From 2014-2019, four patient-centered measurement systems, developed and validated with support from the National Institutes of Health (NIH) were brought together and made available to the public as a single resource. The resource, known as HealthMeasures, was funded by a trans-NIH cooperative agreement (U2CCA186878) supported by 14 NIH Institutes and Centers and made available at www.healthmeasures.net.
HealthMeasures remains an online resource that provides access to the following comprehensive measurement systems:
- NIH Toolbox for Assessment of Neurological and Behavioral Function®: Stand-alone performance and self/parent report measures and domain level batteries measuring cognitive, motor, sensory, and emotional functioning from ages 3-85.
- PROMIS: Patient Reported Outcomes Measurement Information System®: Self and proxy reports of multiple domains of physical, mental and social health for children ages 5-17 and adults of all ages.
- Neuro-QoL: The Neurology Quality of Life Measurement System: PROMIS-compatible self-report measures of health domains relevant across neurological conditions for children ages 8-17 and adults of all ages.
- ASCQ-Me: Adult Sickle Cell Quality of Life Measurement System®: PROMIS-compatible self-report measures of health domains relevant to adults with sickle cell disease.
The HealthMeasures resource provides state-of-the-science assessment of physical, mental, and social health, as well as performance measures of cognition, motor and sensory function, for use across a range of chronic diseases as well as the general population. These measures provide clinicians, researchers, healthcare administrators and policymakers with efficient, precise, valid and responsive measures of symptoms, functional abilities and general health perceptions surrounding life quality and satisfaction.
Access & Availability
To access HealthMeasures, visit www.healthmeasures.net. The HealthMeasures site includes introductory slides and/or demonstration videos for all available measures along with information on assessment delivery systems that include the measures.
All HealthMeasures content for self-reported measures, including questions, scoring information, and interpretation guides, is publicly available free of charge. In order to sustain the HealthMeasures resource, Northwestern University has developed a cost-recovery structure for certain applications and consulting services. More information is available on the HealthMeasures website.
Although the measures in the HealthMeasures resource were developed and initially validated in English and Spanish within the US, they are increasingly being used around the world. Some measures have been translated into more than 40 languages and are being deployed in over 50 different countries.
HealthMeasures was funded as a 5-year trans-NIH cooperative agreement grant (U2C CA186878). The goal was to make HealthMeasures a sustainable resource, independent from NIH funding. To support the transition to full independence, NIH reduced funding annually over the course of the award and strategic public-private partnerships were required. The agreement was awarded in August 2014 to Northwestern University and included five performance sites (University of California at Los Angeles, University of California at San Diego, University of North Carolina, University of Pittsburgh, and American Institutes of Research). This trans-NIH initiative was led by NCI and supported by the following 13 NIH Institutes, Centers, and Offices:
- National Heart, Lung, and Blood Institute (NHLBI)
- National Institute on Aging (NIA)
- National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
- National Institute on Deafness and Other Communication Disorders (NIDCD)
- National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
- National Institute on Drug Abuse (NIDA)
- National Institute of Mental Health (NIMH)
- National Institute of Neurological Disorders and Stroke (NINDS)
- National Institute of Nursing Research (NINR)
- National Center for Complementary and Integrative Health (NCCIH)
- Office of Behavioral and Social Sciences Research (OBSSR)
- Office of Research on Women's Health (ORWH)
- National Center for Medical Rehabilitation Research (NCMRR)
For additional information, please contact Ashley Wilder Smith.