer Causes Control 26(8):1153-62
Topic(s): none
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Continental Population Groups;  Ethnic Groups;  Female;  HIV Infections;  Health Status Disparities;  Humans;  Lymphoma, Non-Hodgkin;  Male;  Social Class;  United States;  Young Adult
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Authors: Potosky AL, Harlan LC, Albritton K, Cress RD, Friedman DL, Hamilton AS, Kato I, Keegan TH, Keel G, Schwartz SM, Seibel NL, Shnorhavorian M, West MM, Wu XC, AYA HOPE Study Collaborative Group (Schwartz SM, Shellenberger M, Janes T, Lynch CF, West MM, Somers LA, Kato I, Bankowski A, Stock M, Cress R, Agha G, Cruz M, Wu XC, Chen V, Prasad PK, Keegan T, Allen L, Loya Z, Shelton-Herendeen L, Hamilton A, Zelaya J, Trinidad U, Harlan LC, Smith AW, Keel G, Eisenstein J, Potosky A, Bellizzi K, Albritton K, Link M, Friedman D, Zebrack B)
Title: Use of appropriate initial treatment among adolescents and young adults with cancer.
Type: Journal Article
Date: 2014 Nov
Journal: J Natl Cancer Inst 106(11):
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Female;  Germinoma;  Hodgkin Disease;  Humans;  Logistic Models;  Lymphoma, Non-Hodgkin;  Male;  Neoplasms;  Precursor Cell Lymphoblastic Leukemia-Lymphoma;  Quality of Health Care;  Registries;  Retrospective Studies;  SEER Program;  Sarcoma;  United States;  Young Adult
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Authors: Parsons HM, Schmidt S, Harlan LC, Kent EE, Lynch CF, Smith AW, Keegan TH, AYA HOPE Collaborative
Title: Young and uninsured: Insurance patterns of recently diagnosed adolescent and young adult cancer survivors in the AYA HOPE study.
Type: Journal Article
Date: 2014 Aug 01
Journal: Cancer 120(15):2352-60
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adult;  Age Factors;  Female;  Humans;  Insurance Coverage;  Male;  Medically Uninsured;  Neoplasms;  Patient Protection and Affordable Care Act;  SEER Program;  Survivors;  United States;  Young Adult
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Authors: Keegan TH, Tao L, DeRouen MC, Wu XC, Prasad P, Lynch CF, Shnorhavorian M, Zebrack BJ, Chu R, Harlan LC, Smith AW, Parsons HM, AYA HOPE Study Collaborative Group (Cress R, Agha G, Cruz M, Schwartz SM, Shellenberger M, Janes T, Kato I, Bankowski A, Stock M, Wu XC, Chen V, Tompkins B, Keegan T, Allen L, Loya Z, Shelton-Herendeen L, Lynch CF, West MM, Odle LA, Hamilton A, Zelaya J, Lo M, Trinidad U, Harlan LC, Smith AW, Eisenstein J, Keel G, Potosky A, Bellizzi K, Albritton K, Link M, Zebrack B)
Title: Medical care in adolescents and young adult cancer survivors: what are the biggest access-related barriers?
Type: Journal Article
Date: 2014 Jun
Journal: J Cancer Surviv 8(2):282-92
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Female;  Health Services Accessibility;  Health Status;  Humans;  Insurance, Health;  Logistic Models;  Male;  Neoplasms;  Survivors;  Young Adult
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Authors: Zebrack B, Kent EE, Keegan TH, Kato I, Smith AW, AYA HOPE Study Collaborative Group (Cress R, Agha G, Cruz M, Schwartz S, Shellenberger M, Janes T, Kato I, Bankowski A, Stock M, Wu XC, Chen V, Tompkins B, Keegan T, Allen L, Loya Z, Hussain K, Lynch C, West M, Odle L, Hamilton A, Zelaya J, Lo M, Trinidad U, Harlan L, Wilder Smith A, Eisenstein J, Keel G, Potosky A, Bellizzi K, Albritton K, Friedman D, Link M, Zebrack B)
Title: "Cancer sucks," and other ponderings by adolescent and young adult cancer survivors.
Type: Journal Article
Date: 2014
Journal: J Psychosoc Oncol 32(1):1-15
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Attitude to Health;  Cohort Studies;  Data Collection;  Female;  Humans;  Male;  Neoplasms;  Patient Satisfaction;  Qualitative Research;  Survivors;  Young Adult
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Authors: Smith AW, Bellizzi KM, Keegan TH, Zebrack B, Chen VW, Neale AV, Hamilton AS, Shnorhavorian M, Lynch CF
Title: Health-related quality of life of adolescent and young adult patients with cancer in the United States: the Adolescent and Young Adult Health Outcomes and Patient Experience study.
Type: Journal Article
Date: 2013 Jun 10
Journal: J Clin Oncol 31(17):2136-45
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Female;  Humans;  Male;  Neoplasms;  Quality of Life;  Treatment Outcome;  United States;  Young Adult
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Authors: Kent EE, Smith AW, Keegan TH, Lynch CF, Wu XC, Hamilton AS, Kato I, Schwartz SM, Harlan LC
Title: Talking About Cancer and Meeting Peer Survivors: Social Information Needs of Adolescents and Young Adults Diagnosed with Cancer.
Type: Journal Article
Date: 2013 Jun
Journal: J Adolesc Young Adult Oncol 2(2):44-52
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: none
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Authors: Smith AW, Parsons HM, Kent EE, Bellizzi K, Zebrack BJ, Keel G, Lynch CF, Rubenstein MB, Keegan TH, AYA HOPE Study Collaborative Group
Title: Unmet Support Service Needs and Health-Related Quality of Life among Adolescents and Young Adults with Cancer: The AYA HOPE Study.
Type: Journal Article
Date: 2013
Journal: Front Oncol 3():75
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: none
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Authors: Bellizzi KM, Smith A, Schmidt S, Keegan TH, Zebrack B, Lynch CF, Deapen D, Shnorhavorian M, Tompkins BJ, Simon M, Adolescent and Young Adult Health Outcomes and Patient Experience (AYA HOPE) Study Collaborative Group (Agha G, Cruz M, Hutchinson F, Schwartz SM, Shellenberger M, Janes T, Kato I, Bankowski A, Stock M, Wu XC, Chen V, Keegan T, Allen L, Loya Z, Hussain K, Lynch CF, West MM, Odle LA, Hamilton A, Zelaya J, Lo M, Harlan LC, Smith AW, Stringer SM, Keel G, Potosky A, Bellizzi K, Albritton K, Link M, Zebrack B)
Title: Positive and negative psychosocial impact of being diagnosed with cancer as an adolescent or young adult.
Type: Journal Article
Date: 2012 Oct 15
Journal: Cancer 118(20):5155-62
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) StudySurveillance, Epidemiology, & End Results (SEER) Program
Keywords: Adolescent;  Adult;  Body Image;  Female;  Goals;  Humans;  Interpersonal Relations;  Male;  Neoplasms;  Population Surveillance;  Psychology, Adolescent;  Quality of Life;  Social Support;  Socioeconomic Factors;  Survivors;  Young Adult
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Authors: Keegan TH, Lichtensztajn DY, Kato I, Kent EE, Wu XC, West MM, Hamilton AS, Zebrack B, Bellizzi KM, Smith AW, AYA HOPE Study Collaborative Group (Agha G, Cruz M, Schwartz SM, Shellenberger M, Janes T, Kato I, Bankowski A, Stock M, Wu XC, Chen V, Tompkins B, Keegan T, Allen L, Loya Z, Hussain K, Lynch CF, West MM, Odle LA, Hamilton A, Zelaya J, Lo M, Trinidad U, Harlan LC, Smith AW, Stringer SM, Keel G, Potosky A, Bellizzi K, Albritton K, Link M, Zebrack B)
Title: Unmet adolescent and young adult cancer survivors information and service needs: a population-based cancer registry study.
Type: Journal Article
Date: 2012 Sep
Journal: J Cancer Surviv 6(3):239-50
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Female;  Health Care Surveys;  Health Services Accessibility;  Health Services Needs and Demand;  Humans;  Information Services;  Male;  Needs Assessment;  Neoplasms;  Quality of Life;  Registries;  Surveys and Questionnaires;  Survivors;  Young Adult
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Authors: Parsons HM, Harlan LC, Lynch CF, Hamilton AS, Wu XC, Kato I, Schwartz SM, Smith AW, Keel G, Keegan TH
Title: Impact of cancer on work and education among adolescent and young adult cancer survivors.
Type: Journal Article
Date: 2012 Jul 01
Journal: J Clin Oncol 30(19):2393-400
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Educational Status;  Employment;  Humans;  Multivariate Analysis;  Neoplasms;  Survivors;  Young Adult
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Authors: Kent EE, Parry C, Montoya MJ, Sender LS, Morris RA, Anton-Culver H
Title: "You're too young for this": adolescent and young adults' perspectives on cancer survivorship.
Type: Journal Article
Date: 2012
Journal: J Psychosoc Oncol 30(2):260-79
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Age Factors;  Cost of Illness;  Delayed Diagnosis;  Female;  Focus Groups;  Humans;  Infertility;  Interpersonal Relations;  Interviews as Topic;  Male;  Medication Adherence;  Neoplasms;  Psychology;  Survivors;  Young Adult
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Authors: Harlan LC, Lynch CF, Keegan TH, Hamilton AS, Wu XC, Kato I, West MM, Cress RD, Schwartz SM, Smith AW, Deapen D, Stringer SM, Potosky AL, AYA HOPE Study Collaborative Group
Title: Recruitment and follow-up of adolescent and young adult cancer survivors: the AYA HOPE Study.
Type: Journal Article
Date: 2011 Sep
Journal: J Cancer Surviv 5(3):305-14
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) StudySurveillance, Epidemiology, & End Results (SEER) Program
Keywords: Adolescent;  Adult;  Algorithms;  Continuity of Patient Care;  Data Collection;  Female;  Follow-Up Studies;  Humans;  Male;  Neoplasms;  Patient Participation;  Patient Selection;  Psychology;  Quality of Life;  SEER Program;  Survivors;  Young Adult
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