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Number of publications: 273

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Authors: Kenzik KM, Kent EE, Martin MY, Bhatia S, Pisu M
Title: Chronic condition clusters and functional impairment in older cancer survivors: a population-based study.
Type: Journal Article
Date: 2016 Dec
Journal: J Cancer Surviv 10(6):1096-1103
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: none
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Authors: Geiger AM, Smith AW, Kobrin SC, Taplin SH
Title: Enhancing Healthcare Delivery Research at the National Cancer Institute
Type: Journal Article
Date: 2016 Oct
Journal: AJMC 22(14):SP502-SP555
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none

Authors: Halpern MT, Urato MP, Kent EE
Title: The health care experience of patients with cancer during the last year of life: Analysis of the SEER-CAHPS data set.
Type: Journal Article
Date: 2016 Sep 21
Journal: Cancer
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-CAHPS Linked Data Resource
Keywords: none
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Authors: Stitzenberg KB, Chang Y, Smith AB, Meyers MO, Nielsen ME
Title: Impact of Location of Readmission on Outcomes After Major Cancer Surgery.
Type: Journal Article
Date: 2016 Sep 09
Journal: Ann Surg Oncol
Topic(s): none
Tumor Site(s): Esophagus;  Lung;  Pancreas;  Urinary Bladder
Data Source/Project/Initiative(s): SEER-Medicare Linked Database
Keywords: none
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Authors: Kent EE, Prestin A, Gaysynsky A, Galica K, Rinker R, Graff K, Chou WY
Title: "Obesity is the New Major Cause of Cancer": Connections Between Obesity and Cancer on Facebook and Twitter.
Type: Journal Article
Date: 2016 Sep
Journal: J Cancer Educ 31(3):453-9
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Litzelman K, Kent EE, Mollica M, Rowland JH
Title: How Does Caregiver Well-Being Relate to Perceived Quality of Care in Patients With Cancer? Exploring Associations and Pathways.
Type: Journal Article
Date: 2016 Aug 29
Journal: J Clin Oncol
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Cancer Care Outcomes Research & Surveillance Consortium (CanCORS)
Keywords: none
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Authors: Hays RD, Chawla N, Kent EE, Arora NK
Title: Measurement equivalence of the Consumer Assessment of Healthcare Providers and Systems (CAHPS(®)) Medicare survey items between Whites and Asians.
Type: Journal Article
Date: 2016 Aug 05
Journal: Qual Life Res
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-CAHPS Linked Data Resource
Keywords: none
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Authors: Bæksted C, Nissen A, Pappot H, Bidstrup PE, Mitchell SA, Basch E, Dalton SO, Johansen C
Title: Danish Translation and Linguistic Validation of the U.S. National Cancer Institute's Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE).
Type: Journal Article
Date: 2016 Aug
Journal: J Pain Symptom Manage 52(2):292-7
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: none
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Authors: Pirsl F, Curtis LM, Steinberg SM, Tella SH, Katić M, Dobbin M, Hsu J, Hakim FT, Mays JW, Im AP, Pulanić D, Mitchell SA, Baruffaldi J, Masuch L, Halverson DC, Gress RE, Barsony J, Pavletic SZ
Title: Characterization and Risk Factor Analysis of Osteoporosis in a Large Cohort of Patients with Chronic Graft-versus-Host Disease.
Type: Journal Article
Date: 2016 Aug
Journal: Biol Blood Marrow Transplant 22(8):1517-24
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Kent EE, Rowland JH, Northouse L, Litzelman K, Chou WY, Shelburne N, Timura C, O'Mara A, Huss K
Title: Caring for caregivers and patients: Research and clinical priorities for informal cancer caregiving.
Type: Journal Article
Date: 2016 Jul 01
Journal: Cancer 122(13):1987-95
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Arnold B, Mitchell SA, Lent L, Mendoza TR, Rogak LJ, Barragán NM, Willis G, Medina M, Lechner S, Penedo FJ, Harness JK, Basch EM, PRO-CTCAE Spanish Translation and Linguistic Validation Study Group
Title: Linguistic validation of the Spanish version of the National Cancer Institute's Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE).
Type: Journal Article
Date: 2016 Jul
Journal: Support Care Cancer 24(7):2843-51
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: none
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Authors: Flannery M, Mohile SG, Dale W, Arora NK, Azar L, Breslau ES, Cohen HJ, Dotan E, Eldadah BA, Leach CR, Mitchell SA, Rowland JH, Hurria A
Title: Interventions to improve the quality of life and survivorship of older adults with cancer: The funding landscape at NIH, ACS and PCORI.
Type: Journal Article
Date: 2016 Jul
Journal: J Geriatr Oncol 7(4):225-33
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: none
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Authors: Falchook AD, Green R, Knowles ME, Amdur RJ, Mendenhall W, Hayes DN, Grilley-Olson JE, Weiss J, Reeve BB, Mitchell SA, Basch EM, Chera BS
Title: Comparison of Patient- and Practitioner-Reported Toxic Effects Associated With Chemoradiotherapy for Head and Neck Cancer.
Type: Journal Article
Date: 2016 Jun 01
Journal: JAMA Otolaryngol Head Neck Surg 142(6):517-23
Topic(s): none
Tumor Site(s): Head and Neck
Data Source/Project/Initiative(s): Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: none
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Authors: Land SR, Warren GW, Crafts JL, Hatsukami DK, Ostroff JS, Willis GB, Chollette VY, Mitchell SA, Folz JN, Gulley JL, Szabo E, Brandon TH, Duffy SA, Toll BA
Title: Cognitive testing of tobacco use items for administration to patients with cancer and cancer survivors in clinical research.
Type: Journal Article
Date: 2016 Jun 01
Journal: Cancer 122(11):1728-34
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Im A, Mitchell SA, Steinberg SM, Curtis L, Berger A, Baird K, Kuzmina Z, Joe G, Comis LE, Juckett M, Avila D, Baruffaldi J, Masuch L, Pirsl F, Pavletic SZ
Title: Prevalence and determinants of fatigue in patients with moderate to severe chronic GvHD.
Type: Journal Article
Date: 2016 May
Journal: Bone Marrow Transplant 51(5):705-12
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Land SR, Toll BA, Moinpour CM, Mitchell SA, Ostroff JS, Hatsukami DK, Duffy SA, Gritz ER, Rigotti NA, Brandon TH, Prindiville SA, Sarna LP, Schnoll RA, Herbst RS, Cinciripini PM, Leischow SJ, Dresler CM, Fiore MC, Warren GW
Title: Research Priorities, Measures, and Recommendations for Assessment of Tobacco Use in Clinical Cancer Research.
Type: Journal Article
Date: 2016 Apr 15
Journal: Clin Cancer Res 22(8):1907-13
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Smith AW, Seibel NL, Lewis DR, Albritton KH, Blair DF, Blanke CD, Bleyer WA, Freyer DR, Geiger AM, Hayes-Lattin B, Tricoli JV, Wagner LI, Zebrack BJ
Title: Next steps for adolescent and young adult oncology workshop: An update on progress and recommendations for the future.
Type: Journal Article
Date: 2016 Apr 01
Journal: Cancer 122(7):988-99
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adolescent;  Adult;  Female;  Humans;  Male;  Medical Oncology;  National Cancer Institute (U.S.);  Neoplasms;  United States;  Young Adult
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Authors: Warner EL, Kent EE, Trevino KM, Parsons HM, Zebrack BJ, Kirchhoff AC
Title: Social well-being among adolescents and young adults with cancer: A systematic review.
Type: Journal Article
Date: 2016 Apr 01
Journal: Cancer 122(7):1029-37
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adaptation, Psychological;  Adolescent;  Adult;  Child;  Female;  Humans;  Male;  Neoplasms;  Quality of Life;  Social Support;  Survivors;  Young Adult
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Authors: Merkel EC, Mitchell SA, Lee SJ
Title: Content Validity of the Lee Chronic Graft-versus-Host Disease Symptom Scale as Assessed by Cognitive Interviews.
Type: Journal Article
Date: 2016 Apr
Journal: Biol Blood Marrow Transplant 22(4):752-8
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Taber JM, Klein WM, Ferrer RA, Kent EE, Harris PR
Title: Optimism and Spontaneous Self-affirmation are Associated with Lower Likelihood of Cognitive Impairment and Greater Positive Affect among Cancer Survivors.
Type: Journal Article
Date: 2016 Apr
Journal: Ann Behav Med 50(2):198-209
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Health Information National Trends Survey (HINTS)
Keywords: none
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Authors: Bennett AV, Reeve BB, Basch EM, Mitchell SA, Meeneghan M, Battaglini CL, Smith-Ryan AE, Phillips B, Shea TC, Wood WA
Title: Evaluation of pedometry as a patient-centered outcome in patients undergoing hematopoietic cell transplant (HCT): a comparison of pedometry and patient reports of symptoms, health, and quality of life.
Type: Journal Article
Date: 2016 Mar
Journal: Qual Life Res 25(3):535-46
Topic(s): none
Tumor Site(s): Lung
Data Source/Project/Initiative(s): Patient-Reported Outcomes Measurement Information System (PROMIS);  Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: Accelerometry;  Activities of Daily Living;  Adolescent;  Adult;  Aged;  Cross-Sectional Studies;  Female;  Follow-Up Studies;  Health Status Indicators;  Hematopoietic Stem Cell Transplantation;  Humans;  Male;  Middle Aged;  Motor Activity;  Patient Outcome Assessment;  Quality of Life;  Self Report;  Young Adult
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Authors: Craig BM, Mitchell SA
Title: Examining the Value of Menopausal Symptom Relief Among US Women.
Type: Journal Article
Date: 2016 Mar-Apr
Journal: Value Health 19(2):158-66
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: Adult;  Aged;  Checklist;  Female;  Health Knowledge, Attitudes, Practice;  Health Status;  Humans;  Life Expectancy;  Linear Models;  Menopause;  Middle Aged;  Models, Econometric;  Patient Preference;  Quality of Life;  Quality-Adjusted Life Years;  Surveys and Questionnaires;  United States;  Women's Health
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Authors: Bennett AV, Dueck AC, Mitchell SA, Mendoza TR, Reeve BB, Atkinson TM, Castro KM, Denicoff A, Rogak LJ, Harness JK, Bearden JD, Bryant D, Siegel RD, Schrag D, Basch E, National Cancer Institute PRO-CTCAE Study Group
Title: Mode equivalence and acceptability of tablet computer-, interactive voice response system-, and paper-based administration of the U.S. National Cancer Institute's Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE).
Type: Journal Article
Date: 2016 Feb 19
Journal: Health Qual Life Outcomes 14():24
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: Adult;  Adverse Drug Reaction Reporting Systems;  Aged;  Antineoplastic Agents;  Chemoradiotherapy;  Computers, Handheld;  Cross-Over Studies;  Drug-Related Side Effects and Adverse Reactions;  Female;  Humans;  Male;  Middle Aged;  National Cancer Institute (U.S.);  Neoplasms;  Patient Outcome Assessment;  Radiation Injuries;  Radiotherapy;  Reproducibility of Results;  Self Report;  Terminology as Topic;  United States
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Authors: Mollica MA, Underwood W 3rd, Homish GG, Homish DL, Orom H
Title: Spirituality is associated with better prostate cancer treatment decision making experiences.
Type: Journal Article
Date: 2016 Feb
Journal: J Behav Med 39(1):161-9
Topic(s): none
Tumor Site(s): Prostate
Data Source/Project/Initiative(s): none
Keywords: Aged;  Decision Making;  Humans;  Male;  Middle Aged;  Patient Satisfaction;  Prostatic Neoplasms;  Spirituality
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Authors: Litzelman K, Kent EE, Rowland JH
Title: Social factors in informal cancer caregivers: The interrelationships among social stressors, relationship quality, and family functioning in the CanCORS data set.
Type: Journal Article
Date: 2016 Jan 15
Journal: Cancer 122(2):278-86
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adult;  Age Factors;  Aged;  Caregivers;  Colorectal Neoplasms;  Cross-Sectional Studies;  Family Relations;  Female;  Humans;  Interpersonal Relations;  Lung Neoplasms;  Male;  Middle Aged;  Quality of Life;  Risk Assessment;  Sex Factors;  Social Isolation;  Stress, Psychological;  Surveys and Questionnaires;  Survivors;  Young Adult
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Authors: Kent EE, Malinoff R, Rozjabek HM, Ambs A, Clauser SB, Topor MA, Yuan G, Burroughs J, Rodgers AB, DeMichele K
Title: Revisiting the Surveillance Epidemiology and End Results Cancer Registry and Medicare Health Outcomes Survey (SEER-MHOS) Linked Data Resource for Patient-Reported Outcomes Research in Older Adults with Cancer.
Type: Journal Article
Date: 2016 Jan
Journal: J Am Geriatr Soc 64(1):186-92
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;  Aged, 80 and over;  Comorbidity;  Female;  Health Care Rationing;  Health Services for the Aged;  Health Status Disparities;  Humans;  Male;  Medical Record Linkage;  Medicare;  Neoplasms;  Patient Outcome Assessment;  Prevalence;  Quality Improvement;  Quality of Life;  SEER Program;  United States
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Authors: Barile JP, Mitchell SA, Thompson WW, Zack MM, Reeve BB, Cella D, Smith AW
Title: Patterns of Chronic Conditions and Their Associations With Behaviors and Quality of Life, 2010.
Type: Journal Article
Date: 2015 Dec 17
Journal: Prev Chronic Dis 12():E222
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adolescent;  Adult;  Aged;  Chronic Disease;  Female;  Health Behavior;  Health Status;  Humans;  Male;  Mental Health;  Middle Aged;  Obesity;  Quality of Life;  Risk Factors;  Sedentary Lifestyle;  Self Care;  Smoking;  United States;  Young Adult
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Authors: Wu XC, Prasad PK, Landry I, Harlan LC, Parsons HM, Lynch CF, Smith AW, Hamilton AS, Keegan TH, AYA HOPE Study Collaborative Group (Schwartz SM, Shellenberger M, Janes T, Lynch CF, West MM, Somers LA, Kato I, Bankowski A, Stock M, Cress R, Agha G, Cruz M, Wu XC, Chen V, Prasad PK, Keegan T, Allen L, Loya Z, Shelton-Herendeen L, Hamilton A, Zelaya J, Trinidad U, Harlan LC, Smith AW, Keel G, Eisenstein J, Potosky A, Bellizzi K, Albritton K, Link M, Friedman D, Zebrack B)
Title: Impact of the AYA HOPE Comorbidity Index on Assessing Health Care Service Needs and Health Status among Adolescents and Young Adults with Cancer.
Type: Journal Article
Date: 2015 Dec
Journal: Cancer Epidemiol Biomarkers Prev 24(12):1844-9
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Age Factors;  Comorbidity;  Female;  Health Services Needs and Demand;  Health Status;  Humans;  Logistic Models;  Male;  Neoplasms;  Quality of Life;  SEER Program;  United States;  Young Adult
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Authors: Shnorhavorian M, Harlan LC, Smith AW, Keegan TH, Lynch CF, Prasad PK, Cress RD, Wu XC, Hamilton AS, Parsons HM, Keel G, Charlesworth SE, Schwartz SM, AYA HOPE Study Collaborative Group (Schwartz SM, Shellenberger M, Janes T, Lynch CF, West MM, Somers LA, Kato I, Bankowski A, Stock M, Cress R, Agha G, Cruz M, Wu XC, Chen V, Prasad PK, Keegan TH, Allen L, Loya Z, Shelton-Herendeen L, Hamilton A, Zelaya J, Trinidad U, Harlan LC, Smith AW, Keel G, Eisenstein J, Potosky A, Bellizzi K, Albritton K, Link M, Friedman D, Zebrack B)
Title: Fertility preservation knowledge, counseling, and actions among adolescent and young adult patients with cancer: A population-based study.
Type: Journal Article
Date: 2015 Oct 01
Journal: Cancer 121(19):3499-506
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Counseling;  Female;  Fertility Preservation;  Humans;  Male;  Neoplasms;  Surveys and Questionnaires;  Young Adult
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Authors: Jensen RE, Potosky AL, Reeve BB, Hahn E, Cella D, Fries J, Smith AW, Keegan TH, Wu XC, Paddock L, Moinpour CM
Title: Validation of the PROMIS physical function measures in a diverse US population-based cohort of cancer patients.
Type: Journal Article
Date: 2015 Oct
Journal: Qual Life Res 24(10):2333-44
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes Measurement Information System (PROMIS)
Keywords: Adult;  Aged;  Aged, 80 and over;  Cohort Studies;  Ethnic Groups;  Fatigue;  Female;  Health Behavior;  Humans;  Lymphoma, Non-Hodgkin;  Male;  Middle Aged;  Pain;  Patients;  Psychometrics;  Quality of Life;  Reproducibility of Results;  Sickness Impact Profile;  Socioeconomic Factors;  Surveys and Questionnaires;  Treatment Outcome;  United States;  Young Adult
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Authors: Curtis LM, Datiles MB 3rd, Steinberg SM, Mitchell SA, Bishop RJ, Cowen EW, Mays J, McCarty JM, Kuzmina Z, Pirsl F, Fowler DH, Gress RE, Pavletic SZ
Title: Predictive models for ocular chronic graft-versus-host disease diagnosis and disease activity in transplant clinical practice.
Type: Journal Article
Date: 2015 Sep
Journal: Haematologica 100(9):1228-36
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adolescent;  Adult;  Aged;  Allografts;  Child;  Chronic Disease;  Eye Diseases;  Female;  Graft vs Host Disease;  Hematopoietic Stem Cell Transplantation;  Humans;  Male;  Middle Aged;  Models, Biological;  Predictive Value of Tests
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Authors: de Moor JS, Alfano CM, Breen N, Kent EE, Rowland J
Title: Applying evidence from economic evaluations to translate cancer survivorship research into care.
Type: Journal Article
Date: 2015 Sep
Journal: J Cancer Surviv 9(3):560-6
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Cost-Benefit Analysis;  Delivery of Health Care;  Humans;  National Cancer Institute (U.S.);  Neoplasms;  Quality of Life;  Research;  Survival Rate;  Survivors;  United States
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Authors: DeRouen MC, Smith AW, Tao L, Bellizzi KM, Lynch CF, Parsons HM, Kent EE, Keegan TH, AYA HOPE Study Collaborative Group (Cress R, Agha G, Cruz M, Schwartz SM, Shellenberger M, Janes T, Kato I, Bankowski A, Stock M, Wu XC, Chen V, Tompkins B, Keegan T, Allen L, Loya Z, Shelton-Herendeen L, Lynch CF, West MM, Odle LA, Hamilton A, Zelaya J, Lo M, Trinidad U, Harlan LC, Smith AW, Eisenstein J, Keel G, Potosky A, Bellizzi K, Albritton K, Link M, Zebrack B)
Title: Cancer-related information needs and cancer's impact on control over life influence health-related quality of life among adolescents and young adults with cancer.
Type: Journal Article
Date: 2015 Sep
Journal: Psychooncology 24(9):1104-15
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: none
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Authors: Knobf MT, Cooley ME, Duffy S, Doorenbos A, Eaton L, Given B, Mayer DK, McCorkle R, Miaskowski C, Mitchell S, Sherwood P, Bender C, Cataldo J, Hershey D, Katapodi M, Menon U, Schumacher K, Sun V, Von Ah D, LoBiondo-Wood G, Mallory G
Title: The 2014-2018 Oncology Nursing Society Research Agenda.
Type: Journal Article
Date: 2015 Sep
Journal: Oncol Nurs Forum 42(5):450-65
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Humans;  Neoplasms;  Nursing Research;  Oncology Nursing;  Research;  Societies, Nursing;  Time Factors
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Authors: Parsons HM, Harlan LC, Schmidt S, Keegan TH, Lynch CF, Kent EE, Wu XC, Schwartz SM, Chu RL, Keel G, Smith AW, AYA HOPE Collaborative Group (Cress R, Agha G, Cruz M, Schwartz SM, Shellenberger M, Janes T, Kato I, Bankowski A, Stock M, Wu XC, Chen V, Tompkins B, Keegan T, Allen L, Loya Z, Hussain K, Lynch CF, West MM, Odle LA, Hamilton A, Zelaya J, Lo M, Harlan LC, Smith AW, Stringer SM, Keel G, Potosky A, Bellizzi K, Albritton K, Link M, Zebrack B)
Title: Who Treats Adolescents and Young Adults with Cancer? A Report from the AYA HOPE Study.
Type: Journal Article
Date: 2015 Sep
Journal: J Adolesc Young Adult Oncol 4(3):141-50
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Cohort Studies;  Female;  Humans;  Male;  National Cancer Institute (U.S.);  Neoplasms;  Survivors;  United States;  Young Adult
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Authors: Weinfurt KP, Lin L, Bruner DW, Cyranowski JM, Dombeck CB, Hahn EA, Jeffery DD, Luecht RM, Magasi S, Porter LS, Reese JB, Reeve BB, Shelby RA, Smith AW, Willse JT, Flynn KE
Title: Development and Initial Validation of the PROMIS(®) Sexual Function and Satisfaction Measures Version 2.0.
Type: Journal Article
Date: 2015 Sep
Journal: J Sex Med 12(9):1961-74
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes Measurement Information System (PROMIS)
Keywords: Adult;  Aged;  Aged, 80 and over;  Anxiety;  Depression;  Female;  Focus Groups;  Humans;  Male;  Middle Aged;  Orgasm;  Penile Erection;  Personal Satisfaction;  Psychometrics;  Reproducibility of Results;  Sexual Behavior;  Surveys and Questionnaires
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Authors: Kent EE, Mitchell SA, Castro KM, DeWalt DA, Kaluzny AD, Hautala JA, Grad O, Ballard RM, McCaskill-Stevens WJ, Kramer BS, Clauser SB
Title: Cancer Care Delivery Research: Building the Evidence Base to Support Practice Change in Community Oncology.
Type: Journal Article
Date: 2015 Aug 20
Journal: J Clin Oncol 33(24):2705-11
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): NCI Community Oncology Research Program (NCORP)
Keywords: Delivery of Health Care;  Health Services Research;  Humans;  Medical Oncology;  Research
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Authors: Kent EE, Breen N, Lewis DR, de Moor JS, Smith AW, Seibel NL
Title: US trends in survival disparities among adolescents and young adults with non-Hodgkin lymphoma.
Type: Journal Article
Date: 2015 Aug
Journal: Cancer Causes Control 26(8):1153-62
Topic(s): none
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Continental Population Groups;  Ethnic Groups;  Female;  HIV Infections;  Health Status Disparities;  Humans;  Lymphoma, Non-Hodgkin;  Male;  Social Class;  United States;  Young Adult
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Authors: Baird K, Comis LE, Joe GO, Steinberg SM, Hakim FT, Rose JJ, Mitchell SA, Pavletic SZ, Figg WD, Yao L, Flanders KC, Takebe N, Sarantopoulos S, Booher S, Cowen EW
Title: Imatinib mesylate for the treatment of steroid-refractory sclerotic-type cutaneous chronic graft-versus-host disease.
Type: Journal Article
Date: 2015 Jun
Journal: Biol Blood Marrow Transplant 21(6):1083-90
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adolescent;  Adult;  Antineoplastic Agents;  Child;  Drug Administration Schedule;  Fasciitis;  Female;  Graft vs Host Disease;  Hematopoietic Stem Cell Transplantation;  Humans;  Imatinib Mesylate;  Joints;  Leukemia;  Male;  Middle Aged;  Mycophenolic Acid;  Pilot Projects;  Prednisone;  Range of Motion, Articular;  Recurrence;  Skin Diseases;  Tacrolimus;  Transplantation, Homologous
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Authors: Leach CR, Weaver KE, Aziz NM, Alfano CM, Bellizzi KM, Kent EE, Forsythe LP, Rowland JH
Title: The complex health profile of long-term cancer survivors: prevalence and predictors of comorbid conditions.
Type: Journal Article
Date: 2015 Jun
Journal: J Cancer Surviv 9(2):239-51
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adult;  Aged;  Aged, 80 and over;  Body Mass Index;  California;  Comorbidity;  Female;  Humans;  Male;  Middle Aged;  Neoplasms;  Obesity;  Overweight;  Prevalence;  Risk Factors;  Smoking;  Survivors
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Authors: Lee SJ, Wolff D, Kitko C, Koreth J, Inamoto Y, Jagasia M, Pidala J, Olivieri A, Martin PJ, Przepiorka D, Pusic I, Dignan F, Mitchell SA, Lawitschka A, Jacobsohn D, Hall AM, Flowers ME, Schultz KR, Vogelsang G, Pavletic S
Title: Measuring therapeutic response in chronic graft-versus-host disease. National Institutes of Health consensus development project on criteria for clinical trials in chronic graft-versus-host disease: IV. The 2014 Response Criteria Working Group report.
Type: Journal Article
Date: 2015 Jun
Journal: Biol Blood Marrow Transplant 21(6):984-99
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adult;  Antineoplastic Agents;  Biomarkers;  Child;  Chronic Disease;  Clinical Trials as Topic;  Consensus;  Disease Progression;  Graft vs Host Disease;  Hematologic Neoplasms;  Hematopoietic Stem Cell Transplantation;  Humans;  Immunosuppressive Agents;  National Institutes of Health (U.S.);  Remission Induction;  Survival Analysis;  Terminology as Topic;  Transplantation, Homologous;  Treatment Outcome;  United States
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Authors: Berger AM, Mitchell SA, Jacobsen PB, Pirl WF
Title: Screening, evaluation, and management of cancer-related fatigue: Ready for implementation to practice?
Type: Journal Article
Date: 2015 May-Jun
Journal: CA Cancer J Clin 65(3):190-211
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes Measurement Information System (PROMIS)
Keywords: Adult;  Combined Modality Therapy;  Evidence-Based Medicine;  Fatigue;  Humans;  Neoplasms;  Practice Guidelines as Topic
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Authors: Chawla N, Urato M, Ambs A, Schussler N, Hays RD, Clauser SB, Zaslavsky AM, Walsh K, Schwartz M, Halpern M, Gaillot S, Goldstein EH, Arora NK
Title: Unveiling SEER-CAHPS®: a new data resource for quality of care research.
Type: Journal Article
Date: 2015 May
Journal: J Gen Intern Med 30(5):641-50
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Cancer Research Network (CRN)SEER-CAHPS Linked Data Resource
Keywords: Aged;  Databases, Factual;  Female;  Health Services Research;  Humans;  Male;  Medicare;  Middle Aged;  National Cancer Institute (U.S.);  Patient Satisfaction;  Program Evaluation;  Quality Assurance, Health Care;  SEER Program;  United States
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Authors: Steeves JA, Liu B, Willis G, Lee R, Smith AW
Title: Physicians' personal beliefs about weight-related care and their associations with care delivery: The U.S. National Survey of Energy Balance Related Care among Primary Care Physicians.
Type: Journal Article
Date: 2015 May-Jun
Journal: Obes Res Clin Pract 9(3):243-55
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): National Survey of Energy Balance-related Care among Primary Care Physicians
Keywords: Adult;  Attitude of Health Personnel;  Body Mass Index;  Child;  Clinical Competence;  Combined Modality Therapy;  Delayed Diagnosis;  Diet, Reducing;  Energy Intake;  Energy Metabolism;  Health Care Surveys;  Humans;  Motor Activity;  Needs Assessment;  Obesity;  Overweight;  Pediatric Obesity;  Physician's Role;  Physicians, Primary Care;  United States;  Weight Loss
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Authors: Deziel NC, Colt JS, Kent EE, Gunier RB, Reynolds P, Booth B, Metayer C, Ward MH
Title: Associations between self-reported pest treatments and pesticide concentrations in carpet dust.
Type: Journal Article
Date: 2015 Mar 25
Journal: Environ Health 14():27
Topic(s): none
Tumor Site(s): Leukemia
Data Source/Project/Initiative(s): none
Keywords: Adolescent;  California;  Case-Control Studies;  Child;  Child, Preschool;  Dust;  Environmental Exposure;  Female;  Floors and Floorcoverings;  Humans;  Infant;  Infant, Newborn;  Leukemia;  Male;  Pest Control;  Pesticide Residues;  Prevalence;  Risk Assessment;  Self Report
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Authors: Sohl SJ, Borowski LA, Kent EE, Smith AW, Oakley-Girvan I, Rothman RL, Arora NK
Title: Cancer survivors' disclosure of complementary health approaches to physicians: the role of patient-centered communication.
Type: Journal Article
Date: 2015 Mar 15
Journal: Cancer 121(6):900-7
Topic(s): none
Tumor Site(s): Colorectal;  Leukemia;  Urinary Bladder
Data Source/Project/Initiative(s): Assessment of Patients' Experience of Cancer Care (APECC) Study
Keywords: Adult;  Aged;  Aged, 80 and over;  Colorectal Neoplasms;  Communication;  Complementary Therapies;  Cross-Sectional Studies;  Data Collection;  Female;  Humans;  Leukemia;  Male;  Middle Aged;  Neoplasms;  Physician-Patient Relations;  Physicians;  Self Disclosure;  Surveys and Questionnaires;  Survivors;  Urinary Bladder Neoplasms;  Young Adult
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Authors: Tan HJ, Meyer AM, Kuo TM, Smith AB, Wheeler SB, Carpenter WR, Nielsen ME
Title: Provider-based research networks and diffusion of surgical technologies among patients with early-stage kidney cancer.
Type: Journal Article
Date: 2015 Mar 15
Journal: Cancer 121(6):836-43
Topic(s): none
Tumor Site(s): Renal
Data Source/Project/Initiative(s): SEER-Medicare Linked Database
Keywords: Aged;  Aged, 80 and over;  Cohort Studies;  Diffusion of Innovation;  Female;  Humans;  Kidney Neoplasms;  Laparoscopy;  Male;  National Cancer Institute (U.S.);  Neoplasm Staging;  Nephrectomy;  SEER Program;  Translational Medical Research;  United States
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Authors: Kent EE, Ambs A, Mitchell SA, Clauser SB, Smith AW, Hays RD
Title: Health-related quality of life in older adult survivors of selected cancers: data from the SEER-MHOS linkage.
Type: Journal Article
Date: 2015 Mar 01
Journal: Cancer 121(5):758-65
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;  Female;  Health Status;  Health Surveys;  Humans;  Male;  Mental Health;  Middle Aged;  Neoplasms;  Quality of Life;  SEER Program;  Surveys and Questionnaires;  United States
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Authors: Jagasia MH, Greinix HT, Arora M, Williams KM, Wolff D, Cowen EW, Palmer J, Weisdorf D, Treister NS, Cheng GS, Kerr H, Stratton P, Duarte RF, McDonald GB, Inamoto Y, Vigorito A, Arai S, Datiles MB, Jacobsohn D, Heller T, Kitko CL, Mitchell SA, Martin PJ, Shulman H, Wu RS, Cutler CS, Vogelsang GB, Lee SJ, Pavletic SZ, Flowers ME
Title: National Institutes of Health Consensus Development Project on Criteria for Clinical Trials in Chronic Graft-versus-Host Disease: I. The 2014 Diagnosis and Staging Working Group report.
Type: Journal Article
Date: 2015 Mar
Journal: Biol Blood Marrow Transplant 21(3):389-401.e1
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Biomarkers;  Chronic Disease;  Clinical Trials as Topic;  Consensus;  Consensus Development Conferences, NIH as Topic;  Female;  Graft vs Host Disease;  Humans;  Male;  Organ Specificity;  Practice Guidelines as Topic;  United States
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Authors: Wood WA, Deal AM, Bennett AV, Mitchell SA, Abernethy AP, Basch E, Bailey C, Reeve BB
Title: Comparison of seven-day and repeated 24-hour recall of symptoms in the first 100 days after hematopoietic cell transplantation.
Type: Journal Article
Date: 2015 Mar
Journal: J Pain Symptom Manage 49(3):513-20
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Cohort Studies;  Feasibility Studies;  Hematopoietic Stem Cell Transplantation;  Humans;  Medical Records;  Middle Aged;  Pilot Projects;  Self Report;  Surveys and Questionnaires;  Time Factors
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Authors: Han X, Lin CC, Li C, de Moor JS, Rodriguez JL, Kent EE, Forsythe LP
Title: Association between serious psychological distress and health care use and expenditures by cancer history.
Type: Journal Article
Date: 2015 Feb 15
Journal: Cancer 121(4):614-22
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Medical Expenditure Panel Survey (MEPS) - Experiences with Cancer Survivorship Supplement
Keywords: Adult;  Aged;  Aged, 80 and over;  Comorbidity;  Female;  Health Expenditures;  Health Services;  Humans;  Male;  Middle Aged;  Neoplasms;  Stress, Psychological;  Survivors
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Authors: Kirsch M, Mitchell SA, Dobbels F, Stussi G, Basch E, Halter JP, De Geest S
Title: Linguistic and content validation of a German-language PRO-CTCAE-based patient-reported outcomes instrument to evaluate the late effect symptom experience after allogeneic hematopoietic stem cell transplantation.
Type: Journal Article
Date: 2015 Feb
Journal: Eur J Oncol Nurs 19(1):66-74
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: Adult;  Aged;  Female;  Germany;  Hematopoietic Stem Cell Transplantation;  Humans;  Leukemia;  Linguistics;  Male;  Middle Aged;  Patient Outcome Assessment;  Reproducibility of Results;  Self Report;  Socioeconomic Factors;  Symptom Assessment;  Translating;  Young Adult
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Authors: Kuzmina Z, Gounden V, Curtis L, Avila D, Rnp TT, Baruffaldi J, Cowen EW, Naik HB, Hasni SA, Mays JW, Mitchell S, Baird K, Steinberg SM, Pavletic SZ
Title: Clinical significance of autoantibodies in a large cohort of patients with chronic graft-versus-host disease defined by NIH criteria.
Type: Journal Article
Date: 2015 Feb
Journal: Am J Hematol 90(2):114-9
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adolescent;  Adult;  Aged;  Antibodies, Monoclonal, Murine-Derived;  Antigens, CD;  Antineoplastic Agents;  Autoantibodies;  B-Lymphocytes;  Child;  Child, Preschool;  Chronic Disease;  Cross-Sectional Studies;  Female;  Graft vs Host Disease;  Hematologic Neoplasms;  Hematopoietic Stem Cell Transplantation;  Humans;  Immunoglobulin G;  Male;  Middle Aged;  Prospective Studies;  Rituximab;  T-Lymphocytes;  Transplantation, Homologous;  Uric Acid
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Authors: Nass SJ, Beaupin LK, Demark-Wahnefried W, Fasciano K, Ganz PA, Hayes-Lattin B, Hudson MM, Nevidjon B, Oeffinger KC, Rechis R, Richardson LC, Seibel NL, Smith AW
Title: Identifying and addressing the needs of adolescents and young adults with cancer: summary of an Institute of Medicine workshop.
Type: Journal Article
Date: 2015 Feb
Journal: Oncologist 20(2):186-95
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adolescent;  Adult;  Humans;  Institute of Medicine (U.S.);  Neoplasms;  Survivors;  United States;  Young Adult
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Authors: Walling AM, Weeks JC, Kahn KL, Tisnado D, Keating NL, Dy SM, Arora NK, Mack JW, Pantoja PM, Malin JL
Title: Symptom prevalence in lung and colorectal cancer patients.
Type: Journal Article
Date: 2015 Feb
Journal: J Pain Symptom Manage 49(2):192-202
Topic(s): none
Tumor Site(s): Colorectal;  Lung
Data Source/Project/Initiative(s): Cancer Care Outcomes Research & Surveillance Consortium (CanCORS)
Keywords: Adult;  Aged;  Aged, 80 and over;  Cohort Studies;  Colorectal Neoplasms;  Comorbidity;  Disease Progression;  Female;  Humans;  Logistic Models;  Lung Neoplasms;  Male;  Middle Aged;  Multivariate Analysis;  Prevalence;  Severity of Illness Index;  Surveys and Questionnaires;  United States;  Young Adult
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Authors: Zuo RC, Naik HB, Steinberg SM, Baird K, Mitchell SA, Kuzmina Z, Pavletic SZ, Cowen EW
Title: Risk factors and characterization of vitiligo and alopecia areata in patients with chronic graft-vs-host disease.
Type: Journal Article
Date: 2015 Jan
Journal: JAMA Dermatol 151(1):23-32
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adolescent;  Adult;  Aged;  Alopecia Areata;  Child;  Chronic Disease;  Cross-Sectional Studies;  Female;  Graft vs Host Disease;  Hematopoietic Stem Cell Transplantation;  Humans;  Logistic Models;  Male;  Middle Aged;  Multivariate Analysis;  Retrospective Studies;  Risk Factors;  Sex Factors;  Tissue Donors;  Vitiligo;  Young Adult
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Authors: Johnson TP, Shariff-Marco S, Willis G, Cho YI, Breen N, Gee GC, Krieger N, Grant D, Alegria M, Mays VM, Williams DR, Landrine H, Liu B, Reeve BB, Takeuchi D, Ponce NA
Title: Sources of Interactional Problems in a Survey of Racial/Ethnic Discrimination.
Type: Journal Article
Date: 2015 Summer
Journal: Int J Public Opin Res 27(2):244-263
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): California Health Interview Survey (CHIS) Cancer Control Items
Keywords: none
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Authors: Prince P, Mitchell SA, Wehrlen L, Childs R, Savani B, Yang L, Bevans M
Title: Spiritual Well-Being in Hispanic and Non-Hispanic Survivors of Allogeneic Hematopoietic Stem Cell Transplantation.
Type: Journal Article
Date: 2015
Journal: J Psychosoc Oncol 33(6):635-54
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adult;  Aged;  Cross-Sectional Studies;  Female;  Hematopoietic Stem Cell Transplantation;  Hispanic Americans;  Humans;  Male;  Middle Aged;  Prospective Studies;  Quality of Life;  Spirituality;  Survivors;  Transplantation, Homologous;  Young Adult
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Authors: Palmer NR, Kent EE, Forsythe LP, Arora NK, Rowland JH, Aziz NM, Blanch-Hartigan D, Oakley-Girvan I, Hamilton AS, Weaver KE
Title: Racial and ethnic disparities in patient-provider communication, quality-of-care ratings, and patient activation among long-term cancer survivors.
Type: Journal Article
Date: 2014 Dec 20
Journal: J Clin Oncol 32(36):4087-94
Topic(s): none
Tumor Site(s): Breast;  Colorectal;  Ovary;  Prostate;  Other
Data Source/Project/Initiative(s): none
Keywords: Adult;  African Americans;  Aged;  Aged, 80 and over;  Asian Continental Ancestry Group;  Communication;  European Continental Ancestry Group;  Female;  Healthcare Disparities;  Hispanic Americans;  Humans;  Logistic Models;  Male;  Middle Aged;  Neoplasms;  Patient Participation;  Physician-Patient Relations;  Quality of Health Care;  Survivors
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Authors: Lewis DR, Seibel NL, Smith AW, Stedman MR
Title: Adolescent and young adult cancer survival.
Type: Journal Article
Date: 2014 Nov
Journal: J Natl Cancer Inst Monogr 2014(49):228-35
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Surveillance, Epidemiology, & End Results (SEER) Program
Keywords: Adolescent;  Adult;  Female;  Health Services Needs and Demand;  Humans;  Male;  Neoplasms;  SEER Program;  Survival Rate;  Treatment Outcome;  United States;  Young Adult
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Authors: Nguyen AB, Chawla N, Noone AM, Srinivasan S
Title: Disaggregated data and beyond: future queries in cancer control research.
Type: Journal Article
Date: 2014 Nov
Journal: Cancer Epidemiol Biomarkers Prev 23(11):2266-72
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Cancer Research Network (CRN)Surveillance, Epidemiology, & End Results (SEER) Program
Keywords: Asian Americans;  Biomedical Research;  Financing, Government;  Health Policy;  Health Status Disparities;  Humans;  Minority Groups;  National Cancer Institute (U.S.);  Neoplasms;  Socioeconomic Factors;  Statistics as Topic;  United States
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Authors: Potosky AL, Harlan LC, Albritton K, Cress RD, Friedman DL, Hamilton AS, Kato I, Keegan TH, Keel G, Schwartz SM, Seibel NL, Shnorhavorian M, West MM, Wu XC, AYA HOPE Study Collaborative Group (Schwartz SM, Shellenberger M, Janes T, Lynch CF, West MM, Somers LA, Kato I, Bankowski A, Stock M, Cress R, Agha G, Cruz M, Wu XC, Chen V, Prasad PK, Keegan T, Allen L, Loya Z, Shelton-Herendeen L, Hamilton A, Zelaya J, Trinidad U, Harlan LC, Smith AW, Keel G, Eisenstein J, Potosky A, Bellizzi K, Albritton K, Link M, Friedman D, Zebrack B)
Title: Use of appropriate initial treatment among adolescents and young adults with cancer.
Type: Journal Article
Date: 2014 Nov
Journal: J Natl Cancer Inst 106(11):
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Female;  Germinoma;  Hodgkin Disease;  Humans;  Logistic Models;  Lymphoma, Non-Hodgkin;  Male;  Neoplasms;  Precursor Cell Lymphoblastic Leukemia-Lymphoma;  Quality of Health Care;  Registries;  Retrospective Studies;  SEER Program;  Sarcoma;  United States;  Young Adult
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Authors: Chawla N, Yabroff KR, Mariotto A, McNeel TS, Schrag D, Warren JL
Title: Limited validity of diagnosis codes in Medicare claims for identifying cancer metastases and inferring stage.
Type: Journal Article
Date: 2014 Sep
Journal: Ann Epidemiol 24(9):666-2
Topic(s): none
Tumor Site(s): Breast;  Colorectal;  Lung
Data Source/Project/Initiative(s): SEER-Medicare Linked DatabaseCancer Research Network (CRN)
Keywords: Aged;  Aged, 80 and over;  Breast Neoplasms;  Clinical Coding;  Colorectal Neoplasms;  Female;  Humans;  Insurance Claim Review;  International Classification of Diseases;  Lung Neoplasms;  Male;  Medicare;  Multivariate Analysis;  Neoplasm Staging;  Predictive Value of Tests;  Regression Analysis;  Reproducibility of Results;  SEER Program;  Socioeconomic Factors;  United States
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Authors: Togawa K, Ma H, Sullivan-Halley J, Neuhouser ML, Imayama I, Baumgartner KB, Smith AW, Alfano CM, McTiernan A, Ballard-Barbash R, Bernstein L
Title: Risk factors for self-reported arm lymphedema among female breast cancer survivors: a prospective cohort study.
Type: Journal Article
Date: 2014 Aug 22
Journal: Breast Cancer Res 16(4):414
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;  Aged;  Arm;  Breast Neoplasms;  Cohort Studies;  Female;  Humans;  Incidence;  Lymphedema;  Middle Aged;  Prospective Studies;  Risk Factors;  Self Report;  Survivors;  Young Adult
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Authors: Parsons HM, Schmidt S, Harlan LC, Kent EE, Lynch CF, Smith AW, Keegan TH, AYA HOPE Collaborative
Title: Young and uninsured: Insurance patterns of recently diagnosed adolescent and young adult cancer survivors in the AYA HOPE study.
Type: Journal Article
Date: 2014 Aug 01
Journal: Cancer 120(15):2352-60
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adult;  Age Factors;  Female;  Humans;  Insurance Coverage;  Male;  Medically Uninsured;  Neoplasms;  Patient Protection and Affordable Care Act;  SEER Program;  Survivors;  United States;  Young Adult
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Authors: Reeve BB, Mitchell SA, Dueck AC, Basch E, Cella D, Reilly CM, Minasian LM, Denicoff AM, O'Mara AM, Fisch MJ, Chauhan C, Aaronson NK, Coens C, Bruner DW
Title: Recommended patient-reported core set of symptoms to measure in adult cancer treatment trials.
Type: Journal Article
Date: 2014 Jul
Journal: J Natl Cancer Inst 106(7):
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adult;  Anorexia;  Anxiety;  Clinical Trials as Topic;  Constipation;  Depression;  Diarrhea;  Dyspnea;  Fatigue;  Female;  Health Status;  Humans;  Mild Cognitive Impairment;  National Cancer Institute (U.S.);  Neoplasms;  Outcome Assessment (Health Care);  Pain;  Peripheral Nervous System Diseases;  Prevalence;  Quality of Life;  Self Report;  Severity of Illness Index;  Sleep Initiation and Maintenance Disorders;  Surveys and Questionnaires;  Treatment Outcome;  United States
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Authors: Weaver KE, Aziz NM, Arora NK, Forsythe LP, Hamilton AS, Oakley-Girvan I, Keel G, Bellizzi KM, Rowland JH
Title: Follow-up care experiences and perceived quality of care among long-term survivors of breast, prostate, colorectal, and gynecologic cancers.
Type: Journal Article
Date: 2014 Jul
Journal: J Oncol Pract 10(4):e231-9
Topic(s): none
Tumor Site(s): Breast;  Colorectal;  Ovary;  Prostate;  Other
Data Source/Project/Initiative(s): Surveillance, Epidemiology, & End Results (SEER) Program
Keywords: Adult;  Aged;  Aged, 80 and over;  Cross-Sectional Studies;  Female;  Follow-Up Studies;  Humans;  Male;  Middle Aged;  Neoplasms;  Patient Satisfaction;  Surveys and Questionnaires;  Survivors
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Authors: Forsythe LP, Arora NK, Alfano CM, Weaver KE, Hamilton AS, Aziz N, Rowland JH
Title: Role of oncologists and primary care physicians in providing follow-up care to non-Hodgkin lymphoma survivors within 5 years of diagnosis: a population-based study.
Type: Journal Article
Date: 2014 Jun
Journal: Support Care Cancer 22(6):1509-17
Topic(s): none
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Surveillance, Epidemiology, & End Results (SEER) Program
Keywords: Aged;  Data Collection;  Female;  Follow-Up Studies;  Humans;  Los Angeles;  Lymphoma, Non-Hodgkin;  Male;  Medical Oncology;  Middle Aged;  Neoplasm Recurrence, Local;  Patient-Centered Care;  Physicians, Primary Care;  Registries;  SEER Program;  Specialization;  Survivors
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Authors: Guy GP Jr, Yabroff KR, Ekwueme DU, Smith AW, Dowling EC, Rechis R, Nutt S, Richardson LC
Title: Estimating the health and economic burden of cancer among those diagnosed as adolescents and young adults.
Type: Journal Article
Date: 2014 Jun
Journal: Health Aff (Millwood) 33(6):1024-31
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Health Economics Research on Cancer Interagency Consortium (HEROiC)Medical Expenditure Panel Survey (MEPS) - Experiences with Cancer Survivorship Supplement
Keywords: Adolescent;  Adult;  Age Factors;  Cost of Illness;  Disability Evaluation;  Female;  Health Care Costs;  Health Expenditures;  Health Services Accessibility;  Humans;  Long-Term Care;  Male;  Neoplasms;  Sick Leave;  Survivors;  United States;  Young Adult
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Authors: Keegan TH, Tao L, DeRouen MC, Wu XC, Prasad P, Lynch CF, Shnorhavorian M, Zebrack BJ, Chu R, Harlan LC, Smith AW, Parsons HM, AYA HOPE Study Collaborative Group (Cress R, Agha G, Cruz M, Schwartz SM, Shellenberger M, Janes T, Kato I, Bankowski A, Stock M, Wu XC, Chen V, Tompkins B, Keegan T, Allen L, Loya Z, Shelton-Herendeen L, Lynch CF, West MM, Odle LA, Hamilton A, Zelaya J, Lo M, Trinidad U, Harlan LC, Smith AW, Eisenstein J, Keel G, Potosky A, Bellizzi K, Albritton K, Link M, Zebrack B)
Title: Medical care in adolescents and young adult cancer survivors: what are the biggest access-related barriers?
Type: Journal Article
Date: 2014 Jun
Journal: J Cancer Surviv 8(2):282-92
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Female;  Health Services Accessibility;  Health Status;  Humans;  Insurance, Health;  Logistic Models;  Male;  Neoplasms;  Survivors;  Young Adult
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Authors: Kepka D, Smith A, Zeruto C, Yabroff KR
Title: Is provider type associated with cancer screening and prevention: advanced practice registered nurses, physician assistants, and physicians.
Type: Journal Article
Date: 2014 Mar 31
Journal: BMC Cancer 14():233
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): National Health Interview Survey (NHIS) - Cancer Control Supplement (CCS)
Keywords: Attitude of Health Personnel;  Early Detection of Cancer;  Humans;  Mass Screening;  Neoplasms;  Nurses;  Patient Compliance;  Patient Protection and Affordable Care Act;  Physician Assistants;  Physicians, Primary Care;  Smoking
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Authors: Grigsby TJ, Kent EE, Montoya MJ, Sender LS, Morris RA, Ziogas A, Anton-Culver H
Title: Attitudes Toward Cancer Clinical Trial Participation in Young Adults with a History of Cancer and a Healthy College Student Sample: A Preliminary Investigation.
Type: Journal Article
Date: 2014 Mar 01
Journal: J Adolesc Young Adult Oncol 3(1):20-27
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Bevans MF, Mitchell SA, Barrett JA, Bishop MR, Childs R, Fowler D, Krumlauf M, Prince P, Shelburne N, Wehrlen L, Yang L
Title: Symptom distress predicts long-term health and well-being in allogeneic stem cell transplantation survivors.
Type: Journal Article
Date: 2014 Mar
Journal: Biol Blood Marrow Transplant 20(3):387-95
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adult;  Female;  Health Status;  Hematologic Neoplasms;  Hematopoietic Stem Cell Transplantation;  Humans;  Immunosuppressive Agents;  Longitudinal Studies;  Male;  Mental Health;  Middle Aged;  Patient Outcome Assessment;  Quality of Life;  Stress, Psychological;  Survivors;  Transplantation, Homologous
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Authors: Hays RD, Reeve BB, Smith AW, Clauser SB
Title: Associations of cancer and other chronic medical conditions with SF-6D preference-based scores in Medicare beneficiaries.
Type: Journal Article
Date: 2014 Mar
Journal: Qual Life Res 23(2):385-91
Topic(s): none
Tumor Site(s): Breast;  Colorectal;  Corpus Uteri;  Lung;  Lymphoma;  Prostate;  Renal;  Skin;  Urinary Bladder
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;  Aged, 80 and over;  Chronic Disease;  Comorbidity;  Female;  Health Surveys;  Humans;  Male;  Medicare;  Neoplasms;  Quality of Life;  SEER Program;  Sickness Impact Profile;  United States
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Authors: Hay JL, Atkinson TM, Reeve BB, Mitchell SA, Mendoza TR, Willis G, Minasian LM, Clauser SB, Denicoff A, O'Mara A, Chen A, Bennett AV, Paul DB, Gagne J, Rogak L, Sit L, Viswanath V, Schrag D, Basch E, NCI PRO-CTCAE Study Group (Geoghegan C, Sloan JA, Cleeland CS, Abernethy AP, Bruner DW, Barz A, Dueck AC, Li Y)
Title: Cognitive interviewing of the US National Cancer Institute's Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE).
Type: Journal Article
Date: 2014 Feb
Journal: Qual Life Res 23(1):257-69
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: Adverse Drug Reaction Reporting Systems;  Antineoplastic Agents;  Cognition Disorders;  Drug Labeling;  Drug-Related Side Effects and Adverse Reactions;  Female;  Humans;  Interview, Psychological;  Male;  National Cancer Institute (U.S.);  Neoplasms;  Outcome and Process Assessment (Health Care);  Psychometrics;  Reproducibility of Results;  Self Report;  Terminology as Topic;  United States
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Authors: Kent EE, Mitchell SA, Oakley-Girvan I, Arora NK
Title: The importance of symptom surveillance during follow-up care of leukemia, bladder, and colorectal cancer survivors.
Type: Journal Article
Date: 2014 Jan
Journal: Support Care Cancer 22(1):163-72
Topic(s): none
Tumor Site(s): Colorectal;  Leukemia;  Urinary Bladder
Data Source/Project/Initiative(s): Assessment of Patients' Experience of Cancer Care (APECC) Study
Keywords: Colorectal Neoplasms;  Female;  Follow-Up Studies;  Humans;  Leukemia;  Male;  Middle Aged;  Neoplasm Recurrence, Local;  Quality of Life;  Self Report;  Survivors;  Symptom Assessment;  Urinary Bladder Neoplasms
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Authors: Klabunde CN, Clauser SB, Liu B, Pronk NP, Ballard-Barbash R, Huang TT, Smith AW
Title: Organization of primary care practice for providing energy balance care.
Type: Journal Article
Date: 2014 Jan-Feb
Journal: Am J Health Promot 28(3):e67-80
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): National Survey of Energy Balance-related Care among Primary Care Physicians
Keywords: Body Mass Index;  Data Collection;  Diet;  Energy Metabolism;  Humans;  Motor Activity;  Obesity;  Practice Patterns, Physicians';  Primary Health Care;  Surveys and Questionnaires;  United States
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Authors: Forsythe LP, Kent EE, Rowland JH
Title: Survivorship
Type: Book Chapter
Date: 2014
Book Editors: Niederhuber J, Armitage J, Doroshow J, Kastan M, Tepper J
Book Title: Abeloff's Clinical Oncology
ISBN: 9781455728657External Web Site Policy
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Mitchell SA, Hoffman AJ, Clark JC, DeGennaro RM, Poirier P, Robinson CB, Weisbrod BL
Title: Putting evidence into practice: an update of evidence-based interventions for cancer-related fatigue during and following treatment.
Type: Journal Article
Date: 2014
Journal: Clin J Oncol Nurs 18 Suppl():38-58
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Evidence-Based Nursing;  Fatigue;  Humans;  Neoplasms;  Risk Factors
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Authors: Zebrack B, Kent EE, Keegan TH, Kato I, Smith AW, AYA HOPE Study Collaborative Group (Cress R, Agha G, Cruz M, Schwartz S, Shellenberger M, Janes T, Kato I, Bankowski A, Stock M, Wu XC, Chen V, Tompkins B, Keegan T, Allen L, Loya Z, Hussain K, Lynch C, West M, Odle L, Hamilton A, Zelaya J, Lo M, Trinidad U, Harlan L, Wilder Smith A, Eisenstein J, Keel G, Potosky A, Bellizzi K, Albritton K, Friedman D, Link M, Zebrack B)
Title: "Cancer sucks," and other ponderings by adolescent and young adult cancer survivors.
Type: Journal Article
Date: 2014
Journal: J Psychosoc Oncol 32(1):1-15
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Attitude to Health;  Cohort Studies;  Data Collection;  Female;  Humans;  Male;  Neoplasms;  Patient Satisfaction;  Qualitative Research;  Survivors;  Young Adult
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Authors: Arora NK, Jensen RE, Sulayman N, Hamilton AS, Potosky AL
Title: Patient-physician communication about health-related quality-of-life problems: are non-Hodgkin lymphoma survivors willing to talk?
Type: Journal Article
Date: 2013 Nov 01
Journal: J Clin Oncol 31(31):3964-70
Topic(s): none
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Experience of Care & Health Outcomes of Survivors of Non-Hodgkin's Lymphoma (ECHOS-NHL) Study
Keywords: Adult;  Aged;  Cross-Sectional Studies;  Female;  Humans;  Lymphoma, Non-Hodgkin;  Male;  Middle Aged;  Physician-Patient Relations;  Quality of Life;  Survivors
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Authors: Stover AM, Reeve BB, Piper BF, Alfano CM, Smith AW, Mitchell SA, Bernstein L, Baumgartner KB, McTiernan A, Ballard-Barbash R
Title: Deriving clinically meaningful cut-scores for fatigue in a cohort of breast cancer survivors: a Health, Eating, Activity, and Lifestyle (HEAL) Study.
Type: Journal Article
Date: 2013 Nov
Journal: Qual Life Res 22(9):2279-92
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Aged;  Breast Neoplasms;  Cohort Studies;  Fatigue;  Female;  Health Status;  Humans;  Middle Aged;  Quality of Life;  Reference Values;  Survivors
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Authors: Wood WA, Chai X, Weisdorf D, Martin PJ, Cutler C, Inamoto Y, Wolff D, Pavletic SZ, Pidala J, Palmer JM, Arora M, Arai S, Jagasia M, Storer B, Lee SJ, Mitchell S
Title: Comorbidity burden in patients with chronic GVHD.
Type: Journal Article
Date: 2013 Nov
Journal: Bone Marrow Transplant 48(11):1429-36
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma
Data Source/Project/Initiative(s): none
Keywords: Adolescent;  Adult;  Aged;  Child;  Child, Preschool;  Chronic Disease;  Comorbidity;  Female;  Graft vs Host Disease;  Hematopoietic Stem Cell Transplantation;  Humans;  Male;  Middle Aged;  Prospective Studies;  Transplantation Conditioning;  Treatment Outcome;  Young Adult
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Authors: George SM, McTiernan A, Villaseñor A, Alfano CM, Irwin ML, Neuhouser ML, Baumgartner RN, Baumgartner KB, Bernstein L, Smith AW, Ballard-Barbash R
Title: Disentangling the body weight-bone mineral density association among breast cancer survivors: an examination of the independent roles of lean mass and fat mass.
Type: Journal Article
Date: 2013 Oct 25
Journal: BMC Cancer 13():497
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adipose Tissue;  Adult;  Aged;  Aged, 80 and over;  Body Composition;  Body Weight;  Bone Density;  Breast Neoplasms;  Female;  Humans;  Middle Aged;  New Mexico;  Risk Factors;  SEER Program;  Survivors;  Washington
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Authors: Forsythe LP, Parry C, Alfano CM, Kent EE, Leach CR, Haggstrom DA, Ganz PA, Aziz N, Rowland JH
Title: Use of survivorship care plans in the United States: associations with survivorship care.
Type: Journal Article
Date: 2013 Oct 16
Journal: J Natl Cancer Inst 105(20):1579-87
Topic(s): none
Tumor Site(s): Breast;  Colorectal
Data Source/Project/Initiative(s): Survey of Physician Attitudes Regarding the Care of Cancer Survivors (SPARCCS)
Keywords: Adult;  Aged;  Continuity of Patient Care;  Cross-Sectional Studies;  Female;  Health Care Surveys;  Humans;  Interprofessional Relations;  Logistic Models;  Male;  Medical Oncology;  Middle Aged;  Multivariate Analysis;  National Cancer Institute (U.S.);  Neoplasms;  Patient Care Planning;  Physicians, Primary Care;  Practice Patterns, Physicians';  Quality of Health Care;  Surveys and Questionnaires;  Survivors;  United States
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Authors: Kent EE, Forsythe LP, Yabroff KR, Weaver KE, de Moor JS, Rodriguez JL, Rowland JH
Title: Are survivors who report cancer-related financial problems more likely to forgo or delay medical care?
Type: Journal Article
Date: 2013 Oct 15
Journal: Cancer 119(20):3710-7
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): National Health Interview Survey (NHIS) - Cancer Control Supplement (CCS)
Keywords: Adult;  Aged;  Delivery of Health Care;  Female;  Follow-Up Studies;  Health Expenditures;  Health Services Accessibility;  Humans;  Male;  Middle Aged;  Neoplasms;  Patient Preference;  Prognosis;  Survivors;  Withholding Treatment
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Authors: Wood WA, Deal AM, Reeve BB, Abernethy AP, Basch E, Mitchell SA, Shatten C, Hie Kim Y, Whitley J, Serody JS, Shea T, Battaglini C
Title: Cardiopulmonary fitness in patients undergoing hematopoietic SCT: a pilot study.
Type: Journal Article
Date: 2013 Oct
Journal: Bone Marrow Transplant 48(10):1342-9
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma
Data Source/Project/Initiative(s): Patient-Reported Outcomes Measurement Information System (PROMIS);  Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: Adult;  Aged;  Cardiovascular Physiological Phenomena;  Exercise Test;  Female;  Hematopoietic Stem Cell Transplantation;  Humans;  Male;  Middle Aged;  Oxygen Consumption;  Pilot Projects;  Quality of Life;  Transplantation Conditioning;  Transplantation, Homologous
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Authors: Dowling EC, Chawla N, Forsythe LP, de Moor J, McNeel T, Rozjabek HM, Ekwueme DU, Yabroff KR
Title: Lost productivity and burden of illness in cancer survivors with and without other chronic conditions.
Type: Journal Article
Date: 2013 Sep 15
Journal: Cancer 119(18):3393-401
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Health Economics Research on Cancer Interagency Consortium (HEROiC)Medical Expenditure Panel Survey (MEPS) - Experiences with Cancer Survivorship Supplement
Keywords: Adolescent;  Adult;  Aged;  Aged, 80 and over;  Chronic Disease;  Cost of Illness;  Female;  Humans;  Male;  Middle Aged;  Neoplasms;  Quality of Life;  Survivors;  United States;  Young Adult
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Authors: Mazor KM, Gaglio B, Nekhlyudov L, Alexander GL, Stark A, Hornbrook MC, Walsh K, Boggs J, Lemay CA, Firneno C, Biggins C, Blosky MA, Arora NK
Title: Assessing patient-centered communication in cancer care: stakeholder perspectives.
Type: Journal Article
Date: 2013 Sep
Journal: J Oncol Pract 9(5):e186-93
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-centered Care & Communication;  Cancer Research Network (CRN)
Keywords: Adult;  Aged;  Aged, 80 and over;  Communication;  Delivery of Health Care;  Family;  Humans;  Middle Aged;  Neoplasms;  Patient-Centered Care;  Physician-Patient Relations;  Professional-Family Relations;  Qualitative Research;  Quality Assurance, Health Care;  Self Report;  Surveys and Questionnaires
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Authors: Barile JP, Reeve BB, Smith AW, Zack MM, Mitchell SA, Kobau R, Cella DF, Luncheon C, Thompson WW
Title: Monitoring population health for Healthy People 2020: evaluation of the NIH PROMIS® Global Health, CDC Healthy Days, and satisfaction with life instruments.
Type: Journal Article
Date: 2013 Aug
Journal: Qual Life Res 22(6):1201-11
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes Measurement Information System (PROMIS)
Keywords: Adult;  Centers for Disease Control and Prevention (U.S.);  Factor Analysis, Statistical;  Female;  Health Status;  Healthy People Programs;  Humans;  Male;  Mental Health;  Middle Aged;  National Institutes of Health (U.S.);  Patient Outcome Assessment;  Personal Satisfaction;  Program Evaluation;  Quality of Life;  United States;  Young Adult
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Authors: Kent EE, Sender LS, Morris RA, Grigsby TJ, Montoya MJ, Ziogas A, Anton-Culver H
Title: Multilevel socioeconomic effects on quality of life in adolescent and young adult survivors of leukemia and lymphoma.
Type: Journal Article
Date: 2013 Aug
Journal: Qual Life Res 22(6):1339-51
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma
Data Source/Project/Initiative(s): none
Keywords: Adolescent;  Adult;  Female;  Health Status Disparities;  Health Status Indicators;  Health Surveys;  Humans;  Leukemia;  Logistic Models;  Lymphoma;  Male;  Multivariate Analysis;  Quality of Life;  Residence Characteristics;  Social Class;  Socioeconomic Factors;  Survival Analysis;  Survivors;  Young Adult
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Authors: Parry C, Kent EE, Forsythe LP, Alfano CM, Rowland JH
Title: Can't see the forest for the care plan: a call to revisit the context of care planning.
Type: Journal Article
Date: 2013 Jul 20
Journal: J Clin Oncol 31(21):2651-3
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Advance Care Planning;  Continuity of Patient Care;  Delivery of Health Care;  Health Services Research;  Humans;  Neoplasms;  Patient Care Planning;  Survivors
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Authors: Han PK, Kobrin S, Breen N, Joseph DA, Li J, Frosch DL, Klabunde CN
Title: National evidence on the use of shared decision making in prostate-specific antigen screening.
Type: Journal Article
Date: 2013 Jul-Aug
Journal: Ann Fam Med 11(4):306-14
Topic(s): none
Tumor Site(s): Prostate
Data Source/Project/Initiative(s): National Health Interview Survey (NHIS) - Cancer Control Supplement (CCS)
Keywords: Adult;  Aged;  Attitude to Health;  Biomarkers, Tumor;  Decision Making;  Early Detection of Cancer;  Humans;  Male;  Mass Screening;  Middle Aged;  Patient Navigation;  Patient Participation;  Prevalence;  Prostate-Specific Antigen;  Prostatic Neoplasms;  Risk Factors;  United States
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Authors: Smith AW, Bellizzi KM, Keegan TH, Zebrack B, Chen VW, Neale AV, Hamilton AS, Shnorhavorian M, Lynch CF
Title: Health-related quality of life of adolescent and young adult patients with cancer in the United States: the Adolescent and Young Adult Health Outcomes and Patient Experience study.
Type: Journal Article
Date: 2013 Jun 10
Journal: J Clin Oncol 31(17):2136-45
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Female;  Humans;  Male;  Neoplasms;  Quality of Life;  Treatment Outcome;  United States;  Young Adult
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Authors: Forsythe LP, Kent EE, Weaver KE, Buchanan N, Hawkins NA, Rodriguez JL, Ryerson AB, Rowland JH
Title: Receipt of psychosocial care among cancer survivors in the United States.
Type: Journal Article
Date: 2013 Jun 01
Journal: J Clin Oncol 31(16):1961-9
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): National Health Interview Survey (NHIS) - Cancer Control Supplement (CCS)
Keywords: Adult;  African Americans;  Aged;  Counseling;  European Continental Ancestry Group;  Female;  Health Services Needs and Demand;  Hispanic Americans;  Humans;  Logistic Models;  Male;  Middle Aged;  Multivariate Analysis;  Neoplasms;  Patient Satisfaction;  Stress, Psychological;  Survivors;  United States
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Authors: Rowland JH, Kent EE, Forsythe LP, Loge JH, Hjorth L, Glaser A, Mattioli V, Fosså SD
Title: Cancer survivorship research in Europe and the United States: where have we been, where are we going, and what can we learn from each other?
Type: Journal Article
Date: 2013 Jun 01
Journal: Cancer 119 Suppl 11():2094-108
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Biomedical Research;  Delivery of Health Care;  Europe;  European Union;  Humans;  Neoplasms;  Survival Rate;  Survivors;  United States
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Authors: George SM, Smith AW, Alfano CM, Bowles HR, Irwin ML, McTiernan A, Bernstein L, Baumgartner KB, Ballard-Barbash R
Title: The association between television watching time and all-cause mortality after breast cancer.
Type: Journal Article
Date: 2013 Jun
Journal: J Cancer Surviv 7(2):247-52
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Antineoplastic Agents, Hormonal;  Breast Neoplasms;  Cause of Death;  Comorbidity;  Exercise;  Female;  Humans;  Middle Aged;  Mortality;  Motor Activity;  Proportional Hazards Models;  Prospective Studies;  Risk Factors;  SEER Program;  Sedentary Lifestyle;  Socioeconomic Factors;  Surveys and Questionnaires;  Survivors;  Tamoxifen;  Television;  Time Factors
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Authors: Kent EE, Smith AW, Keegan TH, Lynch CF, Wu XC, Hamilton AS, Kato I, Schwartz SM, Harlan LC
Title: Talking About Cancer and Meeting Peer Survivors: Social Information Needs of Adolescents and Young Adults Diagnosed with Cancer.
Type: Journal Article
Date: 2013 Jun
Journal: J Adolesc Young Adult Oncol 2(2):44-52
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: none
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Authors: Mason C, Alfano CM, Smith AW, Wang CY, Neuhouser ML, Duggan C, Bernstein L, Baumgartner KB, Baumgartner RN, Ballard-Barbash R, McTiernan A
Title: Long-term physical activity trends in breast cancer survivors.
Type: Journal Article
Date: 2013 Jun
Journal: Cancer Epidemiol Biomarkers Prev 22(6):1153-61
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Breast Neoplasms;  Ethnic Groups;  Exercise;  Female;  Follow-Up Studies;  Health Behavior;  Humans;  Middle Aged;  Neoplasm Staging;  Prognosis;  Prospective Studies;  Survival Rate;  Survivors;  Time Factors
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Authors: Reilly CM, Bruner DW, Mitchell SA, Minasian LM, Basch E, Dueck AC, Cella D, Reeve BB
Title: A literature synthesis of symptom prevalence and severity in persons receiving active cancer treatment.
Type: Journal Article
Date: 2013 Jun
Journal: Support Care Cancer 21(6):1525-50
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adolescent;  Adult;  Aged;  Aged, 80 and over;  Antineoplastic Agents;  Clinical Trials as Topic;  Female;  Health Status;  Humans;  Male;  Middle Aged;  Neoplasms;  Prevalence;  Radiation Injuries;  Severity of Illness Index;  Young Adult
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Authors: Weaver KE, Foraker RE, Alfano CM, Rowland JH, Arora NK, Bellizzi KM, Hamilton AS, Oakley-Girvan I, Keel G, Aziz NM
Title: Cardiovascular risk factors among long-term survivors of breast, prostate, colorectal, and gynecologic cancers: a gap in survivorship care?
Type: Journal Article
Date: 2013 Jun
Journal: J Cancer Surviv 7(2):253-61
Topic(s): none
Tumor Site(s): Breast;  Cervical;  Colorectal;  Corpus Uteri;  Prostate
Data Source/Project/Initiative(s): none
Keywords: Aftercare;  Breast Neoplasms;  California;  Cardiovascular Diseases;  Colorectal Neoplasms;  Comorbidity;  Cross-Sectional Studies;  Diabetes Mellitus;  Disease Susceptibility;  Female;  Genital Neoplasms, Female;  Health Services Needs and Demand;  Humans;  Hypertension;  Male;  Neoplasms;  Obesity;  Prostatic Neoplasms;  Risk Factors;  Sedentary Lifestyle;  Smoking;  Survivors
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Authors: Hamilton AS, Miller MF, Arora NK, Bellizzi KM, Rowland JH
Title: Predictors of use of complementary and alternative medicine by non-hodgkin lymphoma survivors and relationship to quality of life.
Type: Journal Article
Date: 2013 May
Journal: Integr Cancer Ther 12(3):225-35
Topic(s): none
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Experience of Care & Health Outcomes of Survivors of Non-Hodgkin's Lymphoma (ECHOS-NHL) Study
Keywords: Aged;  Complementary Therapies;  Cross-Sectional Studies;  Data Collection;  Female;  Humans;  Los Angeles;  Lymphoma, Non-Hodgkin;  Male;  Mental Health;  Middle Aged;  Quality of Life;  Survivors
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Authors: de Moor JS, Mariotto AB, Parry C, Alfano CM, Padgett L, Kent EE, Forsythe L, Scoppa S, Hachey M, Rowland JH
Title: Cancer survivors in the United States: prevalence across the survivorship trajectory and implications for care.
Type: Journal Article
Date: 2013 Apr
Journal: Cancer Epidemiol Biomarkers Prev 22(4):561-70
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Surveillance, Epidemiology, & End Results (SEER) Program
Keywords: Adolescent;  Adult;  Aged;  Aged, 80 and over;  Child;  Child, Preschool;  Female;  Humans;  Incidence;  Infant;  Infant, Newborn;  Male;  Middle Aged;  Neoplasms;  Patient-Centered Care;  Prevalence;  Registries;  Survival Rate;  Survivors;  United States;  Young Adult
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Authors: Duggan C, Wang CY, Neuhouser ML, Xiao L, Smith AW, Reding KW, Baumgartner RN, Baumgartner KB, Bernstein L, Ballard-Barbash R, McTiernan A
Title: Associations of insulin-like growth factor and insulin-like growth factor binding protein-3 with mortality in women with breast cancer.
Type: Journal Article
Date: 2013 Mar 01
Journal: Int J Cancer 132(5):1191-200
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;  Aged;  Aged, 80 and over;  Body Mass Index;  Breast Neoplasms;  California;  Cohort Studies;  Female;  Humans;  Insulin-Like Growth Factor Binding Protein 3;  Insulin-Like Growth Factor I;  Middle Aged;  New Mexico;  Proportional Hazards Models;  Prospective Studies;  Risk Factors;  SEER Program;  Washington
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Authors: Fouad MN, Lee JY, Catalano PJ, Vogt TM, Zafar SY, West DW, Simon C, Klabunde CN, Kahn KL, Weeks JC, Kiefe CI
Title: Enrollment of patients with lung and colorectal cancers onto clinical trials.
Type: Journal Article
Date: 2013 Mar
Journal: J Oncol Pract 9(2):e40-7
Topic(s): none
Tumor Site(s): Colorectal;  Lung
Data Source/Project/Initiative(s): Cancer Care Outcomes Research & Surveillance Consortium (CanCORS)Cancer Research Network (CRN)
Keywords: Adult;  Aged;  Aged, 80 and over;  Cancer Care Facilities;  Clinical Trials as Topic;  Colorectal Neoplasms;  Data Collection;  Demography;  Female;  Humans;  Lung Neoplasms;  Male;  Medical Oncology;  Middle Aged;  Practice Patterns, Physicians';  Sex Factors;  Specialization;  Young Adult
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Authors: Smith AW, Cronin KA, Bowles H, Willis G, Jacobs DR Jr, Ballard-Barbash R, Troiano RP
Title: Reproducibility of physical activity recall over fifteen years: longitudinal evidence from the CARDIA study.
Type: Journal Article
Date: 2013 Feb 28
Journal: BMC Public Health 13():180
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adolescent;  Adult;  Coronary Artery Disease;  Demography;  Female;  Humans;  Longitudinal Studies;  Male;  Mental Recall;  Middle Aged;  Motor Activity;  Reproducibility of Results;  Risk Factors;  Time Factors;  Young Adult
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Authors: Jensen RE, Arora NK, Bellizzi KM, Rowland JH, Hamilton AS, Aziz NM, Potosky AL
Title: Health-related quality of life among survivors of aggressive non-Hodgkin lymphoma.
Type: Journal Article
Date: 2013 Feb 01
Journal: Cancer 119(3):672-80
Topic(s): none
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Experience of Care & Health Outcomes of Survivors of Non-Hodgkin's Lymphoma (ECHOS-NHL) Study
Keywords: Adult;  Aged;  Aged, 80 and over;  Cognition;  Female;  Health Status;  Humans;  Lymphoma, Non-Hodgkin;  Male;  Middle Aged;  Neoplasm Invasiveness;  Quality of Life;  Self Efficacy;  Survivors
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Authors: Buchanan ND, King JB, Rodriguez JL, White A, Trivers KF, Forsythe LP, Kent EE, Rowland JH, Sabatino SA
Title: Changes among US Cancer Survivors: Comparing Demographic, Diagnostic, and Health Care Findings from the 1992 and 2010 National Health Interview Surveys.
Type: Journal Article
Date: 2013
Journal: ISRN Oncol 2013():238017
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): National Health Interview Survey (NHIS) - Cancer Control Supplement (CCS)
Keywords: none
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Authors: Butler EN, Chawla N, Lund J, Harlan LC, Warren JL, Yabroff KR
Title: Patterns of colorectal cancer care in the United States and Canada: a systematic review.
Type: Journal Article
Date: 2013
Journal: J Natl Cancer Inst Monogr 2013(46):13-35
Topic(s): none
Tumor Site(s): Colorectal
Data Source/Project/Initiative(s): Patterns of Care Studies/Quality of Care Studies
Keywords: Canada;  Colorectal Neoplasms;  Humans;  Quality of Health Care;  Survival Analysis;  Terminal Care;  United States
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Authors: Chawla N, Butler EN, Lund J, Warren JL, Harlan LC, Yabroff KR
Title: Patterns of colorectal cancer care in Europe, Australia, and New Zealand.
Type: Journal Article
Date: 2013
Journal: J Natl Cancer Inst Monogr 2013(46):36-61
Topic(s): none
Tumor Site(s): Colorectal
Data Source/Project/Initiative(s): Patterns of Care Studies/Quality of Care Studies
Keywords: Adult;  Aged;  Australia;  Colorectal Neoplasms;  Delivery of Health Care;  Europe;  Female;  Humans;  Male;  Middle Aged;  New Zealand;  Quality of Health Care;  Registries;  Socioeconomic Factors;  Terminal Care;  Young Adult
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Authors: Kent EE, Alfano CM, Smith AW, Bernstein L, McTiernan A, Baumgartner KB, Ballard-Barbash R
Title: The roles of support seeking and race/ethnicity in posttraumatic growth among breast cancer survivors.
Type: Journal Article
Date: 2013
Journal: J Psychosoc Oncol 31(4):393-412
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adaptation, Psychological;  Adult;  African Americans;  Breast Neoplasms;  European Continental Ancestry Group;  Female;  Hispanic Americans;  Humans;  Middle Aged;  Physician-Patient Relations;  Self-Help Groups;  Social Support;  Survivors
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Authors: Lipscomb J, Yabroff KR, Hornbrook MC, Gigli A, Francisci S, Krahn M, Gatta G, Trama A, Ritzwoller DP, Durand-Zaleski I, Salloum R, Chawla N, Angiolini C, Crocetti E, Giusti F, Guzzinati S, Mezzetti M, Miccinesi G, Mariotto A
Title: Comparing cancer care, outcomes, and costs across health systems: charting the course.
Type: Journal Article
Date: 2013
Journal: J Natl Cancer Inst Monogr 2013(46):124-30
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Delivery of Health Care;  Europe;  Health Care Costs;  Humans;  Medical Records Systems, Computerized;  Neoplasms;  Survival Analysis;  United States
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Authors: Smith AW, Parsons HM, Kent EE, Bellizzi K, Zebrack BJ, Keel G, Lynch CF, Rubenstein MB, Keegan TH, AYA HOPE Study Collaborative Group
Title: Unmet Support Service Needs and Health-Related Quality of Life among Adolescents and Young Adults with Cancer: The AYA HOPE Study.
Type: Journal Article
Date: 2013
Journal: Front Oncol 3():75
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: none
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Authors: Reeve BB, Stover AM, Jensen RE, Chen RC, Taylor KL, Clauser SB, Collins SP, Potosky AL
Title: Impact of diagnosis and treatment of clinically localized prostate cancer on health-related quality of life for older Americans: a population-based study.
Type: Journal Article
Date: 2012 Nov 15
Journal: Cancer 118(22):5679-87
Topic(s): none
Tumor Site(s): Prostate
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Activities of Daily Living;  Aged;  Aged, 80 and over;  Depressive Disorder, Major;  Health Status;  Humans;  Male;  Prostatectomy;  Prostatic Neoplasms;  Quality of Life;  SEER Program
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Authors: Kent EE, Arora NK, Rowland JH, Bellizzi KM, Forsythe LP, Hamilton AS, Oakley-Girvan I, Beckjord EB, Aziz NM
Title: Health information needs and health-related quality of life in a diverse population of long-term cancer survivors.
Type: Journal Article
Date: 2012 Nov
Journal: Patient Educ Couns 89(2):345-52
Topic(s): none
Tumor Site(s): Breast;  Colorectal;  Corpus Uteri;  Ovary;  Prostate
Data Source/Project/Initiative(s): Follow-up Care Use among Survivors (FOCUS)
Keywords: Adult;  Aged;  Aged, 80 and over;  California;  Consumer Health Information;  Ethnic Groups;  Female;  Follow-Up Studies;  Health Services Accessibility;  Health Services Needs and Demand;  Health Status;  Healthcare Disparities;  Humans;  Logistic Models;  Male;  Middle Aged;  Needs Assessment;  Neoplasms;  Patient Education as Topic;  Population Surveillance;  Quality of Health Care;  Quality of Life;  SEER Program;  Socioeconomic Factors;  Surveys and Questionnaires;  Survivors;  Time Factors
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Authors: Reeve BB, Stover AM, Alfano CM, Smith AW, Ballard-Barbash R, Bernstein L, McTiernan A, Baumgartner KB, Piper BF
Title: The Piper Fatigue Scale-12 (PFS-12): psychometric findings and item reduction in a cohort of breast cancer survivors.
Type: Journal Article
Date: 2012 Nov
Journal: Breast Cancer Res Treat 136(1):9-20
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Breast Neoplasms;  Cognition;  Fatigue;  Female;  Humans;  Psychometrics;  Surveys and Questionnaires;  Survivors
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Authors: Bellizzi KM, Smith A, Schmidt S, Keegan TH, Zebrack B, Lynch CF, Deapen D, Shnorhavorian M, Tompkins BJ, Simon M, Adolescent and Young Adult Health Outcomes and Patient Experience (AYA HOPE) Study Collaborative Group (Agha G, Cruz M, Hutchinson F, Schwartz SM, Shellenberger M, Janes T, Kato I, Bankowski A, Stock M, Wu XC, Chen V, Keegan T, Allen L, Loya Z, Hussain K, Lynch CF, West MM, Odle LA, Hamilton A, Zelaya J, Lo M, Harlan LC, Smith AW, Stringer SM, Keel G, Potosky A, Bellizzi K, Albritton K, Link M, Zebrack B)
Title: Positive and negative psychosocial impact of being diagnosed with cancer as an adolescent or young adult.
Type: Journal Article
Date: 2012 Oct 15
Journal: Cancer 118(20):5155-62
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) StudySurveillance, Epidemiology, & End Results (SEER) Program
Keywords: Adolescent;  Adult;  Body Image;  Female;  Goals;  Humans;  Interpersonal Relations;  Male;  Neoplasms;  Population Surveillance;  Psychology, Adolescent;  Quality of Life;  Social Support;  Socioeconomic Factors;  Survivors;  Young Adult
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Authors: Keegan TH, Lichtensztajn DY, Kato I, Kent EE, Wu XC, West MM, Hamilton AS, Zebrack B, Bellizzi KM, Smith AW, AYA HOPE Study Collaborative Group (Agha G, Cruz M, Schwartz SM, Shellenberger M, Janes T, Kato I, Bankowski A, Stock M, Wu XC, Chen V, Tompkins B, Keegan T, Allen L, Loya Z, Hussain K, Lynch CF, West MM, Odle LA, Hamilton A, Zelaya J, Lo M, Trinidad U, Harlan LC, Smith AW, Stringer SM, Keel G, Potosky A, Bellizzi K, Albritton K, Link M, Zebrack B)
Title: Unmet adolescent and young adult cancer survivors information and service needs: a population-based cancer registry study.
Type: Journal Article
Date: 2012 Sep
Journal: J Cancer Surviv 6(3):239-50
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Female;  Health Care Surveys;  Health Services Accessibility;  Health Services Needs and Demand;  Humans;  Information Services;  Male;  Needs Assessment;  Neoplasms;  Quality of Life;  Registries;  Surveys and Questionnaires;  Survivors;  Young Adult
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Authors: Parsons HM, Harlan LC, Lynch CF, Hamilton AS, Wu XC, Kato I, Schwartz SM, Smith AW, Keel G, Keegan TH
Title: Impact of cancer on work and education among adolescent and young adult cancer survivors.
Type: Journal Article
Date: 2012 Jul 01
Journal: J Clin Oncol 30(19):2393-400
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Educational Status;  Employment;  Humans;  Multivariate Analysis;  Neoplasms;  Survivors;  Young Adult
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Authors: Pronk NP, Krebs-Smith SM, Galuska DA, Liu B, Kushner RF, Troiano RP, Clauser SB, Ballard-Barbash R, Smith AW
Title: Knowledge of energy balance guidelines and associated clinical care practices: the U.S. National Survey of Energy Balance Related Care among Primary Care Physicians.
Type: Journal Article
Date: 2012 Jul
Journal: Prev Med 55(1):28-33
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): National Survey of Energy Balance-related Care among Primary Care Physicians
Keywords: Adolescent;  Adult;  Aged;  Body Mass Index;  Child;  Diet;  Energy Intake;  Exercise;  Female;  Health Care Surveys;  Health Knowledge, Attitudes, Practice;  Humans;  Male;  Middle Aged;  Outcome and Process Assessment (Health Care);  Physicians, Family;  Practice Guidelines as Topic;  Practice Patterns, Physicians';  Primary Health Care;  Sex Distribution;  Socioeconomic Factors;  Surveys and Questionnaires;  United States
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Authors: Alexander J, Prabhu Das I, Johnson TP
Title: Time issues in multilevel interventions for cancer treatment and prevention.
Type: Journal Article
Date: 2012 May
Journal: J Natl Cancer Inst Monogr 2012(44):42-8
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Multilevel Intervention Research
Keywords: Combined Modality Therapy;  Continuity of Patient Care;  Delivery of Health Care, Integrated;  Health Services Research;  Humans;  Neoplasms;  Organizational Innovation;  Patient Care Team;  Patient-Centered Care;  Quality of Health Care;  Research Design;  Time;  Time Factors;  United States
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Authors: Charns MP, Foster MK, Alligood EC, Benzer JK, Burgess JF Jr, Li D, McIntosh NM, Burness A, Partin MR, Clauser SB
Title: Multilevel interventions: measurement and measures.
Type: Journal Article
Date: 2012 May
Journal: J Natl Cancer Inst Monogr 2012(44):67-77
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Multilevel Intervention Research
Keywords: Cancer Care Facilities;  Confounding Factors (Epidemiology);  Continuity of Patient Care;  Delivery of Health Care, Integrated;  Health Services Research;  Humans;  Interdisciplinary Communication;  Neoplasms;  Outcome Assessment (Health Care);  Outcome and Process Assessment (Health Care);  Patient Care Team;  Quality of Health Care;  Research Design;  United States
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Authors: Clauser SB, Taplin SH, Foster MK, Fagan P, Kaluzny AD
Title: Multilevel intervention research: lessons learned and pathways forward.
Type: Journal Article
Date: 2012 May
Journal: J Natl Cancer Inst Monogr 2012(44):127-33
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Multilevel Intervention Research
Keywords: Continuity of Patient Care;  Delivery of Health Care;  Delivery of Health Care, Integrated;  Health Care Reform;  Health Policy;  Health Services Research;  Healthcare Disparities;  Humans;  Interdisciplinary Communication;  Neoplasms;  Organizational Culture;  Patient Care Team;  Quality of Health Care;  Research Design;  United States
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Authors: Edwards HM, Taplin SH, Chollette V, Clauser SB, Prabhu Das I, Kaluzny AD
Title: Summary of the multilevel interventions in health care conference.
Type: Journal Article
Date: 2012 May
Journal: J Natl Cancer Inst Monogr 2012(44):123-6
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Multilevel Intervention Research
Keywords: Congresses as Topic;  Continuity of Patient Care;  Delivery of Health Care;  Delivery of Health Care, Integrated;  Health Policy;  Health Services Research;  Healthcare Disparities;  Humans;  Interdisciplinary Communication;  Neoplasms;  Patient Care Team;  Publishing;  Quality of Health Care;  Research Design;  United States
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Authors: Gorin SS, Badr H, Krebs P, Prabhu Das I
Title: Multilevel interventions and racial/ethnic health disparities.
Type: Journal Article
Date: 2012 May
Journal: J Natl Cancer Inst Monogr 2012(44):100-11
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Multilevel Intervention Research
Keywords: Clinical Trials as Topic;  Confounding Factors (Epidemiology);  Continental Population Groups;  Continuity of Patient Care;  Delivery of Health Care, Integrated;  Ethnic Groups;  Health Education;  Health Services Research;  Healthcare Disparities;  Humans;  Interdisciplinary Communication;  Neoplasms;  Patient Care Team;  Quality of Health Care;  Research Design;  United States
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Authors: Khoury MJ, Coates RJ, Fennell ML, Glasgow RE, Scheuner MT, Schully SD, Williams MS, Clauser SB
Title: Multilevel research and the challenges of implementing genomic medicine.
Type: Journal Article
Date: 2012 May
Journal: J Natl Cancer Inst Monogr 2012(44):112-20
Topic(s): none
Tumor Site(s): Colorectal
Data Source/Project/Initiative(s): Multilevel Intervention Research
Keywords: Colorectal Neoplasms, Hereditary Nonpolyposis;  Continuity of Patient Care;  Delivery of Health Care, Integrated;  Evidence-Based Medicine;  Genetic Testing;  Genomics;  Health Policy;  Health Services Research;  Humans;  Interdisciplinary Communication;  Medicaid;  Medicare;  Mutation;  Neoplasms;  Patient Care Team;  Physicians;  Practice Patterns, Physicians';  Precision Medicine;  Quality of Health Care;  Research Design;  Translational Medical Research;  United States
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Authors: Taplin SH, Anhang Price R, Edwards HM, Foster MK, Breslau ES, Chollette V, Prabhu Das I, Clauser SB, Fennell ML, Zapka J
Title: Introduction: Understanding and influencing multilevel factors across the cancer care continuum.
Type: Journal Article
Date: 2012 May
Journal: J Natl Cancer Inst Monogr 2012(44):2-10
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Multilevel Intervention Research
Keywords: Combined Modality Therapy;  Continuity of Patient Care;  Decision Making;  Disease Management;  Early Detection of Cancer;  Evidence-Based Medicine;  Health Services Accessibility;  Humans;  Interdisciplinary Communication;  Neoplasms;  Palliative Care;  Patient Care Team;  Patient Participation;  Patient Protection and Affordable Care Act;  Patient Safety;  Patient-Centered Care;  Practice Patterns, Physicians';  Precision Medicine;  Quality of Health Care;  Social Environment;  Socioeconomic Factors;  Terminal Care;  Treatment Outcome;  United States
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Authors: Weiner BJ, Lewis MA, Clauser SB, Stitzenberg KB
Title: In search of synergy: strategies for combining interventions at multiple levels.
Type: Journal Article
Date: 2012 May
Journal: J Natl Cancer Inst Monogr 2012(44):34-41
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Multilevel Intervention Research
Keywords: Combined Modality Therapy;  Continuity of Patient Care;  Delivery of Health Care, Integrated;  Effect Modifier, Epidemiologic;  Humans;  Models, Organizational;  Negotiating;  Neoplasms;  Patient Care Team;  Quality of Health Care;  Social Environment;  United States
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Authors: Alfano CM, Imayama I, Neuhouser ML, Kiecolt-Glaser JK, Smith AW, Meeske K, McTiernan A, Bernstein L, Baumgartner KB, Ulrich CM, Ballard-Barbash R
Title: Fatigue, inflammation, and ω-3 and ω-6 fatty acid intake among breast cancer survivors.
Type: Journal Article
Date: 2012 Apr 20
Journal: J Clin Oncol 30(12):1280-7
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;  Aged;  Analysis of Variance;  Breast Neoplasms;  C-Reactive Protein;  Carcinoma, Intraductal, Noninfiltrating;  Cohort Studies;  Dietary Supplements;  Fatigue;  Fatty Acids, Omega-3;  Fatty Acids, Omega-6;  Female;  Follow-Up Studies;  Humans;  Inflammation;  Inflammation Mediators;  Logistic Models;  Middle Aged;  Odds Ratio;  Prospective Studies;  Risk Assessment;  Serum Amyloid A Protein;  Survivors;  Treatment Outcome
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Authors: McDermott CL, Blough DK, Fedorenko CR, Arora NK, Zeliadt SB, Fairweather ME, Oakley-Girvan I, Van Den Eeden SK, Ramsey SD
Title: Complementary and alternative medicine use among newly diagnosed prostate cancer patients.
Type: Journal Article
Date: 2012 Jan
Journal: Support Care Cancer 20(1):65-73
Topic(s): none
Tumor Site(s): Prostate
Data Source/Project/Initiative(s): none
Keywords: Aged;  Complementary Therapies;  Decision Making;  Follow-Up Studies;  Health Care Surveys;  Humans;  Male;  Middle Aged;  Neoplasm Staging;  Patient Satisfaction;  Prospective Studies;  Prostatic Neoplasms
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Authors: Hesse BW, Arora NK, Khoury MJ
Title: Implications of Internet availability of genomic information for public health practice.
Type: Journal Article
Date: 2012
Journal: Public Health Genomics 15(3-4):201-8
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Access to Information;  Communication;  Genetic Testing;  Genome, Human;  Genomics;  Health Policy;  Humans;  Internet;  Medical Informatics;  Public Health;  Public Health Practice;  Risk;  Telemedicine;  Time Factors
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Authors: Kent EE, Parry C, Montoya MJ, Sender LS, Morris RA, Anton-Culver H
Title: "You're too young for this": adolescent and young adults' perspectives on cancer survivorship.
Type: Journal Article
Date: 2012
Journal: J Psychosoc Oncol 30(2):260-79
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Age Factors;  Cost of Illness;  Delayed Diagnosis;  Female;  Focus Groups;  Humans;  Infertility;  Interpersonal Relations;  Interviews as Topic;  Male;  Medication Adherence;  Neoplasms;  Psychology;  Survivors;  Young Adult
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Authors: Yabroff KR, Zapka J, Klabunde CN, Yuan G, Buckman DW, Haggstrom D, Clauser SB, Miller J, Taplin SH
Title: Systems strategies to support cancer screening in U.S. primary care practice.
Type: Journal Article
Date: 2011 Dec
Journal: Cancer Epidemiol Biomarkers Prev 20(12):2471-9
Topic(s): none
Tumor Site(s): Breast;  Cervical;  Colorectal;  Lung
Data Source/Project/Initiative(s): National Survey of PCPs' Recommendations & Practices for Breast, Cervical, Colorectal, & Lung Cancer Screening
Keywords: Adult;  Early Detection of Cancer;  Female;  Guideline Adherence;  Health Care Surveys;  Humans;  Male;  Middle Aged;  Physicians, Primary Care;  Practice Patterns, Physicians';  Primary Health Care;  United States
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Authors: Ma H, Sullivan-Halley J, Smith AW, Neuhouser ML, Alfano CM, Meeske K, George SM, McTiernan A, McKean-Cowdin R, Baumgartner KB, Ballard-Barbash R, Bernstein L
Title: Estrogenic botanical supplements, health-related quality of life, fatigue, and hormone-related symptoms in breast cancer survivors: a HEAL study report.
Type: Journal Article
Date: 2011 Nov 08
Journal: BMC Complement Altern Med 11():109
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;  Breast Neoplasms;  Dietary Supplements;  Fatigue;  Female;  Hot Flashes;  Humans;  Middle Aged;  Phytoestrogens;  Phytotherapy;  Plant Preparations;  Prospective Studies;  Quality of Life;  Survivors;  Sweating
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Authors: Alfano CM, Lichstein KL, Vander Wal GS, Smith AW, Reeve BB, McTiernan A, Bernstein L, Baumgartner KB, Ballard-Barbash R
Title: Sleep duration change across breast cancer survivorship: associations with symptoms and health-related quality of life.
Type: Journal Article
Date: 2011 Nov
Journal: Breast Cancer Res Treat 130(1):243-54
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;  Aged;  Breast Neoplasms;  Female;  Humans;  Middle Aged;  Prevalence;  Quality of Life;  Retrospective Studies;  Sleep;  Survivors
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Authors: Han PK, Klein WM, Arora NK
Title: Varieties of uncertainty in health care: a conceptual taxonomy.
Type: Journal Article
Date: 2011 Nov-Dec
Journal: Med Decis Making 31(6):828-38
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Decision Making;  Delivery of Health Care;  Evidence-Based Medicine;  Uncertainty
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Authors: Mitchell SA, Jacobsohn D, Thormann Powers KE, Carpenter PA, Flowers ME, Cowen EW, Schubert M, Turner ML, Lee SJ, Martin P, Bishop MR, Baird K, Bolaños-Meade J, Boyd K, Fall-Dickson JM, Gerber LH, Guadagnini JP, Imanguli M, Krumlauf MC, Lawley L, Li L, Reeve BB, Clayton JA, Vogelsang GB, Pavletic SZ
Title: A multicenter pilot evaluation of the National Institutes of Health chronic graft-versus-host disease (cGVHD) therapeutic response measures: feasibility, interrater reliability, and minimum detectable change.
Type: Journal Article
Date: 2011 Nov
Journal: Biol Blood Marrow Transplant 17(11):1619-29
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma
Data Source/Project/Initiative(s): none
Keywords: Adolescent;  Adult;  Aged;  Child;  Child, Preschool;  Chronic Disease;  Female;  Graft vs Host Disease;  Hematology;  Humans;  Leukemia;  Lymphoma;  Male;  Middle Aged;  Multiple Myeloma;  National Institutes of Health (U.S.);  Pilot Projects;  Prospective Studies;  Stem Cell Transplantation;  United States;  Young Adult
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Authors: Khoury MJ, Clauser SB, Freedman AN, Gillanders EM, Glasgow RE, Klein WM, Schully SD
Title: Population sciences, translational research, and the opportunities and challenges for genomics to reduce the burden of cancer in the 21st century.
Type: Journal Article
Date: 2011 Oct
Journal: Cancer Epidemiol Biomarkers Prev 20(10):2105-14
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Delivery of Health Care;  Evidence-Based Medicine;  Genetics, Population;  Genomics;  History, 21st Century;  Humans;  Preventive Medicine;  Translational Medical Research
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Authors: Beckjord EB, Arora NK, Bellizzi K, Hamilton AS, Rowland JH
Title: Sexual well-being among survivors of non-Hodgkin lymphoma.
Type: Journal Article
Date: 2011 Sep
Journal: Oncol Nurs Forum 38(5):E351-9
Topic(s): none
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Experience of Care & Health Outcomes of Survivors of Non-Hodgkin's Lymphoma (ECHOS-NHL) StudySurveillance, Epidemiology, & End Results (SEER) Program
Keywords: Adult;  Aged;  Cross-Sectional Studies;  Female;  Humans;  Lymphoma, Non-Hodgkin;  Male;  Middle Aged;  Personal Satisfaction;  Quality of Life;  Sexual Behavior;  Sexual Dysfunctions, Psychological;  Survivors
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Authors: Harlan LC, Lynch CF, Keegan TH, Hamilton AS, Wu XC, Kato I, West MM, Cress RD, Schwartz SM, Smith AW, Deapen D, Stringer SM, Potosky AL, AYA HOPE Study Collaborative Group
Title: Recruitment and follow-up of adolescent and young adult cancer survivors: the AYA HOPE Study.
Type: Journal Article
Date: 2011 Sep
Journal: J Cancer Surviv 5(3):305-14
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) StudySurveillance, Epidemiology, & End Results (SEER) Program
Keywords: Adolescent;  Adult;  Algorithms;  Continuity of Patient Care;  Data Collection;  Female;  Follow-Up Studies;  Humans;  Male;  Neoplasms;  Patient Participation;  Patient Selection;  Psychology;  Quality of Life;  SEER Program;  Survivors;  Young Adult
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Authors: Meissner HI, Klabunde CN, Han PK, Benard VB, Breen N
Title: Breast cancer screening beliefs, recommendations and practices: primary care physicians in the United States.
Type: Journal Article
Date: 2011 Jul 15
Journal: Cancer 117(14):3101-11
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): National Survey of PCPs' Recommendations & Practices for Breast, Cervical, Colorectal, & Lung Cancer Screening
Keywords: Adult;  Attitude of Health Personnel;  Breast Neoplasms;  Breast Self-Examination;  Early Detection of Cancer;  Female;  Guideline Adherence;  Health Care Surveys;  Humans;  Mammography;  Middle Aged;  Palpation;  Physicians, Primary Care;  Practice Patterns, Physicians';  United States
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Authors: Basch EM, Reeve BB, Mitchell SA, Clauser SB, Minasian L, Sit L, Chilukuri R, Baumgartner P, Rogak L, Blauel E, Abernethy AP, Bruner D
Title: Electronic toxicity monitoring and patient-reported outcomes.
Type: Journal Article
Date: 2011 Jul-Aug
Journal: Cancer J 17(4):231-4
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: Antineoplastic Agents;  Computer Communication Networks;  Drug Monitoring;  Humans;  Neoplasms;  Research Report;  Software;  Treatment Outcome
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Authors: Huang TT, Borowski LA, Liu B, Galuska DA, Ballard-Barbash R, Yanovski SZ, Olster DH, Atienza AA, Smith AW
Title: Pediatricians' and family physicians' weight-related care of children in the U.S.
Type: Journal Article
Date: 2011 Jul
Journal: Am J Prev Med 41(1):24-32
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): National Survey of Energy Balance-related Care among Primary Care Physicians
Keywords: Adolescent;  Body Weight;  Child;  Child, Preschool;  Cross-Sectional Studies;  Diet;  Family Practice;  Female;  Health Care Surveys;  Humans;  Male;  Middle Aged;  Motor Activity;  Obesity;  Pediatrics;  Physicians, Family;  Practice Patterns, Physicians';  Primary Health Care;  United States
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Authors: Smith AW, Borowski LA, Liu B, Galuska DA, Signore C, Klabunde C, Huang TT, Krebs-Smith SM, Frank E, Pronk N, Ballard-Barbash R
Title: U.S. primary care physicians' diet-, physical activity-, and weight-related care of adult patients.
Type: Journal Article
Date: 2011 Jul
Journal: Am J Prev Med 41(1):33-42
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): National Survey of Energy Balance-related Care among Primary Care Physicians
Keywords: Adult;  Body Weight;  Diet;  Female;  Health Care Surveys;  Humans;  Male;  Middle Aged;  Motor Activity;  Obesity;  Overweight;  Practice Patterns, Physicians';  Primary Health Care;  United States
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Authors: Clauser SB, Wagner EH, Aiello Bowles EJ, Tuzzio L, Greene SM
Title: Improving modern cancer care through information technology.
Type: Journal Article
Date: 2011 May
Journal: Am J Prev Med 40(5 Suppl 2):S198-207
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Cancer Research Network (CRN)
Keywords: Communication;  Cooperative Behavior;  Humans;  Medical Informatics;  Neoplasms;  Patient Participation;  Patient-Centered Care;  Quality of Health Care
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Authors: Shaikh AR, Prabhu Das I, Vinson CA, Spring B
Title: Cyberinfrastructure for consumer health.
Type: Journal Article
Date: 2011 May
Journal: Am J Prev Med 40(5 Suppl 2):S91-6
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Computer Communication Networks;  Consumer Health Information;  Delivery of Health Care;  Humans;  Internet;  Medical Informatics
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Authors: Shariff-Marco S, Breen N, Landrine H, Reeve BB, Krieger N, Gee GC, Williams DR, Mays VM, Ponce NA, Alegri'a M, Liu B, Willis G, Johnson TP
Title: Measuring everyday racial/ethnic discrimination in health surveys
Type: Journal Article
Date: 2011 Apr 15
Journal: Du Bois Rev 8(1):159-77
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Discrimination;  Racism;  Prejudice;  Race/Ethnicity;  Differential Item Functioning;  Surveys;  Split-ballot;  Psychometric
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Authors: Arora NK, Reeve BB, Hays RD, Clauser SB, Oakley-Girvan I
Title: Assessment of quality of cancer-related follow-up care from the cancer survivor's perspective.
Type: Journal Article
Date: 2011 Apr 01
Journal: J Clin Oncol 29(10):1280-9
Topic(s): none
Tumor Site(s): Colorectal;  Leukemia;  Urinary Bladder
Data Source/Project/Initiative(s): Assessment of Patients' Experience of Cancer Care (APECC) Study
Keywords: Aged;  Attitude of Health Personnel;  California;  Colorectal Neoplasms;  Communication;  Cross-Sectional Studies;  Female;  Health Knowledge, Attitudes, Practice;  Health Promotion;  Humans;  Leukemia;  Linear Models;  Male;  Middle Aged;  Patient Satisfaction;  Patient-Centered Care;  Perception;  Physician-Patient Relations;  Quality of Health Care;  Registries;  Surveys and Questionnaires;  Survivors;  Time Factors;  Urinary Bladder Neoplasms
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Authors: McCormack LA, Treiman K, Rupert D, Williams-Piehota P, Nadler E, Arora NK, Lawrence W, Street RL Jr
Title: Measuring patient-centered communication in cancer care: a literature review and the development of a systematic approach.
Type: Journal Article
Date: 2011 Apr
Journal: Soc Sci Med 72(7):1085-95
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-centered Care & Communication
Keywords: Communication;  Decision Making;  Emotions;  Health Knowledge, Attitudes, Practice;  Humans;  National Cancer Institute (U.S.);  Neoplasms;  Professional Role;  Professional-Patient Relations;  Qualitative Research;  Self Care;  United States
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Authors: Zapka JM, Klabunde CN, Arora NK, Yuan G, Smith JL, Kobrin SC
Title: Physicians' colorectal cancer screening discussion and recommendation patterns.
Type: Journal Article
Date: 2011 Mar
Journal: Cancer Epidemiol Biomarkers Prev 20(3):509-21
Topic(s): none
Tumor Site(s): Colorectal
Data Source/Project/Initiative(s): National Survey of PCPs' Recommendations & Practices for Breast, Cervical, Colorectal, & Lung Cancer Screening
Keywords: Adult;  Colorectal Neoplasms;  Early Detection of Cancer;  Female;  Health Care Surveys;  Humans;  Male;  Middle Aged;  Physicians, Primary Care;  Practice Patterns, Physicians';  Primary Health Care
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Authors: Han PK, Klabunde CN, Breen N, Yuan G, Grauman A, Davis WW, Taplin SH
Title: Multiple clinical practice guidelines for breast and cervical cancer screening: perceptions of US primary care physicians.
Type: Journal Article
Date: 2011 Feb
Journal: Med Care 49(2):139-48
Topic(s): none
Tumor Site(s): Breast;  Cervical
Data Source/Project/Initiative(s): National Survey of PCPs' Recommendations & Practices for Breast, Cervical, Colorectal, & Lung Cancer Screening
Keywords: Attitude of Health Personnel;  Breast Neoplasms;  Cross-Sectional Studies;  Early Detection of Cancer;  Female;  Guideline Adherence;  Health Services Research;  Humans;  Mass Screening;  Multivariate Analysis;  Patient Selection;  Physicians, Primary Care;  Practice Guidelines as Topic;  Practice Patterns, Physicians';  United States;  Uterine Cervical Neoplasms
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Authors: Duggan C, Irwin ML, Xiao L, Henderson KD, Smith AW, Baumgartner RN, Baumgartner KB, Bernstein L, Ballard-Barbash R, McTiernan A
Title: Associations of insulin resistance and adiponectin with mortality in women with breast cancer.
Type: Journal Article
Date: 2011 Jan 01
Journal: J Clin Oncol 29(1):32-9
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adiponectin;  Adult;  Aged;  Aged, 80 and over;  Blood Glucose;  Body Mass Index;  Body Weight;  Breast Neoplasms;  Cohort Studies;  Female;  Humans;  Hyperinsulinism;  Insulin;  Insulin Resistance;  Middle Aged;  Obesity;  Prospective Studies;  Risk Factors
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Authors: Irwin ML, Duggan C, Wang CY, Smith AW, McTiernan A, Baumgartner RN, Baumgartner KB, Bernstein L, Ballard-Barbash R
Title: Fasting C-peptide levels and death resulting from all causes and breast cancer: the health, eating, activity, and lifestyle study.
Type: Journal Article
Date: 2011 Jan 01
Journal: J Clin Oncol 29(1):47-53
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Breast Neoplasms;  C-Peptide;  Diabetes Mellitus, Type 2;  Fasting;  Female;  Humans;  Insulin;  Insulin Resistance;  Life Style;  Middle Aged;  Motor Activity;  Prognosis;  Prospective Studies;  Risk Factors
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Authors: Bruner DW, Hanisch LJ, Reeve BB, Trotti AM, Schrag D, Sit L, Mendoza TR, Minasian L, O'Mara A, Denicoff AM, Rowland JH, Montello M, Geoghegan C, Abernethy AP, Clauser SB, Castro K, Mitchell SA, Burke L, Trentacosti AM, Basch EM
Title: Stakeholder perspectives on implementing the National Cancer Institute's patient-reported outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Type: Journal Article
Date: 2011
Journal: Transl Behav Med 1(1):110-22
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: Patient-reported outcomes;  Symptoms, adverse events;  Oncology;  Cancer, Clinical trials;  Toxicity, safety;  Tolerability;  Comparative effectiveness research;  Cooperative groups;  National Cancer Institute
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Authors: Wagner EH, Aiello Bowles EJ, Greene SM, Tuzzio L, Wiese CJ, Kirlin B, Clauser SB
Title: The quality of cancer patient experience: perspectives of patients, family members, providers and experts.
Type: Journal Article
Date: 2010 Dec
Journal: Qual Saf Health Care 19(6):484-9
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Cancer Research Network (CRN)
Keywords: Family;  Focus Groups;  Health Personnel;  Humans;  Neoplasms;  Patient Satisfaction;  Quality of Health Care;  United States
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Authors: Mitchell SA, Fisher CA, Hastings CE, Silverman LB, Wallen GR
Title: A thematic analysis of theoretical models for translational science in nursing: mapping the field.
Type: Journal Article
Date: 2010 Nov-Dec
Journal: Nurs Outlook 58(6):287-300
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Diffusion of Innovation;  Evidence-Based Nursing;  Humans;  Models, Theoretical;  Nursing Research;  Smoking Cessation;  Translational Medical Research
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Authors: Keating NL, Beth Landrum M, Arora NK, Malin JL, Ganz PA, van Ryn M, Weeks JC
Title: Cancer patients' roles in treatment decisions: do characteristics of the decision influence roles?
Type: Journal Article
Date: 2010 Oct 01
Journal: J Clin Oncol 28(28):4364-70
Topic(s): none
Tumor Site(s): Colorectal;  Lung
Data Source/Project/Initiative(s): Cancer Care Outcomes Research & Surveillance Consortium (CanCORS)Cancer Research Network (CRN)
Keywords: Adult;  Aged;  Aged, 80 and over;  Cohort Studies;  Colorectal Neoplasms;  Decision Making;  Female;  Humans;  Logistic Models;  Lung Neoplasms;  Male;  Middle Aged;  Patient Participation;  Patient Satisfaction;  Role;  United States
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Authors: Flynn KE, Shelby RA, Mitchell SA, Fawzy MR, Hardy NC, Husain AM, Keefe FJ, Krystal AD, Porter LS, Reeve BB, Weinfurt KP
Title: Sleep-wake functioning along the cancer continuum: focus group results from the Patient-Reported Outcomes Measurement Information System (PROMIS(®)).
Type: Journal Article
Date: 2010 Oct
Journal: Psychooncology 19(10):1086-93
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes Measurement Information System (PROMIS)
Keywords: Adult;  Aged;  Aged, 80 and over;  Female;  Focus Groups;  Humans;  Information Systems;  Male;  Middle Aged;  Neoplasms;  Outcome Assessment (Health Care);  Qualitative Research;  Quality of Life;  Self Disclosure;  Sleep Disorders, Circadian Rhythm;  Surveys and Questionnaires
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Authors: Mitchell SA
Title: Framing the challenges of cancer rehabilitation.
Type: Journal Article
Date: 2010 Oct
Journal: Oncology (Williston Park) 24(10 Suppl):33-4
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Health Services Needs and Demand;  Humans;  Neoplasms;  United States
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Authors: Ayanian JZ, Zaslavsky AM, Arora NK, Kahn KL, Malin JL, Ganz PA, van Ryn M, Hornbrook MC, Kiefe CI, He Y, Urmie JM, Weeks JC, Harrington DP
Title: Patients' experiences with care for lung cancer and colorectal cancer: findings from the Cancer Care Outcomes Research and Surveillance Consortium.
Type: Journal Article
Date: 2010 Sep 20
Journal: J Clin Oncol 28(27):4154-61
Topic(s): none
Tumor Site(s): Colorectal;  Lung
Data Source/Project/Initiative(s): Cancer Care Outcomes Research & Surveillance Consortium (CanCORS)Cancer Research Network (CRN)
Keywords: Adult;  African Americans;  Aged;  Asian Americans;  Colorectal Neoplasms;  Communication;  European Continental Ancestry Group;  Female;  Health Care Surveys;  Health Services Research;  Health Status Disparities;  Healthcare Disparities;  Hispanic Americans;  Humans;  Language;  Linear Models;  Logistic Models;  Lung Neoplasms;  Male;  Middle Aged;  Outcome and Process Assessment (Health Care);  Patient Care Team;  Patient Satisfaction;  Patients;  Physician-Patient Relations;  Quality of Health Care;  Surveys and Questionnaires;  Treatment Outcome;  United States;  Young Adult
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Authors: George SM, Neuhouser ML, Mayne ST, Irwin ML, Albanes D, Gail MH, Alfano CM, Bernstein L, McTiernan A, Reedy J, Smith AW, Ulrich CM, Ballard-Barbash R
Title: Postdiagnosis diet quality is inversely related to a biomarker of inflammation among breast cancer survivors.
Type: Journal Article
Date: 2010 Sep
Journal: Cancer Epidemiol Biomarkers Prev 19(9):2220-8
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)Healthy Eating Index (HEI)
Keywords: Adiponectin;  Biomarkers, Tumor;  Breast Neoplasms;  C-Reactive Protein;  Cohort Studies;  Diet;  Female;  Humans;  Inflammation;  Leptin;  Middle Aged;  Motor Activity;  Prognosis;  Prospective Studies;  Quality of Life;  Serum Amyloid A Protein;  Surveys and Questionnaires;  Survivors
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Authors: Wang X, Baldwin S, Wainer H, Bradlow ET, Reeve BB, Smith AW, Bellizzi KM, Baumgartner KB
Title: Using Testlet Response Theory to analyze data from a survey of attitude change among breast cancer survivors.
Type: Journal Article
Date: 2010 Aug 30
Journal: Stat Med 29(19):2028-44
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Attitude to Health;  Bayes Theorem;  Breast Neoplasms;  Data Interpretation, Statistical;  Female;  Health Surveys;  Humans;  Neoplasm Recurrence, Local;  Psychometrics;  Survivors;  Tamoxifen
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Authors: Zeliadt SB, Ramsey SD, Van Den Eeden SK, Hamilton AS, Oakley-Girvan I, Penson DF, Fairweather ME, Arora NK, Potosky AL
Title: Patient recruitment methods to evaluate treatment decision making for localized prostate cancer.
Type: Journal Article
Date: 2010 Aug
Journal: Am J Clin Oncol 33(4):381-6
Topic(s): none
Tumor Site(s): Prostate
Data Source/Project/Initiative(s): none
Keywords: Aged;  California;  Costs and Cost Analysis;  Data Collection;  Decision Making;  Humans;  Male;  Middle Aged;  Odds Ratio;  Patient Selection;  Prostatic Neoplasms
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Authors: Ramsey SD, Zeliadt SB, Arora NK, Blough DK, Penson DF, Oakley-Girvan I, Hamilton AS, Van Den Eeden SK, Fedorenko CR, Potosky AL
Title: Unanticipated and underappreciated outcomes during management of local stage prostate cancer: a prospective survey.
Type: Journal Article
Date: 2010 Jul
Journal: J Urol 184(1):120-5
Topic(s): none
Tumor Site(s): Prostate
Data Source/Project/Initiative(s): none
Keywords: Aged;  Choice Behavior;  Decision Making;  Factor Analysis, Statistical;  Focus Groups;  Humans;  Male;  Middle Aged;  Neoplasm Staging;  Patient Satisfaction;  Prospective Studies;  Prostatic Neoplasms;  Surveys and Questionnaires;  Treatment Outcome
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Authors: Haggstrom DA, Clauser SB, Taplin SH
Title: The health disparities cancer collaborative: a case study of practice registry measurement in a quality improvement collaborative.
Type: Journal Article
Date: 2010 Jun 04
Journal: Implement Sci 5():42
Topic(s): none
Tumor Site(s): Breast;  Cervical;  Colorectal
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Rogers SO Jr, Gray SW, Landrum MB, Klabunde CN, Kahn KL, Fletcher RH, Clauser S, Tisnado D, Doucette W, Keating NL
Title: Variations in surgeon treatment recommendations for lobectomy in early-stage non-small-cell lung cancer by patient age and comorbidity.
Type: Journal Article
Date: 2010 Jun
Journal: Ann Surg Oncol 17(6):1581-8
Topic(s): none
Tumor Site(s): Lung
Data Source/Project/Initiative(s): Cancer Care Outcomes Research & Surveillance Consortium (CanCORS)Cancer Research Network (CRN)
Keywords: Adult;  Age Factors;  Algorithms;  Boston;  Carcinoma, Non-Small-Cell Lung;  Comorbidity;  Decision Making;  Female;  General Surgery;  Health Care Surveys;  Humans;  Logistic Models;  Lung Neoplasms;  Male;  Middle Aged;  Pneumonectomy;  Practice Guidelines as Topic;  Practice Patterns, Physicians';  Pulmonary Disease, Chronic Obstructive;  Regression Analysis;  Risk Factors;  Severity of Illness Index;  Smoking;  Surveys and Questionnaires;  Thoracic Surgery
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Authors: Bellizzi KM, Smith AW, Reeve BB, Alfano CM, Bernstein L, Meeske K, Baumgartner KB, Ballard-Barbash RR
Title: Posttraumatic growth and health-related quality of life in a racially diverse cohort of breast cancer survivors.
Type: Journal Article
Date: 2010 May
Journal: J Health Psychol 15(4):615-26
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adaptation, Psychological;  Adult;  Aged;  Breast Neoplasms;  Cohort Studies;  Ethnic Groups;  Female;  Health Status;  Humans;  Middle Aged;  Neoplasm Staging;  Quality of Life;  Stress Disorders, Post-Traumatic;  Surveys and Questionnaires;  Survivors
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Authors: Mularski RA, Campbell ML, Asch SM, Reeve BB, Basch E, Maxwell TL, Hoverman JR, Cuny J, Clauser SB, Snyder C, Seow H, Wu AW, Dy S
Title: A review of quality of care evaluation for the palliation of dyspnea.
Type: Journal Article
Date: 2010 Mar 15
Journal: Am J Respir Crit Care Med 181(6):534-8
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Dyspnea;  Humans;  Palliative Care;  Quality of Health Care;  Severity of Illness Index
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Authors: Waters EA, Arora NK, Klein WM, Han PK
Title: Perceived risk, trust and health-related quality of life among cancer survivors.
Type: Journal Article
Date: 2010 Feb
Journal: Ann Behav Med 39(1):91-7
Topic(s): none
Tumor Site(s): Colorectal;  Leukemia;  Urinary Bladder
Data Source/Project/Initiative(s): Assessment of Patients' Experience of Cancer Care (APECC) Study
Keywords: Adult;  Aged;  Cross-Sectional Studies;  Female;  Follow-Up Studies;  Health Status;  Humans;  Male;  Middle Aged;  Neoplasms;  Physician's Role;  Physician-Patient Relations;  Quality of Life;  Risk Assessment;  Survivors;  Treatment Outcome;  Trust
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Authors: Waters EA, Cronin KA, Graubard BI, Han PK, Freedman AN
Title: Prevalence of tamoxifen use for breast cancer chemoprevention among U.S. women.
Type: Journal Article
Date: 2010 Feb
Journal: Cancer Epidemiol Biomarkers Prev 19(2):443-6
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): National Health Interview Survey (NHIS) - Cancer Control Supplement (CCS)
Keywords: Adult;  Aged;  Breast Neoplasms;  Female;  Humans;  Middle Aged;  Prevalence;  Primary Prevention;  Selective Estrogen Receptor Modulators;  Tamoxifen;  United States
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Authors: Clayman ML, Manganello JA, Viswanath K, Hesse BW, Arora NK
Title: Providing health messages to Hispanics/Latinos: understanding the importance of language, trust in health information sources, and media use.
Type: Journal Article
Date: 2010
Journal: J Health Commun 15 Suppl 3():252-63
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Health Information National Trends Survey (HINTS)
Keywords: Adult;  Communication Barriers;  Consumer Health Information;  Female;  Health Communication;  Health Promotion;  Health Surveys;  Hispanic Americans;  Humans;  Internet;  Male;  Mass Media;  Middle Aged;  Multilingualism;  Newspapers as Topic;  Periodicals as Topic;  Trust;  United States
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Authors: Fennell ML, Das IP, Clauser S, Petrelli N, Salner A
Title: The organization of multidisciplinary care teams: modeling internal and external influences on cancer care quality.
Type: Journal Article
Date: 2010
Journal: J Natl Cancer Inst Monogr 2010(40):72-80
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Cancer Care Facilities;  Continuity of Patient Care;  Cooperative Behavior;  Forecasting;  Group Processes;  Health Services Research;  Humans;  Interdisciplinary Communication;  Interprofessional Relations;  Models, Theoretical;  Neoplasms;  Outcome and Process Assessment (Health Care);  Patient Care Team;  Patient-Centered Care;  Physician-Patient Relations;  Quality of Health Care
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Authors: Reeve BB
Title: Meet a test user: Meet Dr. Bryce B. Reeve
Type: Book Chapter
Date: 2010
Book Editors: Cohen RJ, Swerdlik M
Book Title: Psychological Testing and Assessment: An Introduction to Tests and Measurement
ISBN: 9780073129099External Web Site Policy
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Taplin SH, Clauser S, Rodgers AB, Breslau E, Rayson D
Title: Interfaces across the cancer continuum offer opportunities to improve the process of care.
Type: Journal Article
Date: 2010
Journal: J Natl Cancer Inst Monogr 2010(40):104-10
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Canada;  Cancer Care Facilities;  Continuity of Patient Care;  Forecasting;  Health Services Research;  Humans;  Interdisciplinary Communication;  Medical Oncology;  Neoplasms;  Patient Care Management;  Patient Care Team;  Patient-Centered Care;  Primary Health Care;  Quality of Health Care;  Research Design;  Social Environment;  United States
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Authors: Han PK, Moser RP, Klein WM, Beckjord EB, Dunlavy AC, Hesse BW
Title: Predictors of perceived ambiguity about cancer prevention recommendations: sociodemographic factors and mass media exposures.
Type: Journal Article
Date: 2009 Dec
Journal: Health Commun 24(8):764-72
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Health Information National Trends Survey (HINTS)
Keywords: Adolescent;  Adult;  Aged;  Colorectal Neoplasms;  Consumer Health Information;  Female;  Health Education;  Health Knowledge, Attitudes, Practice;  Humans;  Lung Neoplasms;  Male;  Mass Media;  Middle Aged;  Neoplasms;  Skin Neoplasms;  Socioeconomic Factors;  Young Adult
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Authors: Reyna VF, Nelson WL, Han PK, Dieckmann NF
Title: How numeracy influences risk comprehension and medical decision making.
Type: Journal Article
Date: 2009 Nov
Journal: Psychol Bull 135(6):943-73
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Comprehension;  Decision Making;  Fuzzy Logic;  Health Behavior;  Humans;  Individuality;  Judgment;  Models, Theoretical;  Probability Learning;  Problem Solving;  Risk-Taking;  Vulnerable Populations
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Authors: Clauser SB
Title: National Cancer Institute partnerships in quality-of-care research.
Type: Journal Article
Date: 2009 Oct
Journal: Cancer Control 16(4):283-92
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Humans;  Medical Oncology;  National Cancer Institute (U.S.);  Neoplasms;  Quality Assurance, Health Care;  Research;  United States;  United States Agency for Healthcare Research and Quality
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Authors: Han PK, Reeve BB, Moser RP, Klein WM
Title: Aversion to ambiguity regarding medical tests and treatments: measurement, prevalence, and relationship to sociodemographic factors.
Type: Journal Article
Date: 2009 Sep
Journal: J Health Commun 14(6):556-72
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adult;  Aged;  Analysis of Variance;  Data Collection;  Female;  Health Knowledge, Attitudes, Practice;  Humans;  Income;  Male;  Mass Screening;  Middle Aged;  Neoplasms;  Patient Acceptance of Health Care;  Prevalence;  Reproducibility of Results;  Socioeconomic Factors;  Surveys and Questionnaires;  United States
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Authors: Klabunde CN, Ambs A, Keating NL, He Y, Doucette WR, Tisnado D, Clauser S, Kahn KL
Title: The role of primary care physicians in cancer care.
Type: Journal Article
Date: 2009 Sep
Journal: J Gen Intern Med 24(9):1029-36
Topic(s): none
Tumor Site(s): Colorectal;  Lung
Data Source/Project/Initiative(s): Cancer Care Outcomes Research & Surveillance Consortium (CanCORS)Cancer Research Network (CRN)
Keywords: Adult;  Aged;  Attitude of Health Personnel;  Continuity of Patient Care;  Data Collection;  Female;  Humans;  Male;  Medical Oncology;  Middle Aged;  Neoplasms;  Physician's Role;  Physician-Patient Relations;  Physicians, Family
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Authors: Ramsey SD, Zeliadt SB, Arora NK, Potosky AL, Blough DK, Hamilton AS, Van Den Eeden SK, Oakley-Girvan I, Penson DF
Title: Access to information sources and treatment considerations among men with local stage prostate cancer.
Type: Journal Article
Date: 2009 Sep
Journal: Urology 74(3):509-15
Topic(s): none
Tumor Site(s): Prostate
Data Source/Project/Initiative(s): none
Keywords: Access to Information;  Aged;  Humans;  Male;  Middle Aged;  Neoplasm Staging;  Prospective Studies;  Prostatic Neoplasms
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Authors: Reeve BB, Potosky AL, Smith AW, Han PK, Hays RD, Davis WW, Arora NK, Haffer SC, Clauser SB
Title: Impact of cancer on health-related quality of life of older Americans.
Type: Journal Article
Date: 2009 Jun 16
Journal: J Natl Cancer Inst 101(12):860-8
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;  Analysis of Variance;  Benchmarking;  Case-Control Studies;  Comorbidity;  Cost of Illness;  Female;  Health Status;  Health Surveys;  Humans;  Male;  Medical Record Linkage;  Medicare;  Mental Health;  Neoplasms;  Prospective Studies;  Quality of Life;  SEER Program;  Severity of Illness Index;  United States
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Authors: Mitchell SA, Reeve BB
Title: Chapter 30. Quality of life assessments
Type: Book Chapter
Date: 2009 Jun
Book Editors: Vogelsang GB, Pavletic SZ
Book Title: Chronic Graft Versus Host Disease: Interdisciplinary Management
ISBN: 0521884233External Web Site Policy
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Jeffery DD, Tzeng JP, Keefe FJ, Porter LS, Hahn EA, Flynn KE, Reeve BB, Weinfurt KP
Title: Initial report of the cancer Patient-Reported Outcomes Measurement Information System (PROMIS) sexual function committee: review of sexual function measures and domains used in oncology.
Type: Journal Article
Date: 2009 Mar 15
Journal: Cancer 115(6):1142-53
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes Measurement Information System (PROMIS)
Keywords: Female;  Health Surveys;  Humans;  Male;  National Institutes of Health (U.S.);  Neoplasms;  Outcome Assessment (Health Care);  Psychometrics;  Quality of Life;  Research Design;  Sexual Behavior;  Sexual Dysfunction, Physiological;  Surveys and Questionnaires;  Survivors;  United States
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Authors: Bellizzi KM, Rowland JH, Arora NK, Hamilton AS, Miller MF, Aziz NM
Title: Physical activity and quality of life in adult survivors of non-Hodgkin's lymphoma.
Type: Journal Article
Date: 2009 Feb 20
Journal: J Clin Oncol 27(6):960-6
Topic(s): none
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Experience of Care & Health Outcomes of Survivors of Non-Hodgkin's Lymphoma (ECHOS-NHL) Study
Keywords: Aged;  Cross-Sectional Studies;  Female;  Humans;  Lymphoma, Non-Hodgkin;  Male;  Middle Aged;  Motor Activity;  Prevalence;  Quality of Life;  Survivors
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Authors: Arora NK
Title: Importance of patient-centered care in enhancing patient well-being: a cancer survivor's perspective.
Type: Journal Article
Date: 2009 Feb
Journal: Qual Life Res 18(1):1-4
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-centered Care & Communication
Keywords: Anecdotes as Topic;  Humans;  Neoplasms;  Patient Satisfaction;  Patient-Centered Care;  Physician-Patient Relations;  Quality of Health Care;  Quality of Life;  Survivors
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Authors: Arora NK, Gustafson DH
Title: Perceived helpfulness of physicians' communication behavior and breast cancer patients' level of trust over time.
Type: Journal Article
Date: 2009 Feb
Journal: J Gen Intern Med 24(2):252-5
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Patient-centered Care & Communication
Keywords: Adult;  Attitude of Health Personnel;  Breast Neoplasms;  Communication;  Female;  Follow-Up Studies;  Helping Behavior;  Humans;  Longitudinal Studies;  Middle Aged;  Patient Satisfaction;  Perception;  Physician-Patient Relations;  Time Factors;  Trust
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Authors: Smith AW, Alfano CM, Reeve BB, Irwin ML, Bernstein L, Baumgartner K, Bowen D, McTiernan A, Ballard-Barbash R
Title: Race/ethnicity, physical activity, and quality of life in breast cancer survivors.
Type: Journal Article
Date: 2009 Feb
Journal: Cancer Epidemiol Biomarkers Prev 18(2):656-63
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;  African Continental Ancestry Group;  Aged;  Aged, 80 and over;  Breast Neoplasms;  Chi-Square Distribution;  European Continental Ancestry Group;  Female;  Hispanic Americans;  Humans;  Middle Aged;  Motor Activity;  Prospective Studies;  Quality of Life;  Regression Analysis;  Survivors
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Authors: Dougall AL, Smith AW, Somers TJ, Posluszny DM, Rubinstein WS, Baum A
Title: Coping with genetic testing for breast cancer susceptibility.
Type: Journal Article
Date: 2009 Jan
Journal: Psychosom Med 71(1):98-105
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): none
Keywords: Adaptation, Psychological;  Adult;  Breast Neoplasms;  DNA Mutational Analysis;  Female;  Follow-Up Studies;  Genes, BRCA1;  Genes, BRCA2;  Genetic Predisposition to Disease;  Genetic Testing;  Humans;  Middle Aged;  Psychotropic Drugs;  Risk;  Severity of Illness Index;  Stress, Psychological
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Authors: Meeske KA, Sullivan-Halley J, Smith AW, McTiernan A, Baumgartner KB, Harlan LC, Bernstein L
Title: Risk factors for arm lymphedema following breast cancer diagnosis in Black women and White women.
Type: Journal Article
Date: 2009 Jan
Journal: Breast Cancer Res Treat 113(2):383-91
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;  African Americans;  Age Factors;  Antineoplastic Agents;  Arm;  Breast Neoplasms;  Cohort Studies;  Combined Modality Therapy;  Comorbidity;  Contraceptives, Oral;  European Continental Ancestry Group;  Female;  Follow-Up Studies;  Humans;  Hypertension;  Infection;  Lymph Node Excision;  Lymphedema;  Middle Aged;  Obesity;  Radiotherapy;  Risk Factors
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Authors: Guenther PM, Reedy J, Krebs-Smith SM, Reeve BB
Title: Evaluation of the Healthy Eating Index-2005.
Type: Journal Article
Date: 2008 Nov
Journal: J Am Diet Assoc 108(11):1854-64
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adolescent;  Adult;  Aged;  Child;  Child, Preschool;  Diet;  Diet Surveys;  Eating;  Female;  Food;  Food, Organic;  Guidelines as Topic;  Humans;  Male;  Middle Aged;  Nutrition Assessment;  Nutrition Policy;  Nutritive Value;  Principal Component Analysis;  Reproducibility of Results;  Sensitivity and Specificity;  Smoking;  Surveys and Questionnaires;  United States;  United States Department of Agriculture;  Young Adult
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Authors: Hammond CT, Beckjord EB, Arora NK, Bellizzi KM, Jeffery DD, Aziz NM
Title: Non-Hodgkin's lymphoma survivors' fertility and sexual function-related information needs.
Type: Journal Article
Date: 2008 Oct
Journal: Fertil Steril 90(4):1256-8
Topic(s): none
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Experience of Care & Health Outcomes of Survivors of Non-Hodgkin's Lymphoma (ECHOS-NHL) StudySurveillance, Epidemiology, & End Results (SEER) Program
Keywords: Adolescent;  Adult;  Attitude to Health;  Cohort Studies;  Comorbidity;  Female;  Health Knowledge, Attitudes, Practice;  Humans;  Infertility;  Los Angeles;  Male;  Middle Aged;  Patient Education as Topic;  Prevalence;  Registries;  Risk Assessment;  Risk Factors;  Sexual Dysfunction, Physiological;  Sexual Dysfunctions, Psychological;  Surveys and Questionnaires;  Survivors
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Authors: Smith ER, Adams SA, Das IP, Bottai M, Fulton J, Hebert JR
Title: Breast cancer survival among economically disadvantaged women: the influences of delayed diagnosis and treatment on mortality.
Type: Journal Article
Date: 2008 Oct
Journal: Cancer Epidemiol Biomarkers Prev 17(10):2882-90
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): none
Keywords: African Americans;  Breast Neoplasms;  Chi-Square Distribution;  European Continental Ancestry Group;  Female;  Health Services Accessibility;  Humans;  Middle Aged;  Proportional Hazards Models;  Registries;  Socioeconomic Factors;  South Carolina;  Statistics, Nonparametric;  Survival Analysis;  Time Factors
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Authors: Hsiao AF, Wong MD, Miller MF, Ambs AH, Goldstein MS, Smith A, Ballard-Barbash R, Becerra LS, Cheng EM, Wenger NS
Title: Role of religiosity and spirituality in complementary and alternative medicine use among cancer survivors in California.
Type: Journal Article
Date: 2008 Sep
Journal: Integr Cancer Ther 7(3):139-46
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): CHIS - Complementary & Alternative Medicine Survey (CHIS-CAM)
Keywords: Adult;  Aged;  California;  Complementary Therapies;  Cross-Sectional Studies;  Female;  Health Surveys;  Humans;  Logistic Models;  Male;  Middle Aged;  Multivariate Analysis;  Neoplasms;  Religion and Medicine;  Spirituality;  Survivors;  Young Adult
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Authors: Smith AW, Dougall AL, Posluszny DM, Somers TJ, Rubinstein WS, Baum A
Title: Psychological distress and quality of life associated with genetic testing for breast cancer risk.
Type: Journal Article
Date: 2008 Aug
Journal: Psychooncology 17(8):767-73
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): none
Keywords: Adult;  Aged;  Breast Neoplasms;  Female;  Follow-Up Studies;  Genes, BRCA1;  Genes, BRCA2;  Genetic Testing;  Humans;  Middle Aged;  Point Mutation;  Quality of Life;  Risk Assessment;  Risk Factors;  Surveys and Questionnaires;  Young Adult
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Authors: Hesse BW, Arora NK, Burke Beckjord E, Finney Rutten LJ
Title: Information support for cancer survivors.
Type: Journal Article
Date: 2008 Jun 01
Journal: Cancer 112(11 Suppl):2529-40
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Health Information National Trends Survey (HINTS)
Keywords: Adolescent;  Adult;  Aged;  Aged, 80 and over;  Consumer Health Information;  Cross-Sectional Studies;  Female;  Health Surveys;  Humans;  Interviews as Topic;  Male;  Middle Aged;  Neoplasms;  Patient Acceptance of Health Care;  Patient Satisfaction;  Survivors
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Authors: Keating NL, Landrum MB, Klabunde CN, Fletcher RH, Rogers SO, Doucette WR, Tisnado D, Clauser S, Kahn KL
Title: Adjuvant chemotherapy for stage III colon cancer: do physicians agree about the importance of patient age and comorbidity?
Type: Journal Article
Date: 2008 May 20
Journal: J Clin Oncol 26(15):2532-7
Topic(s): none
Tumor Site(s): Colorectal
Data Source/Project/Initiative(s): Cancer Care Outcomes Research & Surveillance Consortium (CanCORS)Cancer Research Network (CRN)
Keywords: Adult;  Age Factors;  Aged;  Aged, 80 and over;  Antineoplastic Agents;  Chemotherapy, Adjuvant;  Colonic Neoplasms;  Comorbidity;  Decision Making;  Female;  Humans;  Lung Neoplasms;  Male;  Middle Aged;  Neoplasm Staging;  Physicians
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Authors: Arora NK
Title: Advancing research on patient-centered cancer communication.
Type: Journal Article
Date: 2008 Mar
Journal: Patient Educ Couns 70(3):301-2
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-centered Care & Communication
Keywords: Communication;  Health Services Needs and Demand;  Humans;  Neoplasms;  Patient-Centered Care;  Professional-Patient Relations;  Research
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Authors: Arora NK, Hesse BW, Rimer BK, Viswanath K, Clayman ML, Croyle RT
Title: Frustrated and confused: the American public rates its cancer-related information-seeking experiences.
Type: Journal Article
Date: 2008 Mar
Journal: J Gen Intern Med 23(3):223-8
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Health Information National Trends Survey (HINTS)
Keywords: Adolescent;  Adult;  Aged;  Confusion;  Cross-Sectional Studies;  Female;  Frustration;  Health Knowledge, Attitudes, Practice;  Humans;  Information Services;  Logistic Models;  Male;  Medical Informatics;  Middle Aged;  Neoplasms;  Odds Ratio;  Patient Education as Topic;  Patient Satisfaction;  Probability;  Surveys and Questionnaires;  United States
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Authors: Aiello Bowles EJ, Tuzzio L, Wiese CJ, Kirlin B, Greene SM, Clauser SB, Wagner EH
Title: Understanding high-quality cancer care: a summary of expert perspectives.
Type: Journal Article
Date: 2008 Feb 15
Journal: Cancer 112(4):934-42
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Cancer Research Network (CRN)
Keywords: Expert Testimony;  Humans;  Institute of Medicine (U.S.);  Interviews as Topic;  Neoplasms;  Quality of Health Care;  United States
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Authors: Ambs A, Warren JL, Bellizzi KM, Topor M, Haffer SC, Clauser SB
Title: Overview of the SEER--Medicare Health Outcomes Survey linked dataset.
Type: Journal Article
Date: 2008 Summer
Journal: Health Care Financ Rev 29(4):5-21
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;  Aged, 80 and over;  Cohort Studies;  Comorbidity;  Cooperative Behavior;  Database Management Systems;  Female;  Humans;  Male;  Managed Care Programs;  Medical Record Linkage;  Medicare;  Neoplasms;  Outcome Assessment (Health Care);  Program Evaluation;  Quality of Life;  SEER Program;  Sickness Impact Profile;  Survivors;  United States
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Authors: Clauser SB, Arora NK, Bellizzi KM, Haffer SC, Topor M, Hays RD
Title: Disparities in HRQOL of cancer survivors and non-cancer managed care enrollees.
Type: Journal Article
Date: 2008 Summer
Journal: Health Care Financ Rev 29(4):23-40
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;  Aged, 80 and over;  Demography;  Female;  Healthcare Disparities;  Humans;  Male;  Managed Care Programs;  Medicare;  Mental Health;  Multivariate Analysis;  Neoplasms;  Outcome Assessment (Health Care);  Quality of Life;  SEER Program;  Sickness Impact Profile;  Socioeconomic Factors;  Survivors;  United States
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Authors: Clauser SB, Haffer SC
Title: SEER-MHOS: a new federal collaboration on cancer outcomes research.
Type: Journal Article
Date: 2008 Summer
Journal: Health Care Financ Rev 29(4):1-4
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;  Cooperative Behavior;  Humans;  Managed Care Programs;  Medicare;  Neoplasms;  Outcome Assessment (Health Care);  Quality of Life;  SEER Program;  Survivors;  United States
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Authors: Hays RD, Smith AW, Reeve BB, Spritzer KL, Marcus SE, Clauser SB
Title: Cigarette smoking and health-related quality of life in Medicare beneficiaries.
Type: Journal Article
Date: 2008 Summer
Journal: Health Care Financ Rev 29(4):57-67
Topic(s): none
Tumor Site(s): Head and Neck;  Lung
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;  Aged, 80 and over;  Chronic Disease;  Cohort Studies;  Database Management Systems;  Demography;  Female;  Humans;  Least-Squares Analysis;  Male;  Managed Care Programs;  Medical Record Linkage;  Medicare;  Neoplasms;  Outcome Assessment (Health Care);  Quality of Life;  SEER Program;  Sickness Impact Profile;  Smoking;  Socioeconomic Factors;  Survivors;  United States
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Authors: Reeve BB, Smith AW, Arora NK, Hays RD
Title: Reducing bias in cancer research: application of propensity score matching.
Type: Journal Article
Date: 2008 Summer
Journal: Health Care Financ Rev 29(4):69-80
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;  Aged, 80 and over;  Chronic Disease;  Cohort Studies;  Comorbidity;  Cost of Illness;  Database Management Systems;  Epidemiologic Research Design;  Female;  Humans;  Male;  Managed Care Programs;  Medicare;  Neoplasms;  Observation;  Outcome Assessment (Health Care);  Quality of Life;  SEER Program;  Socioeconomic Factors;  Survivors;  United States
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Authors: Smith AW, Reeve BB, Bellizzi KM, Harlan LC, Klabunde CN, Amsellem M, Bierman AS, Hays RD
Title: Cancer, comorbidities, and health-related quality of life of older adults.
Type: Journal Article
Date: 2008 Summer
Journal: Health Care Financ Rev 29(4):41-56
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;  Aged, 80 and over;  Comorbidity;  Demography;  Female;  Humans;  Male;  Managed Care Programs;  Medical Record Linkage;  Medicare;  Neoplasms;  Outcome Assessment (Health Care);  Poisson Distribution;  Prevalence;  Quality of Life;  SEER Program;  Sickness Impact Profile;  Survivors;  United States
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Authors: Garcia SF, Cella D, Clauser SB, Flynn KE, Lad T, Lai JS, Reeve BB, Smith AW, Stone AA, Weinfurt K
Title: Standardizing patient-reported outcomes assessment in cancer clinical trials: a patient-reported outcomes measurement information system initiative.
Type: Journal Article
Date: 2007 Nov 10
Journal: J Clin Oncol 25(32):5106-12
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes Measurement Information System (PROMIS)
Keywords: Clinical Trials as Topic;  Continuity of Patient Care;  Humans;  Neoplasms;  Patient Satisfaction;  Psychometrics;  Quality Indicators, Health Care;  Quality of Life;  Reproducibility of Results;  Sickness Impact Profile;  Treatment Outcome
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Authors: Lipscomb J, Reeve BB, Clauser SB, Abrams JS, Bruner DW, Burke LB, Denicoff AM, Ganz PA, Gondek K, Minasian LM, O'Mara AM, Revicki DA, Rock EP, Rowland JH, Sgambati M, Trimble EL
Title: Patient-reported outcomes assessment in cancer trials: taking stock, moving forward.
Type: Journal Article
Date: 2007 Nov 10
Journal: J Clin Oncol 25(32):5133-40
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Clinical Trials as Topic;  Decision Making;  Humans;  Neoplasms;  Patient Satisfaction;  Quality Indicators, Health Care;  Quality of Life;  Sickness Impact Profile;  Treatment Outcome
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Authors: Minasian LM, O'Mara AM, Reeve BB, Denicoff AM, Kelaghan J, Rowland JH, Trimble EL, National Cancer Institute
Title: Health-related quality of life and symptom management research sponsored by the National Cancer Institute.
Type: Journal Article
Date: 2007 Nov 10
Journal: J Clin Oncol 25(32):5128-32
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Clinical Trials as Topic;  Humans;  National Cancer Institute (U.S.);  Neoplasms;  Patient Satisfaction;  Professional Staff Committees;  Quality Indicators, Health Care;  Quality of Life;  Sickness Impact Profile;  Treatment Outcome;  United States
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Authors: Bowen DJ, Alfano CM, McGregor BA, Kuniyuki A, Bernstein L, Meeske K, Baumgartner KB, Fetherolf J, Reeve BB, Smith AW, Ganz PA, McTiernan A, Barbash RB
Title: Possible socioeconomic and ethnic disparities in quality of life in a cohort of breast cancer survivors.
Type: Journal Article
Date: 2007 Nov
Journal: Breast Cancer Res Treat 106(1):85-95
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;  African Americans;  Aged;  Breast Neoplasms;  Disability Evaluation;  Employment;  European Continental Ancestry Group;  Female;  Health Status Disparities;  Hispanic Americans;  Humans;  Mental Health;  Middle Aged;  Population Surveillance;  Prospective Studies;  Quality of Life;  Recovery of Function;  Socioeconomic Factors;  Surveys and Questionnaires;  Survivors;  Time Factors;  Treatment Outcome;  United States
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Authors: Frost MH, Reeve BB, Liepa AM, Stauffer JW, Hays RD, Mayo/FDA Patient-Reported Outcomes Consensus Meeting Group;
Title: What is sufficient evidence for the reliability and validity of patient-reported outcome measures?
Type: Journal Article
Date: 2007 Nov-Dec
Journal: Value Health 10 Suppl 2():S94-S105
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Clinical Trials as Topic;  Data Interpretation, Statistical;  Humans;  Patient Satisfaction;  Product Labeling;  Psychometrics;  Qualitative Research;  Reproducibility of Results;  Research Design;  Treatment Outcome;  United States;  Validation Studies as Topic
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Authors: Bellizzi KM, Miller MF, Arora NK, Rowland JH
Title: Positive and negative life changes experienced by survivors of non-Hodgkin's lymphoma.
Type: Journal Article
Date: 2007 Oct
Journal: Ann Behav Med 34(2):188-99
Topic(s): none
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Experience of Care & Health Outcomes of Survivors of Non-Hodgkin's Lymphoma (ECHOS-NHL) Study
Keywords: Activities of Daily Living;  Adaptation, Psychological;  Adult;  Aged;  Aged, 80 and over;  Family Relations;  Female;  Health Behavior;  Humans;  Life Change Events;  Lymphoma, Non-Hodgkin;  Male;  Middle Aged;  Quality of Life;  Sick Role;  Socioeconomic Factors;  Survivors
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Authors: Nelson WL, Han PK, Fagerlin A, Stefanek M, Ubel PA
Title: Rethinking the objectives of decision aids: a call for conceptual clarity.
Type: Journal Article
Date: 2007 Sep-Oct
Journal: Med Decis Making 27(5):609-18
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Concept Formation;  Decision Making;  Decision Support Techniques;  Dissent and Disputes;  Humans;  Patient Participation;  Physician-Patient Relations;  United States
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Authors: Politi MC, Han PK, Col NF
Title: Communicating the uncertainty of harms and benefits of medical interventions.
Type: Journal Article
Date: 2007 Sep-Oct
Journal: Med Decis Making 27(5):681-95
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adaptation, Psychological;  Bibliometrics;  Communication;  Decision Making;  Humans;  Outcome and Process Assessment (Health Care);  Patient Care;  Patient Participation;  Physician-Patient Relations;  Risk Assessment;  Uncertainty;  United States
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Authors: Meeske K, Smith AW, Alfano CM, McGregor BA, McTiernan A, Baumgartner KB, Malone KE, Reeve BB, Ballard-Barbash R, Bernstein L
Title: Fatigue in breast cancer survivors two to five years post diagnosis: a HEAL Study report.
Type: Journal Article
Date: 2007 Aug
Journal: Qual Life Res 16(6):947-60
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;  Aged;  Aged, 80 and over;  Breast Neoplasms;  Fatigue;  Female;  Humans;  Logistic Models;  Los Angeles;  Middle Aged;  Multivariate Analysis;  New Mexico;  Prevalence;  Prospective Studies;  Psychometrics;  Quality of Life;  SEER Program;  Severity of Illness Index;  Sickness Impact Profile;  Survivors;  Washington
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Authors: Alfano CM, Smith AW, Irwin ML, Bowen DJ, Sorensen B, Reeve BB, Meeske KA, Bernstein L, Baumgartner KB, Ballard-Barbash R, Malone KE, McTiernan A
Title: Physical activity, long-term symptoms, and physical health-related quality of life among breast cancer survivors: a prospective analysis.
Type: Journal Article
Date: 2007 Jun
Journal: J Cancer Surviv 1(2):116-28
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Activities of Daily Living;  Adaptation, Psychological;  Adult;  Aged;  Aged, 80 and over;  Breast Neoplasms;  California;  Cohort Studies;  Exercise;  Fatigue;  Female;  Health Status;  Humans;  Middle Aged;  New Mexico;  Pain;  Prospective Studies;  Quality of Life;  Registries;  Regression Analysis;  Survivors;  United States;  Washington
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Authors: Arora NK, Finney Rutten LJ, Gustafson DH, Moser R, Hawkins RP
Title: Perceived helpfulness and impact of social support provided by family, friends, and health care providers to women newly diagnosed with breast cancer.
Type: Journal Article
Date: 2007 May
Journal: Psychooncology 16(5):474-86
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Patient-centered Care & Communication
Keywords: Adaptation, Psychological;  Adult;  Breast Neoplasms;  Decision Making;  Family;  Female;  Friends;  Humans;  Longitudinal Studies;  Middle Aged;  Patient Education as Topic;  Patient Satisfaction;  Physician's Role;  Quality of Life;  Self Efficacy;  Self-Help Groups;  Sick Role;  Social Support;  Surveys and Questionnaires
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Authors: Cella D, Yount S, Rothrock N, Gershon R, Cook K, Reeve B, Ader D, Fries JF, Bruce B, Rose M, PROMIS Cooperative Group
Title: The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two years.
Type: Journal Article
Date: 2007 May
Journal: Med Care 45(5 Suppl 1):S3-S11
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Cooperative Behavior;  Databases as Topic;  Information Systems;  National Institutes of Health (U.S.);  Outcome Assessment (Health Care);  Quality of Life;  Self Disclosure;  United States
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Authors: Reeve BB, Hays RD, Bjorner JB, Cook KF, Crane PK, Teresi JA, Thissen D, Revicki DA, Weiss DJ, Hambleton RK, Liu H, Gershon R, Reise SP, Lai JS, Cella D, PROMIS Cooperative Group
Title: Psychometric evaluation and calibration of health-related quality of life item banks: plans for the Patient-Reported Outcomes Measurement Information System (PROMIS).
Type: Journal Article
Date: 2007 May
Journal: Med Care 45(5 Suppl 1):S22-31
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adolescent;  Adult;  Aged;  Calibration;  Databases as Topic;  Evaluation Studies as Topic;  Female;  Health Status;  Humans;  Information Systems;  Male;  Middle Aged;  Outcome Assessment (Health Care);  Psychometrics;  Quality of Life;  Self Disclosure;  Surveys and Questionnaires;  United States
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Authors: Arora NK, Hamilton AS, Potosky AL, Rowland JH, Aziz NM, Bellizzi KM, Klabunde CN, McLaughlin W, Stevens J
Title: Population-based survivorship research using cancer registries: a study of non-Hodgkin's lymphoma survivors.
Type: Journal Article
Date: 2007 Mar
Journal: J Cancer Surviv 1(1):49-63
Topic(s): none
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Experience of Care & Health Outcomes of Survivors of Non-Hodgkin's Lymphoma (ECHOS-NHL) Study
Keywords: Adult;  Aged;  Female;  Health Status;  Health Surveys;  Humans;  Los Angeles;  Lymphoma, Non-Hodgkin;  Male;  Middle Aged;  Quality of Life;  Registries;  Research Design;  Surveys and Questionnaires;  Survivors;  Treatment Outcome
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Authors: Han PK, Kobrin SC, Klein WM, Davis WW, Stefanek M, Taplin SH
Title: Perceived ambiguity about screening mammography recommendations: association with future mammography uptake and perceptions.
Type: Journal Article
Date: 2007 Mar
Journal: Cancer Epidemiol Biomarkers Prev 16(3):458-66
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): none
Keywords: Aged;  Attitude to Health;  Chi-Square Distribution;  Female;  Humans;  Logistic Models;  Longitudinal Studies;  Mammography;  Middle Aged;  Patient Compliance;  Prospective Studies;  Randomized Controlled Trials as Topic;  Reminder Systems;  Uncertainty
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Authors: Bjorner JB, Chang CH, Thissen D, Reeve BB
Title: Developing tailored instruments: item banking and computerized adaptive assessment.
Type: Journal Article
Date: 2007
Journal: Qual Life Res 16 Suppl 1():95-108
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Algorithms;  Factor Analysis, Statistical;  Health Status;  Health Status Indicators;  Humans;  Mental Health;  Models, Statistical;  Outcome Assessment (Health Care);  Psychometrics;  Quality of Life;  Software;  Surveys and Questionnaires
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Authors: Cook KF, Teal CR, Bjorner JB, Cella D, Chang CH, Crane PK, Gibbons LE, Hays RD, McHorney CA, Ocepek-Welikson K, Raczek AE, Teresi JA, Reeve BB
Title: IRT health outcomes data analysis project: an overview and summary.
Type: Journal Article
Date: 2007
Journal: Qual Life Res 16 Suppl 1():121-32
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Data Interpretation, Statistical;  Female;  HIV Infections;  Health Status;  Humans;  Male;  Neoplasms;  Outcome Assessment (Health Care);  Psychometrics;  Quality of Life;  Software;  Stress, Psychological;  Surveys and Questionnaires
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Authors: Edelen MO, Reeve BB
Title: Applying item response theory (IRT) modeling to questionnaire development, evaluation, and refinement.
Type: Journal Article
Date: 2007
Journal: Qual Life Res 16 Suppl 1():5-18
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adolescent;  Depression;  Health Surveys;  Humans;  Interviews as Topic;  Models, Theoretical;  Outcome Assessment (Health Care);  Quality of Life;  Reproducibility of Results;  Research;  Surveys and Questionnaires
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Authors: Reeve BB, Burke LB, Chiang YP, Clauser SB, Colpe LJ, Elias JW, Fleishman J, Hohmann AA, Johnson-Taylor WL, Lawrence W, Moy CS, Quatrano LA, Riley WT, Smothers BA, Werner EM
Title: Enhancing measurement in health outcomes research supported by Agencies within the US Department of Health and Human Services.
Type: Journal Article
Date: 2007
Journal: Qual Life Res 16 Suppl 1():175-86
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Biomedical Research;  Computer Systems;  Decision Making;  Health Policy;  Health Status;  Humans;  National Institutes of Health (U.S.);  Outcome Assessment (Health Care);  Psychometrics;  Quality of Life;  Software;  Surveys and Questionnaires;  United States;  United States Dept. of Health and Human Services;  United States Food and Drug Administration
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Authors: Reeve BB, Hays RD, Chang CH, Perfetto EM
Title: Applying item response theory to enhance health outcomes assessment
Type: Journal Article
Date: 2007
Journal: Qual Life Res 16 Suppl 1():1-3
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Thissen D, Reeve BB, Bjorner JB, Chang CH
Title: Methodological issues for building item banks and computerized adaptive scales.
Type: Journal Article
Date: 2007
Journal: Qual Life Res 16 Suppl 1():109-19
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Educational Measurement;  Health Status;  Humans;  Outcome Assessment (Health Care);  Software;  Surveys and Questionnaires
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Authors: Alfano CM, McGregor BA, Kuniyuki A, Reeve BB, Bowen DJ, Baumgartner KB, Bernstein L, Ballard-Barbash R, Malone KE, Ganz PA, McTiernan A
Title: Psychometric properties of a tool for measuring hormone-related symptoms in breast cancer survivors.
Type: Journal Article
Date: 2006 Nov
Journal: Psychooncology 15(11):985-1000
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;  Aged;  Antineoplastic Agents, Hormonal;  Breast Neoplasms;  Carcinoma in Situ;  Climacteric;  Combined Modality Therapy;  Estrogens;  Female;  Humans;  Middle Aged;  Prospective Studies;  Psychometrics;  Quality of Life;  Reproducibility of Results;  Sickness Impact Profile;  Survivors;  Tamoxifen
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Authors: Reeve BB
Title: Special issues for building computerized-adaptive tests for measuring patient-reported outcomes: the National Institute of Health's investment in new technology.
Type: Journal Article
Date: 2006 Nov
Journal: Med Care 44(11 Suppl 3):S198-204
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Databases as Topic;  Health Status;  Humans;  National Institutes of Health (U.S.);  Outcome Assessment (Health Care);  Quality of Life;  Surveys and Questionnaires;  United States
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Authors: Reeve BB, Potosky AL, Willis GB
Title: Should function and bother be measured and reported separately for prostate cancer quality-of-life domains?
Type: Journal Article
Date: 2006 Sep
Journal: Urology 68(3):599-603
Topic(s): none
Tumor Site(s): Prostate
Data Source/Project/Initiative(s): Prostate Cancer Outcomes Study (PCOS)
Keywords: Humans;  Male;  Prostatic Neoplasms;  Quality of Life
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Authors: Malin JL, Ko C, Ayanian JZ, Harrington D, Nerenz DR, Kahn KL, Ganther-Urmie J, Catalano PJ, Zaslavsky AM, Wallace RB, Guadagnoli E, Arora NK, Roudier MD, Ganz PA
Title: Understanding cancer patients' experience and outcomes: development and pilot study of the Cancer Care Outcomes Research and Surveillance patient survey.
Type: Journal Article
Date: 2006 Aug
Journal: Support Care Cancer 14(8):837-48
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Cancer Care Outcomes Research & Surveillance Consortium (CanCORS)Cancer Research Network (CRN)
Keywords: Aged;  Cohort Studies;  Colorectal Neoplasms;  Comprehension;  Decision Making;  Feasibility Studies;  Female;  Health Services Research;  Health Status;  Health Surveys;  Humans;  Interviews as Topic;  Lung Neoplasms;  Male;  Middle Aged;  Pilot Projects;  Quality of Life;  Research Design;  Retrospective Studies;  Surveys and Questionnaires;  Treatment Outcome;  United States
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Authors: Han PK, Coates RJ, Uhler RJ, Breen N
Title: Decision making in prostate-specific antigen screening National Health Interview Survey, 2000.
Type: Journal Article
Date: 2006 May
Journal: Am J Prev Med 30(5):394-404
Topic(s): none
Tumor Site(s): Prostate
Data Source/Project/Initiative(s): National Health Interview Survey (NHIS) - Cancer Control Supplement (CCS)
Keywords: Adult;  Cross-Sectional Studies;  Decision Making;  Humans;  Interviews as Topic;  Male;  Mass Screening;  Middle Aged;  National Center for Health Statistics (U.S.);  Physician-Patient Relations;  Prostate-Specific Antigen;  Socioeconomic Factors;  United States
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Authors: Arnold RM, Han PK, Seltzer D
Title: Opioid contracts in chronic nonmalignant pain management: objectives and uncertainties.
Type: Journal Article
Date: 2006 Apr
Journal: Am J Med 119(4):292-6
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Analgesics, Opioid;  Chronic Disease;  Humans;  Informed Consent;  Opioid-Related Disorders;  Pain;  Patient Compliance;  Physician-Patient Relations;  Practice Patterns, Physicians';  Stereotyping;  Trust;  United States
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Authors: Pavletic SZ, Martin P, Lee SJ, Mitchell S, Jacobsohn D, Cowen EW, Turner ML, Akpek G, Gilman A, McDonald G, Schubert M, Berger A, Bross P, Chien JW, Couriel D, Dunn JP, Fall-Dickson J, Farrell A, Flowers ME, Greinix H, Hirschfeld S, Gerber L, Kim S, Knobler R, Lachenbruch PA, Miller FW, Mittleman B, Papadopoulos E, Parsons SK, Przepiorka D, Robinson M, Ward M, Reeve B, Rider LG, Shulman H, Schultz KR, Weisdorf D, Vogelsang GB, Response Criteria Working Group
Title: Measuring therapeutic response in chronic graft-versus-host disease: National Institutes of Health Consensus Development Project on Criteria for Clinical Trials in Chronic Graft-versus-Host Disease: IV. Response Criteria Working Group report.
Type: Journal Article
Date: 2006 Mar
Journal: Biol Blood Marrow Transplant 12(3):252-66
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adolescent;  Adult;  Child;  Child, Preschool;  Chronic Disease;  Clinical Trials as Topic;  Consensus Development Conferences, NIH as Topic;  Female;  Graft vs Host Disease;  Humans;  Male;  Medical Records;  Severity of Illness Index;  Time Factors;  Treatment Outcome;  United States
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Authors: Shaw BR, Hawkins R, Arora N, McTavish F, Pingree S, Gustafson DH
Title: An exploratory study of predictors of participation in a computer support group for women with breast cancer.
Type: Journal Article
Date: 2006 Jan-Feb
Journal: Comput Inform Nurs 24(1):18-27
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adaptation, Psychological;  Adult;  Attitude to Computers;  Breast Neoplasms;  Chi-Square Distribution;  Computer Literacy;  Computer User Training;  Educational Status;  Female;  Health Knowledge, Attitudes, Practice;  Health Services Needs and Demand;  Health Status;  Humans;  Illinois;  Indiana;  Internet;  Nursing Methodology Research;  Patient Participation;  Regression Analysis;  Self Efficacy;  Self-Help Groups;  Social Support;  Surveys and Questionnaires;  Wisconsin;  Women
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Authors: Alfano CM, McGregor BA, Kuniyuki A, Reeve BB, Bowen DJ, Wilder Smith A, Baumgartner KB, Bernstein L, Ballard-Barbash R, Malone KE, Ganz PA, McTiernan A
Title: Psychometric evaluation of the Brief Cancer Impact Assessment among breast cancer survivors.
Type: Journal Article
Date: 2006
Journal: Oncology 70(3):190-202
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;  Aged;  Breast Neoplasms;  Factor Analysis, Statistical;  Fear;  Female;  Health Status;  Humans;  Middle Aged;  Psychometrics;  Quality of Life;  Recurrence;  Reproducibility of Results;  Role;  Stress, Psychological;  Surveys and Questionnaires;  Survivors
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Authors: Finney Rutten LJ, Arora NK
Title: Importance of physicians' communication behavior across the cancer continuum
Type: Book Chapter
Date: 2006
Book Editors: O'Hair Dan, Kreps Gary L, Sparks Lisa Daniel
Book Title: Handbook of communication and cancer care
ISBN: 1572736828External Web Site Policy
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-centered Care & Communication
Keywords: none

Authors: Han Paul K, Arnold Robert M
Title: Physician Responsibility: The Authors' Response
Type: Journal Article
Date: 2006
Journal: Journal of palliative medicine 9(4):840-840
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Han PK, Moser RP, Klein WM
Title: Perceived ambiguity about cancer prevention recommendations: relationship to perceptions of cancer preventability, risk, and worry.
Type: Journal Article
Date: 2006
Journal: J Health Commun 11 Suppl 1():51-69
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Health Information National Trends Survey (HINTS)
Keywords: Adult;  Aged;  Anxiety;  Attitude to Health;  Female;  Health Surveys;  Humans;  Male;  Middle Aged;  Neoplasms;  Risk Assessment;  Social Perception;  Uncertainty;  United States
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Authors: Hesse BW, Nelson DE, Kreps GL, Croyle RT, Arora NK, Rimer BK, Viswanath K
Title: Trust and sources of health information: the impact of the Internet and its implications for health care providers: findings from the first Health Information National Trends Survey.
Type: Journal Article
Date: 2005 Dec 12-26
Journal: Arch Intern Med 165(22):2618-24
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Health Information National Trends Survey (HINTS)
Keywords: Adolescent;  Adult;  Age Factors;  Aged;  Attitude to Computers;  Attitude to Health;  Continental Population Groups;  Educational Status;  Female;  Health Education;  Humans;  Internet;  Logistic Models;  Male;  Middle Aged;  Neoplasms;  Physician-Patient Relations;  Sex Factors;  Surveys and Questionnaires;  Trust;  United States
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Authors: Han PK, Arnold RM
Title: Palliative care services, patient abandonment, and the scope of physicians' responsibilities in end-of-life care.
Type: Journal Article
Date: 2005 Dec
Journal: J Palliat Med 8(6):1238-45
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Aged;  Humans;  Male;  Middle Aged;  Palliative Care;  Pennsylvania;  Physician's Role;  Referral and Consultation;  Refusal to Treat;  Terminally Ill
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Authors: Arora NK, Ayanian JZ, Guadagnoli E
Title: Examining the relationship of patients' attitudes and beliefs with their self-reported level of participation in medical decision-making.
Type: Journal Article
Date: 2005 Sep
Journal: Med Care 43(9):865-72
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adult;  Attitude to Health;  Boston;  Decision Making;  Female;  Health Care Surveys;  Hospitals, Teaching;  Humans;  Male;  Middle Aged;  Models, Theoretical;  Outpatient Clinics, Hospital;  Outpatients;  Patient Participation;  Physician-Patient Relations;  Primary Health Care;  Psychometrics;  Self Efficacy;  Surveys and Questionnaires;  Trust
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Authors: Chang CH, Reeve BB
Title: Item response theory and its applications to patient-reported outcomes measurement.
Type: Journal Article
Date: 2005 Sep
Journal: Eval Health Prof 28(3):264-82
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Health Services Research;  Humans;  Mathematical Computing;  Models, Statistical;  Outcome Assessment (Health Care)
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Authors: Hamann HA, Somers TJ, Smith AW, Inslicht SS, Baum A
Title: Posttraumatic stress associated with cancer history and BRCA1/2 genetic testing.
Type: Journal Article
Date: 2005 Sep-Oct
Journal: Psychosom Med 67(5):766-72
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adult;  Aged;  BRCA1 Protein;  BRCA2 Protein;  Breast Neoplasms;  Comorbidity;  Family;  Female;  Genetic Predisposition to Disease;  Genetic Testing;  Heterozygote;  Humans;  Middle Aged;  Psychiatric Status Rating Scales;  Stress Disorders, Post-Traumatic
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Authors: Lai JS, Dineen K, Reeve BB, Von Roenn J, Shervin D, McGuire M, Bode RK, Paice J, Cella D
Title: An item response theory-based pain item bank can enhance measurement precision.
Type: Journal Article
Date: 2005 Sep
Journal: J Pain Symptom Manage 30(3):278-88
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adult;  Aged;  Data Interpretation, Statistical;  Female;  Humans;  Male;  Middle Aged;  Neoplasms;  Pain Measurement;  Pain, Intractable;  Prostatic Neoplasms;  Psychometrics;  Socioeconomic Factors
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Authors: Han PK, Keranen LB, Lescisin DA, Arnold RM
Title: The palliative care clinical evaluation exercise (CEX): an experience-based intervention for teaching end-of-life communication skills.
Type: Journal Article
Date: 2005 Jul
Journal: Acad Med 80(7):669-76
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adaptation, Psychological;  Aged;  Attitude of Health Personnel;  Attitude to Death;  Clinical Competence;  Educational Measurement;  Faculty, Medical;  Female;  Humans;  Internal Medicine;  Internship and Residency;  Male;  Palliative Care;  Physician-Patient Relations;  Pilot Projects;  Problem-Based Learning;  Terminal Care;  Truth Disclosure
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Authors: Eton DT, Lai JS, Cella D, Reeve BB, Talcott JA, Clark JA, McPherson CP, Litwin MS, Moinpour CM
Title: Data pooling and analysis to build a preliminary item bank: an example using bowel function in prostate cancer.
Type: Journal Article
Date: 2005 Jun
Journal: Eval Health Prof 28(2):142-59
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adult;  Aged;  Data Collection;  Humans;  Intestine, Large;  Male;  Middle Aged;  Prostatic Neoplasms;  Psychometrics;  Quality of Life;  Statistics, Nonparametric;  Surveys and Questionnaires
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Authors: Rutten LJ, Arora NK, Bakos AD, Aziz N, Rowland J
Title: Information needs and sources of information among cancer patients: a systematic review of research (1980-2003).
Type: Journal Article
Date: 2005 Jun
Journal: Patient Educ Couns 57(3):250-61
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adaptation, Psychological;  Australia;  Canada;  Data Collection;  Europe;  Great Britain;  Health Personnel;  Health Services Needs and Demand;  Hotlines;  Humans;  Information Services;  Internet;  Mass Media;  Neoplasms;  Patient Education as Topic;  Prognosis;  Recovery of Function;  Research Design;  Socioeconomic Factors;  Survivors;  Treatment Outcome;  United States
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Authors: Smith AW, Baum A, Wing RR
Title: Stress and weight gain in parents of cancer patients.
Type: Journal Article
Date: 2005 Feb
Journal: Int J Obes (Lond) 29(2):244-50
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adolescent;  Adult;  Body Weight;  Case-Control Studies;  Child;  Child, Preschool;  Chronic Disease;  Diet;  Energy Intake;  Family Health;  Female;  Humans;  Infant;  Male;  Middle Aged;  Motor Activity;  Neoplasms;  Parents;  Stress, Psychological;  Weight Gain
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Authors: Reeve BB
Title: Item response theory
Type: Book Chapter
Date: 2005
Book Editors: Best Samuel J, Radcliff Benjamin
Book Title: Polling America: an encyclopedia of public opinion
ISBN: 0313327017External Web Site Policy
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Smith AW, Chang S
Title: Commentary on Lahmann PH, Hoffmann K, Allen N, van Gils CH, Khaw KT, Tehard B, Berrino F, Tjonneland A, Bigaard J, Olsen A, Overvad K, Clavel-Chapelon F, Nagel G, Boeing H, Trichopoulos D, Economou G, Bellos G, Palli D, Tumino R, Panico S, Sacerdote C, Krogh V, Peeters PH, Bueno-de-Mesquita HB, Lund E, Ardanaz E, Amiano P, Pera G, Quiros JR, Martinez C, Tormo MJ, Wirfalt E, Berglund G, Hallmans G, Key TJ, Reeves G, Bingham S, Norat T, Biessy C, Kaaks R, Riboli E. Body size and breast cancer risk: findings from the European Prospective Investigation into Cancer And Nutrition (EPIC). Int J Cancer 2004 Sep 20;111(5):762-71.
Type: Journal Article
Date: 2005
Journal: Breast Dis Yearb Q 16():33-34
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none

Authors: Willis GB, Reeve BB, Barofsky I
Title: The Use of Cognitive Interviewing Techniques in Quality of Life and Patient-Reported Outcomes Measurement
Type: Book Chapter
Date: 2005
Book Editors: Lipscomb Joseph, Gotay Carolyn C, Snyder Claire
Book Title: Outcomes assessment in cancer
ISBN:
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Cancer Outcomes Measurement Working Group
Keywords: none

Authors: Gotay CC, Snyder C
Title: Outcomes Assessment in Cancer: Measures, Methods and Applications
Type: Book, Whole
Date: 2004 Dec
ISBN: 0521838908External Web Site Policy
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Nelson DE, Kreps GL, Hesse BW, Croyle RT, Willis G, Arora NK, Rimer BK, Viswanath KV, Weinstein N, Alden S
Title: The Health Information National Trends Survey (HINTS): development, design, and dissemination.
Type: Journal Article
Date: 2004 Sep-Oct
Journal: J Health Commun 9(5):443-4
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Health Information National Trends Survey (HINTS)
Keywords: Access to Information;  Adolescent;  Adult;  Humans;  Information Services;  National Institutes of Health (U.S.);  Neoplasms;  Surveys and Questionnaires;  United States
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Authors: Clauser SB
Title: Use of cancer performance measures in population health: a macro-level perspective.
Type: Journal Article
Date: 2004
Journal: J Natl Cancer Inst Monogr 142-54
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Cost of Illness;  Health Policy;  Humans;  Incidence;  Neoplasms;  Outcome Assessment (Health Care);  Patient Satisfaction;  Quality of Health Care;  Quality of Life;  Survival Rate
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Authors: Lipscomb J, Donaldson MS, Arora NK, Brown ML, Clauser SB, Potosky AL, Reeve BB, Rowland JH, Snyder CF, Taplin SH
Title: Cancer outcomes research.
Type: Journal Article
Date: 2004
Journal: J Natl Cancer Inst Monogr 178-97
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Cost of Illness;  Health Care Costs;  Health Services Research;  Humans;  Neoplasms;  Outcome Assessment (Health Care);  Patient Satisfaction;  Quality of Life
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Authors: Reeve BB, Fayers P
Title: Applying item response theory modeling for evaluating questionnaire item and scale properties
Type: Book Chapter
Date: 2004
Book Editors: Fayers Peter M, Hays Ron D
Book Title: Assessing quality of life in clinical trials: methods and practice
ISBN: 0198527691External Web Site Policy
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Reeve BB, Masse LC
Title: Item response theory modeling for questionnaire evaluation
Type: Book Chapter
Date: 2004
Book Editors: Presser S, Rothgeb JM, Couper MP, Lessler JT, Martin E, Martin J, Singer E
Book Title: Methods for testing and evaluating survey questionnaires
ISBN: 0471458414External Web Site Policy
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Arora NK
Title: Interacting with cancer patients: the significance of physicians' communication behavior.
Type: Journal Article
Date: 2003 Sep
Journal: Soc Sci Med 57(5):791-806
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-centered Care & Communication
Keywords: Communication;  Decision Making;  Humans;  Neoplasms;  Patient Participation;  Physician-Patient Relations;  Quality of Life;  Uncertainty
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Authors: Kreps GL, Arora NK, Nelson DE
Title: Consumer/provider communication research: directions for development.
Type: Journal Article
Date: 2003 May
Journal: Patient Educ Couns 50(1):3-4
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-centered Care & Communication
Keywords: Communication;  Forecasting;  Humans;  Needs Assessment;  Patient Selection;  Physician-Patient Relations;  Research;  Research Design
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Authors: Reeve BB
Title: Item response theory modeling in health outcomes measurement.
Type: Journal Article
Date: 2003 Apr
Journal: Expert Rev Pharmacoecon Outcomes Res 3(2):131-45
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Clauser SB, Bierman AS
Title: Significance of functional status data for payment and quality.
Type: Journal Article
Date: 2003 Spring
Journal: Health Care Financ Rev 24(3):1-12
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Activities of Daily Living;  Aged;  Delivery of Health Care, Integrated;  Disability Evaluation;  Episode of Care;  Female;  Frail Elderly;  Geriatric Assessment;  Health Status Indicators;  Humans;  Male;  Medicare;  Models, Organizational;  Prospective Payment System;  Total Quality Management;  United States
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Authors: Perfetto EM, Reeve B, Subedi P, Carlson AM, Stockwell-Morris L
Title: Measuring health status
Type: Book Chapter
Date: 2003
Book Editors: Grauer DW, Lee J, Odom TD, etal
Book Title: Pharmacoeconomics & outcomes
ISBN: 9781880401781External Web Site Policy
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none

Authors: Panter AT, Reeve BB
Title: Assessing tobacco beliefs among youth using item response theory models.
Type: Journal Article
Date: 2002 Nov
Journal: Drug Alcohol Depend 68 Suppl 1():S21-39
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adolescent;  Adult;  Attitude to Health;  Child;  Culture;  Female;  Health Behavior;  Humans;  Male;  Models, Statistical;  Smoking;  Surveys and Questionnaires
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Authors: Lipscomb J, Snyder CF
Title: The Outcomes of Cancer Outcomes Research: focusing on the National Cancer Institute's quality-of-care initiative.
Type: Journal Article
Date: 2002 Jun
Journal: Med Care 40(6 Suppl):III3-10
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Clinical Trials as Topic;  Health Maintenance Organizations;  Health Policy;  Humans;  Interinstitutional Relations;  National Institutes of Health (U.S.);  Neoplasms;  Outcome Assessment (Health Care);  Private Sector;  Public Sector;  Research Design;  SEER Program;  United States;  United States Agency for Healthcare Research and Quality
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Authors: Arora NK, Johnson P, Gustafson DH, McTavish F, Hawkins RP, Pingree S
Title: Barriers to information access, perceived health competence, and psychosocial health outcomes: test of a mediation model in a breast cancer sample.
Type: Journal Article
Date: 2002 May
Journal: Patient Educ Couns 47(1):37-46
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Access to Information;  Adaptation, Psychological;  Adult;  Breast Neoplasms;  Female;  Health Services Accessibility;  Humans;  Middle Aged;  Patient Education as Topic;  Regression Analysis;  Self Efficacy;  Surveys and Questionnaires;  Treatment Outcome;  United States
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Authors: Potosky AL, Reeve BB, Clegg LX, Hoffman RM, Stephenson RA, Albertsen PC, Gilliland FD, Stanford JL
Title: Quality of life following localized prostate cancer treated initially with androgen deprivation therapy or no therapy.
Type: Journal Article
Date: 2002 Mar 20
Journal: J Natl Cancer Inst 94(6):430-7
Topic(s): none
Tumor Site(s): Prostate
Data Source/Project/Initiative(s): Prostate Cancer Outcomes Study (PCOS)
Keywords: Adult;  Aged;  Aged, 80 and over;  Androgen Antagonists;  Health Status;  Humans;  Male;  Middle Aged;  Orchiectomy;  Patient Satisfaction;  Prostatic Neoplasms;  Quality of Life;  Sexual Behavior
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Authors: Brown ML, Knopf KB, Marcus S, Lipscomb J
Title: Economic analysis and clinical research
Type: Book Chapter
Date: 2002
Book Editors: Gallin John I
Book Title: Principles and practice of clinical research
ISBN: 0122740653External Web Site Policy
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Clauser S
Title: The use of performance measurement in evaluating quality in Medicare
Type: Book Chapter
Date: 2002
Book Editors: Preuss Klaus Jurgen, Rabiger Jutta, Sommer Jurg H, Andersen Hanfried H
Book Title: Managed care: Evaluation and Performance - Measurement integrierter Versorgungsmodelle: Stand der Entwicklung in der EU, der Schweiz und den USA
ISBN: 3794520998External Web Site Policy
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none

Authors: Arora NK, Gustafson DH, Hawkins RP, McTavish F, Cella DF, Pingree S, Mendenhall JH, Mahvi DM
Title: Impact of surgery and chemotherapy on the quality of life of younger women with breast carcinoma: a prospective study.
Type: Journal Article
Date: 2001 Sep 01
Journal: Cancer 92(5):1288-98
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adaptation, Psychological;  Adult;  Antineoplastic Agents;  Body Image;  Breast Neoplasms;  Female;  Humans;  Mastectomy;  Mastectomy, Segmental;  Middle Aged;  Patient Satisfaction;  Prospective Studies;  Quality of Life
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Authors: Donaldson MS
Title: Continuity of care: a reconceptualization.
Type: Journal Article
Date: 2001 Sep
Journal: Med Care Res Rev 58(3):255-90
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Continuity of Patient Care;  Health Services Research;  Home Care Agencies;  Humans;  Information Services;  Retrospective Studies;  United States
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Authors: Brown ML, Lipscomb J, Snyder C
Title: The burden of illness of cancer: economic cost and quality of life.
Type: Journal Article
Date: 2001
Journal: Annu Rev Public Health 22():91-113
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Cost of Illness;  Health Care Costs;  Health Planning;  Humans;  Medical Record Linkage;  Neoplasms;  Quality of Life;  SEER Program;  United States
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Authors: Rimer BK, Lipscomb J
Title: Enhancing the use of mammography: effectiveness and cost.
Type: Journal Article
Date: 2000 Sep-Oct
Journal: Eff Clin Pract 3(5):250-5
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Breast Neoplasms;  Cost-Benefit Analysis;  Female;  Humans;  Mammography;  Patient Acceptance of Health Care;  Quality-Adjusted Life Years;  Randomized Controlled Trials as Topic;  Reminder Systems;  United States
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Authors: Shariff-Marco S, Gee GC, Breen N, Willis G, Reeve BB, Grant D, Ponce NA, Krieger N, Landrine H, Williams DR, Alegria M, Mays VM, Johnson TP, Brown ER
Title: A mixed-methods approach to developing a self-reported racial/ethnic discrimination measure for use in multiethnic health surveys.
Type: Journal Article
Date:
Journal: Ethn Dis 19(4):447-53
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): California Health Interview Survey (CHIS) Cancer Control Items
Keywords: Cross-Cultural Comparison;  Data Collection;  Ethnic Groups;  Health Surveys;  Humans;  Prejudice;  Psychometrics
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