Related Data Resources and Initiatives

  • Health Information National Trends Survey (HINTS)External Web Site Policy: Nationally representative survey that collects data about the use of cancer-related information in the US.
  • Medical Expenditure Panel Survey (MEPS): Nationally representative survey that collects data on health insurance, access to health care, utilization, and expenditures in the US. The MEPS Experiences with Cancer Survivorship Supplement (2011 and 2017) collects additional data related to financial burden, access to medical care, and employment patterns for themselves and their caregivers.
  • NCI Community Oncology Research Program (NCORP)External Web Site Policy: Cooperative agreement grants for conducting clinical research in community practices. Current studies related to financial hardship include Financial Impact Assessment Tool in Patients with Metastatic Colorectal Cancer and Financial Burden Assessment in Patients with Stage I-III Colon or Rectal Cancer Undergoing Treatment.
  • National Health Interview Survey (NHIS): Population-based survey that captures data on health status, acute and chronic health conditions, health insurance, financial burden of medical care, health care access and utilization and sociodemographic and employment information. Includes a cancer control supplement that collects information about cancer risk assessment, prevention, screening, and survivorship.
  • SEER-Medicare: Linked data resource offers a unique opportunity to conduct studies on costs and patient outcomes of cancer and its treatment.

Selected Publications

  • PDQ® Adult Treatment Editorial Board. PDQ Financial Toxicity and Cancer Treatment. Bethesda, MD: National Cancer Institute. Updated 1/30/18. Available at: https://www.cancer.gov/aboutcancer/managing-care/track-care-costs/financial-toxicity-hp-pdq. Accessed 7/30/18. [PMID: 27583328]
  • Altice et al. (2017). Financial hardships experienced by cancer survivors: A systematic review. JNCI, 109(2), p. 1-17. [AbstractExternal Web Site Policy]
  • de Moor et al. Recommendations for research and practice to improve work outcomes among cancer survivors. JNCI, in press.

For a more comprehensive list of publications by NCI staff or grantees, visit the Cancer Control PublicationsExternal Web Site Policy database.

HDRP Contacts

Last Updated: 16 May, 2019