PROSPR DataShare

Welcome to PROSPR DataShare

PROSPR DataShare, or PDS, will allow individuals who are not part of the PROSPR initiative, known as external researchers, to request certain data from the PROSPR 1 and PROSPR 2 initiatives. PDS also will allow external researchers to propose ancillary studies (defined below).

Please note that PDS is being rolled out in a stepwise fashion, and not all components are available at the moment.

Public use data sets

External researchers will be able to request PROSPR public use data sets, which are existing HIPAA-defined de-identified data sets. The public use data sets are unlikely to produce publishable scientific findings; instead, they are intended to give users a feel for PROSPR cancer screening process data. It is expected that the data will be useful in educational settings, as well as in preliminary analyses to support grant applications or requests for PROSPR restricted data (described in the next paragraph). Requests undergo an expedited review process, and turnaround time is about two weeks. In general, PROSPR public use data sets are available to anyone who requests them as long as the requestor agrees to standard data use conditions.

Restricted use data sets

External researchers also will be able to request PROSPR restricted use data sets, which are custom HIPAA-defined limited data sets intended to be used for manuscript preparation. Requests for restricted use data sets undergo review by PROSPR investigators. They require approval of the PROSPR investigator or investigators whose data are being requested. In most instances, approval for custom PROSPR data sets requires collaboration with PROSPR 1 or PROSPR 2 investigators, and requestors must sign a Data Use Agreement. Please note that request approval is not guaranteed. The request review process is expected to be about three to four months from date of submission. Data set delivery is expected to take about an additional month or two.

Ancillary studies

External researchers also will be able to propose ancillary studies, which are efforts that use PROSPR infrastructure to collect additional data. External researchers are required to partner with at least one PROSPR investigator when proposing an ancillary study. Requests for ancillary studies undergo review by PROSPR investigators. Please note that approval of requests is not guaranteed and that requestors are expected to fund the effort. The request review process is expected to be about three to four months from date of submission. Additional time will be necessary for data collection.

Presently, external researchers can use PDS to:

  • Access PROSPR 1 public use data dictionaries;
  • Request PROSPR 1 public use data sets;

The rollout for other components of PDS is as follows:

By the beginning of July 2022:
  • Access PROSPR 2 public use data dictionaries;
  • Request the PROSPR 2 public use data sets;
  • Access PROSPR 1 and PROSPR 2 restricted use data dictionaries;
  • Request PROSPR 1 and PROSPR 2 restricted use data sets.
By the beginning of August 2022:
  • Propose PROSPR 2 ancillary studies.

Please click on "Use PROSPR DataShare" on the side bar menu to access the functional components of PDS. You will need an account with Information Management Services, Inc. (IMS), an NCI contractor, to use PROSPR DataShare. If you do not have an account, PROSPR DataShare will direct you to an account creation screen. You will use that account each time you access PROSPR DataShare.

This page will be updated as more components become available within PDS. If you have questions, please contact us.

Last Updated: 02 May, 2022