Treatment Burden in Cancer: Exploring the Unsung Work of Patients and Survivors

Background

Cancer care often requires patients, survivors, and caregivers to navigate a complex array of responsibilities beyond medical treatment. This can include managing medications, coordinating appointments, monitoring health conditions, learning about care options, and handling medical expenses and reimbursement. The cumulative demands of these activities and their effect on daily functioning, quality of life, and overall well-being are known as treatment burden.

This webinar will explore the concept of treatment burden in cancer and how it extends beyond traditional notions of burden via time-based or financial toxicity. Speakers will discuss emerging evidence on cancer-related treatment burden, its impact on patients, survivors, caregivers, and healthcare systems, as well as opportunities to better identify, measure, and reduce its effects. The presentations will be followed by a moderated panel discussion and audience Q&A.

Participants will:

• Gain a foundational understanding of treatment burden and its manifestations in cancer care.
• Explore the personal, social, and healthcare system impacts of treatment burden.
• Learn about measures and interventions designed to assess and mitigate treatment burden.
• Identify future directions for research aimed at improving the cancer care experience for patients, survivors, and caregivers.

Intended Audience

Health services researchers, healthcare providers, cancer patients, survivors, and caregivers.

Speakers

Helen Parsons, PhD, MPH
Professor, Division of Health Policy & Management
University of Minnesota

Roger Anderson, PhD
Associate Director for Population Sciences
University of Virginia, Comprehensive Cancer Center

David Eton, PhD
Program Director
Outcomes Research Branch
Healthcare Delivery Research Program
National Cancer Institute

This webinar will be archived on the HDRP Events webpage.

If you are an individual with a disability who needs reasonable accommodations to participate in this event, please contact NCIHDRP@mail.nih.gov at least five (5) business before the event, so that we can discuss your accommodation request.