PROSPR stands for Population-based Research to Optimize the Screening Process. PROSPR is an NCI-funded network that is conducting research to better understand how to improve the cancer screening process (recruitment, screening, diagnosis, referral for treatment) in community healthcare settings. PROSPR began in 2011 and is on-going, with an expected end date of no earlier than 2023. The first funding round (PROSPR1) studied breast, cervical, and colorectal cancer, and the second funding round (PROSPR2) is studying cervical, colorectal, and lung cancer.
PROSPR DataShare, or PDS, will allow external researchers, that is, those who are not part of the PROSPR network, to request access to subsets of PROSPR data from both PROSPR initiatives. Through PDS, external researchers will be able to request the PROSPR public use dataset (HIPAA de-identified dataset). They also will be able to request custom datasets (HIPAA limited datasets) that can be used for manuscript preparation. PDS also will allow external researchers to propose additional data collection activities that use the PROSPR infrastructure.
The de-identified public use dataset will, in general, be available to all who request it. Requests for custom datasets will require review and approval by PROSPR's Data Request and Review Committee, as well as agreement of the PROSPR investigator or investigators whose data are being requested. In most instances, approval for custom datasets will require collaboration with PROSPR investigators.
External researchers who wish to use the PROSPR infrastructure to collect additional data are required to partner with at least one PROSPR investigator before submitting a request. Requests for these activities will require review and approval by PROSPR's Data Request and Review Committee.
In addition to data-related requests, PDS will contain PROSPR data dictionaries, lists of PROSPR publications, and the names and affiliations of PROSPR investigators. Progress of data request reviews will be trackable through PDS. PDS will be used for other tasks, including submission of progress reports by external investigators who have received custom datasets.
PDS will be rolled out in a step-wise fashion. We expect that PDS will begin accepting requests for custom limited datasets and add-on data collection by mid-2021, and accepting requests for the de-identified public use dataset sometime in 2022.
The PROSPR Network is looking forward to sharing its data and working with you!