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Number of publications: 145

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Authors: Selim A, Rogers W, Qian S, Rothendler JA, Kent EE, Kazis LE
Title: A new algorithm to build bridges between two patient-reported health outcome instruments: the MOS SF-36® and the VR-12 Health Survey.
Type: Journal Article
Date: 2018 Aug
Journal: Qual Life Res 27(8):2195-2206
Topic(s): none
Tumor Site(s): Brain & Other Nervous System;  Breast;  Cervical;  Colorectal;  Corpus Uteri;  Esophagus;  Gastric;  Head and Neck;  Leukemia;  Liver;  Lung;  Lymphoma;  Multiple Myeloma;  Ovary;  Pancreas;  Prostate;  Renal;  Skin;  Testis;  Urinary Bladder
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: none
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Authors: Mollica MA, Weaver KE, McNeel TS, Kent EE
Title: Examining urban and rural differences in perceived timeliness of care among cancer patients: A SEER-CAHPS study.
Type: Journal Article
Date: 2018 Jun 07
Journal: Cancer
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-CAHPS Linked Data Resource
Keywords: none
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Authors: Halpern MT, Urato MP, Lines LM, Cohen JB, Arora NK, Kent EE
Title: Healthcare experience among older cancer survivors: Analysis of the SEER-CAHPS dataset.
Type: Journal Article
Date: 2018 May
Journal: J Geriatr Oncol 9(3):194-203
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-CAHPS Linked Data Resource
Keywords: none
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Authors: Smith AB, Jaeger B, Pinheiro LC, Edwards LJ, Tan HJ, Nielsen ME, Reeve BB
Title: Impact of bladder cancer on health-related quality of life.
Type: Journal Article
Date: 2018 Apr
Journal: BJU Int 121(4):549-557
Topic(s): none
Tumor Site(s): Urinary Bladder
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: none
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Authors: Mollica MA, Enewold LR, Lines LM, Halpern MT, Schumacher JR, Hays RD, Gibson JT, Schussler N, Kent EE
Title: Examining colorectal cancer survivors' surveillance patterns and experiences of care: a SEER-CAHPS study.
Type: Journal Article
Date: 2017 Oct
Journal: Cancer Causes Control 28(10):1133-1141
Topic(s): none
Tumor Site(s): Colorectal
Data Source/Project/Initiative(s): SEER-CAHPS Linked Data Resource
Keywords: Aged;  Cancer Survivors;  Colonoscopy;  Colorectal Neoplasms;  Continuity of Patient Care;  Female;  Humans;  Male;  Medicare;  Physician-Patient Relations;  Registries;  SEER Program;  United States
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Authors: Mollica MA, Lines LM, Halpern MT, Ramirez E, Schussler N, Urato M, Smith AW, Kent EE
Title: Patient experiences of cancer care: scoping review, future directions, and introduction of a new data resource: Surveillance Epidemiology and End Results-Consumer Assessment of Healthcare Providers and Systems (SEER-CAHPS)
Type: Journal Article
Date: 2017 Apr
Journal: Patient Experience Journal 4(1):103-121
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-CAHPS Linked Data Resource
Keywords: none
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Authors: Hays RD, Chawla N, Kent EE, Arora NK
Title: Measurement equivalence of the Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Medicare survey items between Whites and Asians.
Type: Journal Article
Date: 2017 Feb
Journal: Qual Life Res 26(2):311-318
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Cancer Research Network (CRN)
Keywords: Adolescent;  Aged;  Asian Continental Ancestry Group;  Ethnic Groups;  European Continental Ancestry Group;  Female;  Health Care Surveys;  Health Personnel;  Humans;  Male;  Medicare;  Quality of Life;  United States
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Authors: Stitzenberg KB, Chang Y, Smith AB, Meyers MO, Nielsen ME
Title: Impact of Location of Readmission on Outcomes After Major Cancer Surgery.
Type: Journal Article
Date: 2017 Feb
Journal: Ann Surg Oncol 24(2):319-329
Topic(s): none
Tumor Site(s): Esophagus;  Lung;  Pancreas;  Urinary Bladder
Data Source/Project/Initiative(s): SEER-Medicare Linked Database
Keywords: Aged;  Aged, 80 and over;  Female;  Follow-Up Studies;  Hospital Costs;  Hospital Mortality;  Humans;  Length of Stay;  Male;  Middle Aged;  Neoplasms;  Patient Outcome Assessment;  Patient Readmission;  Postoperative Complications;  Reoperation;  Retrospective Studies;  Survival Rate
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Authors: Halpern MT, Urato MP, Kent EE
Title: The health care experience of patients with cancer during the last year of life: Analysis of the SEER-CAHPS data set.
Type: Journal Article
Date: 2017 Jan 01
Journal: Cancer 123(2):336-344
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-CAHPS Linked Data Resource
Keywords: Aged;  Aged, 80 and over;  Female;  Health Care Surveys;  Humans;  Male;  Medicare;  National Cancer Institute (U.S.);  Neoplasms;  Outcome Assessment (Health Care);  Patient Care;  Patient Satisfaction;  Physicians;  Quality of Health Care;  SEER Program;  United States
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Authors: Kenzik KM, Kent EE, Martin MY, Bhatia S, Pisu M
Title: Chronic condition clusters and functional impairment in older cancer survivors: a population-based study.
Type: Journal Article
Date: 2016 Dec
Journal: J Cancer Surviv 10(6):1096-1103
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;  Aged, 80 and over;  Chronic Disease;  Female;  Humans;  Male;  Neoplasms;  Prevalence;  Research Design;  Surveys and Questionnaires;  Survivors
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Authors: Neuhouser ML, Smith AW, George SM, Gibson JT, Baumgartner KB, Baumgartner R, Duggan C, Bernstein L, McTiernan A, Ballard R
Title: Use of complementary and alternative medicine and breast cancer survival in the Health, Eating, Activity, and Lifestyle Study.
Type: Journal Article
Date: 2016 Dec
Journal: Breast Cancer Res Treat 160(3):539-546
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Aged;  Breast Neoplasms;  Combined Modality Therapy;  Complementary Therapies;  Exercise;  Feeding Behavior;  Female;  Humans;  Life Style;  Middle Aged;  Risk Factors;  SEER Program;  Treatment Outcome
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Authors: Litzelman K, Kent EE, Mollica M, Rowland JH
Title: How Does Caregiver Well-Being Relate to Perceived Quality of Care in Patients With Cancer? Exploring Associations and Pathways.
Type: Journal Article
Date: 2016 Oct 10
Journal: J Clin Oncol 34(29):3554-3561
Topic(s): none
Tumor Site(s): Colorectal;  Lung
Data Source/Project/Initiative(s): Cancer Care Outcomes Research & Surveillance Consortium (CanCORS)
Keywords: Adult;  Aged;  Caregivers;  Colorectal Neoplasms;  Depression;  Female;  Health Status;  Humans;  Lung Neoplasms;  Male;  Middle Aged;  Perception;  Quality of Health Care;  Surveys and Questionnaires
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Authors: Smith AW, Mitchell SA, K De Aguiar C, Moy C, Riley WT, Wagster MV, M Werner E
Title: News from the NIH: Person-centered outcomes measurement: NIH-supported measurement systems to evaluate self-assessed health, functional performance, and symptomatic toxicity.
Type: Journal Article
Date: 2016 Sep
Journal: Transl Behav Med 6(3):470-4
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes Measurement Information System (PROMIS);  Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: Humans;  National Institutes of Health (U.S.);  Outcome Assessment (Health Care);  Patient Reported Outcome Measures;  Patient-Centered Care;  Self Report;  United States
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Authors: Bæksted C, Nissen A, Pappot H, Bidstrup PE, Mitchell SA, Basch E, Dalton SO, Johansen C
Title: Danish Translation and Linguistic Validation of the U.S. National Cancer Institute's Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE).
Type: Journal Article
Date: 2016 Aug
Journal: J Pain Symptom Manage 52(2):292-7
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: Adult;  Aged;  Antineoplastic Agents;  Clinical Trials as Topic;  Female;  Humans;  Interviews as Topic;  Male;  Middle Aged;  National Cancer Institute (U.S.);  Neoplasms;  Patient Reported Outcome Measures;  Socioeconomic Factors;  Translating;  United States
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Authors: Arnold B, Mitchell SA, Lent L, Mendoza TR, Rogak LJ, Barragán NM, Willis G, Medina M, Lechner S, Penedo FJ, Harness JK, Basch EM, PRO-CTCAE Spanish Translation and Linguistic Validation Study Group
Title: Linguistic validation of the Spanish version of the National Cancer Institute's Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE).
Type: Journal Article
Date: 2016 Jul
Journal: Support Care Cancer 24(7):2843-51
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: Adult;  Aged;  Aged, 80 and over;  Drug-Related Side Effects and Adverse Reactions;  Female;  Humans;  Linguistics;  Male;  Middle Aged;  National Cancer Institute (U.S.);  Neoplasms;  Patient Reported Outcome Measures;  Self Report;  Surveys and Questionnaires;  United States;  Young Adult
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Authors: Flannery M, Mohile SG, Dale W, Arora NK, Azar L, Breslau ES, Cohen HJ, Dotan E, Eldadah BA, Leach CR, Mitchell SA, Rowland JH, Hurria A
Title: Interventions to improve the quality of life and survivorship of older adults with cancer: The funding landscape at NIH, ACS and PCORI.
Type: Journal Article
Date: 2016 Jul
Journal: J Geriatr Oncol 7(4):225-33
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: Aged;  Aging;  American Cancer Society;  Biomedical Research;  Cancer Survivors;  Humans;  National Cancer Institute (U.S.);  National Institute on Aging (U.S.);  National Institutes of Health (U.S.);  Neoplasms;  Patient Outcome Assessment;  Patient-Centered Care;  Quality of Life;  Research Support as Topic;  Survivorship;  United States
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Authors: Falchook AD, Green R, Knowles ME, Amdur RJ, Mendenhall W, Hayes DN, Grilley-Olson JE, Weiss J, Reeve BB, Mitchell SA, Basch EM, Chera BS
Title: Comparison of Patient- and Practitioner-Reported Toxic Effects Associated With Chemoradiotherapy for Head and Neck Cancer.
Type: Journal Article
Date: 2016 Jun 01
Journal: JAMA Otolaryngol Head Neck Surg 142(6):517-23
Topic(s): none
Tumor Site(s): Head and Neck
Data Source/Project/Initiative(s): Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: Activities of Daily Living;  Adult;  Aged;  Antineoplastic Agents;  Anxiety;  Attitude of Health Personnel;  Carcinoma, Squamous Cell;  Chemoradiotherapy;  Cisplatin;  Deglutition Disorders;  Fatigue;  Female;  Hoarseness;  Humans;  Male;  Middle Aged;  Oropharyngeal Neoplasms;  Pain;  Patient Reported Outcome Measures;  Prospective Studies;  Radiotherapy Dosage;  Radiotherapy, Intensity-Modulated;  Severity of Illness Index
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Authors: Bennett AV, Reeve BB, Basch EM, Mitchell SA, Meeneghan M, Battaglini CL, Smith-Ryan AE, Phillips B, Shea TC, Wood WA
Title: Evaluation of pedometry as a patient-centered outcome in patients undergoing hematopoietic cell transplant (HCT): a comparison of pedometry and patient reports of symptoms, health, and quality of life.
Type: Journal Article
Date: 2016 Mar
Journal: Qual Life Res 25(3):535-46
Topic(s): none
Tumor Site(s): Lung
Data Source/Project/Initiative(s): Patient-Reported Outcomes Measurement Information System (PROMIS);  Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: Accelerometry;  Activities of Daily Living;  Adolescent;  Adult;  Aged;  Cross-Sectional Studies;  Female;  Follow-Up Studies;  Health Status Indicators;  Hematopoietic Stem Cell Transplantation;  Humans;  Male;  Middle Aged;  Motor Activity;  Patient Outcome Assessment;  Quality of Life;  Self Report;  Young Adult
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Authors: Craig BM, Mitchell SA
Title: Examining the Value of Menopausal Symptom Relief Among US Women.
Type: Journal Article
Date: 2016 Mar-Apr
Journal: Value Health 19(2):158-66
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: Adult;  Aged;  Checklist;  Female;  Health Knowledge, Attitudes, Practice;  Health Status;  Humans;  Life Expectancy;  Linear Models;  Menopause;  Middle Aged;  Models, Econometric;  Patient Preference;  Quality of Life;  Quality-Adjusted Life Years;  Surveys and Questionnaires;  United States;  Women's Health
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Authors: Bennett AV, Dueck AC, Mitchell SA, Mendoza TR, Reeve BB, Atkinson TM, Castro KM, Denicoff A, Rogak LJ, Harness JK, Bearden JD, Bryant D, Siegel RD, Schrag D, Basch E, National Cancer Institute PRO-CTCAE Study Group
Title: Mode equivalence and acceptability of tablet computer-, interactive voice response system-, and paper-based administration of the U.S. National Cancer Institute's Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE).
Type: Journal Article
Date: 2016 Feb 19
Journal: Health Qual Life Outcomes 14():24
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: Adult;  Adverse Drug Reaction Reporting Systems;  Aged;  Antineoplastic Agents;  Chemoradiotherapy;  Computers, Handheld;  Cross-Over Studies;  Drug-Related Side Effects and Adverse Reactions;  Female;  Humans;  Male;  Middle Aged;  National Cancer Institute (U.S.);  Neoplasms;  Patient Outcome Assessment;  Radiation Injuries;  Radiotherapy;  Reproducibility of Results;  Self Report;  Terminology as Topic;  United States
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Authors: Kent EE, Malinoff R, Rozjabek HM, Ambs A, Clauser SB, Topor MA, Yuan G, Burroughs J, Rodgers AB, DeMichele K
Title: Revisiting the Surveillance Epidemiology and End Results Cancer Registry and Medicare Health Outcomes Survey (SEER-MHOS) Linked Data Resource for Patient-Reported Outcomes Research in Older Adults with Cancer.
Type: Journal Article
Date: 2016 Jan
Journal: J Am Geriatr Soc 64(1):186-92
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;  Aged, 80 and over;  Comorbidity;  Female;  Health Care Rationing;  Health Services for the Aged;  Health Status Disparities;  Humans;  Male;  Medical Record Linkage;  Medicare;  Neoplasms;  Patient Outcome Assessment;  Prevalence;  Quality Improvement;  Quality of Life;  SEER Program;  United States
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Authors: Wu XC, Prasad PK, Landry I, Harlan LC, Parsons HM, Lynch CF, Smith AW, Hamilton AS, Keegan TH, AYA HOPE Study Collaborative Group (Schwartz SM, Shellenberger M, Janes T, Lynch CF, West MM, Somers LA, Kato I, Bankowski A, Stock M, Cress R, Agha G, Cruz M, Wu XC, Chen V, Prasad PK, Keegan T, Allen L, Loya Z, Shelton-Herendeen L, Hamilton A, Zelaya J, Trinidad U, Harlan LC, Smith AW, Keel G, Eisenstein J, Potosky A, Bellizzi K, Albritton K, Link M, Friedman D, Zebrack B)
Title: Impact of the AYA HOPE Comorbidity Index on Assessing Health Care Service Needs and Health Status among Adolescents and Young Adults with Cancer.
Type: Journal Article
Date: 2015 Dec
Journal: Cancer Epidemiol Biomarkers Prev 24(12):1844-9
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Age Factors;  Comorbidity;  Female;  Health Services Needs and Demand;  Health Status;  Humans;  Logistic Models;  Male;  Neoplasms;  Quality of Life;  SEER Program;  United States;  Young Adult
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Authors: Shnorhavorian M, Harlan LC, Smith AW, Keegan TH, Lynch CF, Prasad PK, Cress RD, Wu XC, Hamilton AS, Parsons HM, Keel G, Charlesworth SE, Schwartz SM, AYA HOPE Study Collaborative Group (Schwartz SM, Shellenberger M, Janes T, Lynch CF, West MM, Somers LA, Kato I, Bankowski A, Stock M, Cress R, Agha G, Cruz M, Wu XC, Chen V, Prasad PK, Keegan TH, Allen L, Loya Z, Shelton-Herendeen L, Hamilton A, Zelaya J, Trinidad U, Harlan LC, Smith AW, Keel G, Eisenstein J, Potosky A, Bellizzi K, Albritton K, Link M, Friedman D, Zebrack B)
Title: Fertility preservation knowledge, counseling, and actions among adolescent and young adult patients with cancer: A population-based study.
Type: Journal Article
Date: 2015 Oct 01
Journal: Cancer 121(19):3499-506
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Counseling;  Female;  Fertility Preservation;  Humans;  Male;  Neoplasms;  Surveys and Questionnaires;  Young Adult
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Authors: Jensen RE, Potosky AL, Reeve BB, Hahn E, Cella D, Fries J, Smith AW, Keegan TH, Wu XC, Paddock L, Moinpour CM
Title: Validation of the PROMIS physical function measures in a diverse US population-based cohort of cancer patients.
Type: Journal Article
Date: 2015 Oct
Journal: Qual Life Res 24(10):2333-44
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes Measurement Information System (PROMIS)
Keywords: Adult;  Aged;  Aged, 80 and over;  Cohort Studies;  Ethnic Groups;  Fatigue;  Female;  Health Behavior;  Humans;  Lymphoma, Non-Hodgkin;  Male;  Middle Aged;  Pain;  Patients;  Psychometrics;  Quality of Life;  Reproducibility of Results;  Sickness Impact Profile;  Socioeconomic Factors;  Surveys and Questionnaires;  Treatment Outcome;  United States;  Young Adult
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Authors: de Moor JS, Alfano CM, Breen N, Kent EE, Rowland J
Title: Applying evidence from economic evaluations to translate cancer survivorship research into care.
Type: Journal Article
Date: 2015 Sep
Journal: J Cancer Surviv 9(3):560-6
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Cost-Benefit Analysis;  Delivery of Health Care;  Humans;  National Cancer Institute (U.S.);  Neoplasms;  Quality of Life;  Research;  Survival Rate;  Survivors;  United States
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Authors: DeRouen MC, Smith AW, Tao L, Bellizzi KM, Lynch CF, Parsons HM, Kent EE, Keegan TH, AYA HOPE Study Collaborative Group (Cress R, Agha G, Cruz M, Schwartz SM, Shellenberger M, Janes T, Kato I, Bankowski A, Stock M, Wu XC, Chen V, Tompkins B, Keegan T, Allen L, Loya Z, Shelton-Herendeen L, Lynch CF, West MM, Odle LA, Hamilton A, Zelaya J, Lo M, Trinidad U, Harlan LC, Smith AW, Eisenstein J, Keel G, Potosky A, Bellizzi K, Albritton K, Link M, Zebrack B)
Title: Cancer-related information needs and cancer's impact on control over life influence health-related quality of life among adolescents and young adults with cancer.
Type: Journal Article
Date: 2015 Sep
Journal: Psychooncology 24(9):1104-15
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Female;  Health Services Needs and Demand;  Humans;  Internal-External Control;  Male;  Neoplasms;  Patient Education as Topic;  Quality of Life;  Surveys and Questionnaires;  Survivors;  Young Adult
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Authors: Parsons HM, Harlan LC, Schmidt S, Keegan TH, Lynch CF, Kent EE, Wu XC, Schwartz SM, Chu RL, Keel G, Smith AW, AYA HOPE Collaborative Group (Cress R, Agha G, Cruz M, Schwartz SM, Shellenberger M, Janes T, Kato I, Bankowski A, Stock M, Wu XC, Chen V, Tompkins B, Keegan T, Allen L, Loya Z, Hussain K, Lynch CF, West MM, Odle LA, Hamilton A, Zelaya J, Lo M, Harlan LC, Smith AW, Stringer SM, Keel G, Potosky A, Bellizzi K, Albritton K, Link M, Zebrack B)
Title: Who Treats Adolescents and Young Adults with Cancer? A Report from the AYA HOPE Study.
Type: Journal Article
Date: 2015 Sep
Journal: J Adolesc Young Adult Oncol 4(3):141-50
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Cohort Studies;  Female;  Humans;  Male;  National Cancer Institute (U.S.);  Neoplasms;  Survivors;  United States;  Young Adult
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Authors: Weinfurt KP, Lin L, Bruner DW, Cyranowski JM, Dombeck CB, Hahn EA, Jeffery DD, Luecht RM, Magasi S, Porter LS, Reese JB, Reeve BB, Shelby RA, Smith AW, Willse JT, Flynn KE
Title: Development and Initial Validation of the PROMIS(®) Sexual Function and Satisfaction Measures Version 2.0.
Type: Journal Article
Date: 2015 Sep
Journal: J Sex Med 12(9):1961-74
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes Measurement Information System (PROMIS)
Keywords: Adult;  Aged;  Aged, 80 and over;  Anxiety;  Depression;  Female;  Focus Groups;  Humans;  Male;  Middle Aged;  Orgasm;  Penile Erection;  Personal Satisfaction;  Psychometrics;  Reproducibility of Results;  Sexual Behavior;  Surveys and Questionnaires
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Authors: Kent EE, Mitchell SA, Castro KM, DeWalt DA, Kaluzny AD, Hautala JA, Grad O, Ballard RM, McCaskill-Stevens WJ, Kramer BS, Clauser SB
Title: Cancer Care Delivery Research: Building the Evidence Base to Support Practice Change in Community Oncology.
Type: Journal Article
Date: 2015 Aug 20
Journal: J Clin Oncol 33(24):2705-11
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): NCI Community Oncology Research Program (NCORP)
Keywords: Delivery of Health Care;  Health Services Research;  Humans;  Medical Oncology;  Research
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Authors: Kent EE, Breen N, Lewis DR, de Moor JS, Smith AW, Seibel NL
Title: US trends in survival disparities among adolescents and young adults with non-Hodgkin lymphoma.
Type: Journal Article
Date: 2015 Aug
Journal: Cancer Causes Control 26(8):1153-62
Topic(s): none
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Continental Population Groups;  Ethnic Groups;  Female;  HIV Infections;  Health Status Disparities;  Humans;  Lymphoma, Non-Hodgkin;  Male;  Social Class;  United States;  Young Adult
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Authors: Berger AM, Mitchell SA, Jacobsen PB, Pirl WF
Title: Screening, evaluation, and management of cancer-related fatigue: Ready for implementation to practice?
Type: Journal Article
Date: 2015 May-Jun
Journal: CA Cancer J Clin 65(3):190-211
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes Measurement Information System (PROMIS)
Keywords: Adult;  Combined Modality Therapy;  Evidence-Based Medicine;  Fatigue;  Humans;  Neoplasms;  Practice Guidelines as Topic
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Authors: Chawla N, Urato M, Ambs A, Schussler N, Hays RD, Clauser SB, Zaslavsky AM, Walsh K, Schwartz M, Halpern M, Gaillot S, Goldstein EH, Arora NK
Title: Unveiling SEER-CAHPS®: a new data resource for quality of care research.
Type: Journal Article
Date: 2015 May
Journal: J Gen Intern Med 30(5):641-50
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Cancer Research Network (CRN)SEER-CAHPS Linked Data Resource
Keywords: Aged;  Databases, Factual;  Female;  Health Services Research;  Humans;  Male;  Medicare;  Middle Aged;  National Cancer Institute (U.S.);  Patient Satisfaction;  Program Evaluation;  Quality Assurance, Health Care;  SEER Program;  United States
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Authors: Steeves JA, Liu B, Willis G, Lee R, Smith AW
Title: Physicians' personal beliefs about weight-related care and their associations with care delivery: The U.S. National Survey of Energy Balance Related Care among Primary Care Physicians.
Type: Journal Article
Date: 2015 May-Jun
Journal: Obes Res Clin Pract 9(3):243-55
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Physician Surveys
Keywords: Adult;  Attitude of Health Personnel;  Body Mass Index;  Child;  Clinical Competence;  Combined Modality Therapy;  Delayed Diagnosis;  Diet, Reducing;  Energy Intake;  Energy Metabolism;  Health Care Surveys;  Humans;  Motor Activity;  Needs Assessment;  Obesity;  Overweight;  Pediatric Obesity;  Physician's Role;  Physicians, Primary Care;  United States;  Weight Loss
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Authors: Sohl SJ, Borowski LA, Kent EE, Smith AW, Oakley-Girvan I, Rothman RL, Arora NK
Title: Cancer survivors' disclosure of complementary health approaches to physicians: the role of patient-centered communication.
Type: Journal Article
Date: 2015 Mar 15
Journal: Cancer 121(6):900-7
Topic(s): none
Tumor Site(s): Colorectal;  Leukemia;  Urinary Bladder
Data Source/Project/Initiative(s): Assessment of Patients' Experience of Cancer Care (APECC) Study
Keywords: Adult;  Aged;  Aged, 80 and over;  Colorectal Neoplasms;  Communication;  Complementary Therapies;  Cross-Sectional Studies;  Data Collection;  Female;  Humans;  Leukemia;  Male;  Middle Aged;  Neoplasms;  Physician-Patient Relations;  Physicians;  Self Disclosure;  Surveys and Questionnaires;  Survivors;  Urinary Bladder Neoplasms;  Young Adult
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Authors: Tan HJ, Meyer AM, Kuo TM, Smith AB, Wheeler SB, Carpenter WR, Nielsen ME
Title: Provider-based research networks and diffusion of surgical technologies among patients with early-stage kidney cancer.
Type: Journal Article
Date: 2015 Mar 15
Journal: Cancer 121(6):836-43
Topic(s): none
Tumor Site(s): Renal
Data Source/Project/Initiative(s): SEER-Medicare Linked Database
Keywords: Aged;  Aged, 80 and over;  Cohort Studies;  Diffusion of Innovation;  Female;  Humans;  Kidney Neoplasms;  Laparoscopy;  Male;  National Cancer Institute (U.S.);  Neoplasm Staging;  Nephrectomy;  SEER Program;  Translational Medical Research;  United States
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Authors: Kent EE, Ambs A, Mitchell SA, Clauser SB, Smith AW, Hays RD
Title: Health-related quality of life in older adult survivors of selected cancers: data from the SEER-MHOS linkage.
Type: Journal Article
Date: 2015 Mar 01
Journal: Cancer 121(5):758-65
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;  Female;  Health Status;  Health Surveys;  Humans;  Male;  Mental Health;  Middle Aged;  Neoplasms;  Quality of Life;  SEER Program;  Surveys and Questionnaires;  United States
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Authors: Han X, Lin CC, Li C, de Moor JS, Rodriguez JL, Kent EE, Forsythe LP
Title: Association between serious psychological distress and health care use and expenditures by cancer history.
Type: Journal Article
Date: 2015 Feb 15
Journal: Cancer 121(4):614-22
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Medical Expenditure Panel Survey (MEPS) - Experiences with Cancer Survivorship Supplement
Keywords: Adult;  Aged;  Aged, 80 and over;  Comorbidity;  Female;  Health Expenditures;  Health Services;  Humans;  Male;  Middle Aged;  Neoplasms;  Stress, Psychological;  Survivors
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Authors: Shungin D, Winkler TW, Croteau-Chonka DC, Ferreira T, Locke AE, Mägi R, Strawbridge RJ, Pers TH, Fischer K, Justice AE, Workalemahu T, Wu JMW, Buchkovich ML, Heard-Costa NL, Roman TS, Drong AW, Song C, Gustafsson S, Day FR, Esko T, Fall T, Kutalik Z, Luan J, Randall JC, Scherag A, Vedantam S, Wood AR, Chen J, Fehrmann R, Karjalainen J, Kahali B, Liu CT, Schmidt EM, Absher D, Amin N, Anderson D, Beekman M, Bragg-Gresham JL, Buyske S, Demirkan A, Ehret GB, Feitosa MF, Goel A, Jackson AU, Johnson T, Kleber ME, Kristiansson K, Mangino M, Leach IM, Medina-Gomez C, Palmer CD, Pasko D, Pechlivanis S, Peters MJ, Prokopenko I, Stančáková A, Sung YJ, Tanaka T, Teumer A, Van Vliet-Ostaptchouk JV, Yengo L, Zhang W, Albrecht E, Ärnlöv J, Arscott GM, Bandinelli S, Barrett A, Bellis C, Bennett AJ, Berne C, Blüher M, Böhringer S, Bonnet F, Böttcher Y, Bruinenberg M, Carba DB, Caspersen IH, Clarke R, Daw EW, Deelen J, Deelman E, Delgado G, Doney AS, Eklund N, Erdos MR, Estrada K, Eury E, Friedrich N, Garcia ME, Giedraitis V, Gigante B, Go AS, Golay A, Grallert H, Grammer TB, Gräßler J, Grewal J, Groves CJ, Haller T, Hallmans G, Hartman CA, Hassinen M, Hayward C, Heikkilä K, Herzig KH, Helmer Q, Hillege HL, Holmen O, Hunt SC, Isaacs A, Ittermann T, James AL, Johansson I, Juliusdottir T, Kalafati IP, Kinnunen L, Koenig W, Kooner IK, Kratzer W, Lamina C, Leander K, Lee NR, Lichtner P, Lind L, Lindström J, Lobbens S, Lorentzon M, Mach F, Magnusson PK, Mahajan A, McArdle WL, Menni C, Merger S, Mihailov E, Milani L, Mills R, Moayyeri A, Monda KL, Mooijaart SP, Mühleisen TW, Mulas A, Müller G, Müller-Nurasyid M, Nagaraja R, Nalls MA, Narisu N, Glorioso N, Nolte IM, Olden M, Rayner NW, Renstrom F, Ried JS, Robertson NR, Rose LM, Sanna S, Scharnagl H, Scholtens S, Sennblad B, Seufferlein T, Sitlani CM, Smith AV, Stirrups K, Stringham HM, Sundström J, Swertz MA, Swift AJ, Syvänen AC, Tayo BO, Thorand B, Thorleifsson G, Tomaschitz A, Troffa C, van Oort FV, Verweij N, Vonk JM, Waite LL, Wennauer R, Wilsgaard T, Wojczynski MK, Wong A, Zhang Q, Zhao JH, Brennan EP, Choi M, Eriksson P, Folkersen L, Franco-Cereceda A, Gharavi AG, Hedman ÅK, Hivert MF, Huang J, Kanoni S, Karpe F, Keildson S, Kiryluk K, Liang L, Lifton RP, Ma B, McKnight AJ, McPherson R, Metspalu A, Min JL, Moffatt MF, Montgomery GW, Murabito JM, Nicholson G, Nyholt DR, Olsson C, Perry JR, Reinmaa E, Salem RM, Sandholm N, Schadt EE, Scott RA, Stolk L, Vallejo EE, Westra HJ, Zondervan KT, ADIPOGen Consortium, CARDIOGRAMplusC4D Consortium, CKDGen Consortium, GEFOS Consortium, GENIE Consortium, GLGC, ICBP, International Endogene Consortium, LifeLines Cohort Study, MAGIC Investigators, MuTHER Consortium, PAGE Consortium, ReproGen Consortium, Amouyel P, Arveiler D, Bakker SJ, Beilby J, Bergman RN, Blangero J, Brown MJ, Burnier M, Campbell H, Chakravarti A, Chines PS, Claudi-Boehm S, Collins FS, Crawford DC, Danesh J, de Faire U, de Geus EJ, Dörr M, Erbel R, Eriksson JG, Farrall M, Ferrannini E, Ferrières J, Forouhi NG, Forrester T, Franco OH, Gansevoort RT, Gieger C, Gudnason V, Haiman CA, Harris TB, Hattersley AT, Heliövaara M, Hicks AA, Hingorani AD, Hoffmann W, Hofman A, Homuth G, Humphries SE, Hyppönen E, Illig T, Jarvelin MR, Johansen B, Jousilahti P, Jula AM, Kaprio J, Kee F, Keinanen-Kiukaanniemi SM, Kooner JS, Kooperberg C, Kovacs P, Kraja AT, Kumari M, Kuulasmaa K, Kuusisto J, Lakka TA, Langenberg C, Le Marchand L, Lehtimäki T, Lyssenko V, Männistö S, Marette A, Matise TC, McKenzie CA, McKnight B, Musk AW, Möhlenkamp S, Morris AD, Nelis M, Ohlsson C, Oldehinkel AJ, Ong KK, Palmer LJ, Penninx BW, Peters A, Pramstaller PP, Raitakari OT, Rankinen T, Rao DC, Rice TK, Ridker PM, Ritchie MD, Rudan I, Salomaa V, Samani NJ, Saramies J, Sarzynski MA, Schwarz PE, Shuldiner AR, Staessen JA, Steinthorsdottir V, Stolk RP, Strauch K, Tönjes A, Tremblay A, Tremoli E, Vohl MC, Völker U, Vollenweider P, Wilson JF, Witteman JC, Adair LS, Bochud M, Boehm BO, Bornstein SR, Bouchard C, Cauchi S, Caulfield MJ, Chambers JC, Chasman DI, Cooper RS, Dedoussis G, Ferrucci L, Froguel P, Grabe HJ, Hamsten A, Hui J, Hveem K, Jöckel KH, Kivimaki M, Kuh D, Laakso M, Liu Y, März W, Munroe PB, Njølstad I, Oostra BA, Palmer CN, Pedersen NL, Perola M, Pérusse L, Peters U, Power C, Quertermous T, Rauramaa R, Rivadeneira F, Saaristo TE, Saleheen D, Sinisalo J, Slagboom PE, Snieder H, Spector TD, Stefansson K, Stumvoll M, Tuomilehto J, Uitterlinden AG, Uusitupa M, van der Harst P, Veronesi G, Walker M, Wareham NJ, Watkins H, Wichmann HE, Abecasis GR, Assimes TL, Berndt SI, Boehnke M, Borecki IB, Deloukas P, Franke L, Frayling TM, Groop LC, Hunter DJ, Kaplan RC, O'Connell JR, Qi L, Schlessinger D, Strachan DP, Thorsteinsdottir U, van Duijn CM, Willer CJ, Visscher PM, Yang J, Hirschhorn JN, Zillikens MC, McCarthy MI, Speliotes EK, North KE, Fox CS, Barroso I, Franks PW, Ingelsson E, Heid IM, Loos RJ, Cupples LA, Morris AP, Lindgren CM, Mohlke KL (Dastani Z, Hivert MF, Timpson N, Perry JR, Yuan X, Scott RA, Henneman P, Heid IM, Kizer JR, Lyytikainen LP, Fuchsberger C, Tanaka T, Morris AP, Small K, Isaacs A, Beekman M, Coassin S, Lohman K, Qi L, Kanoni S, Pankow JS, Uh HW, Wu Y, Bidulescu A, Rasmussen-Torvik LJ, Greenwood CM, Ladouceur M, Grimsby J, Manning AK, Liu CT, Kooner J, Mooser VE, Vollenweider P, Kapur KA, Chambers J, Wareham NJ, Langenberg C, Frants R, Willemsvan-vanDijk K, Oostra BA, Willems SM, Lamina C, Winkler T, Psaty BM, Tracy RP, Brody J, Chen I, Viikari J, Kähönen M, Pramstaller PP, Evans DM, St Pourcain B, Sattar N, Wood A, Bandinelli S, Carlson OD, Egan JM, Böhringer S, van Heemst D, Kedenko L, Kristiansson K, Nuotio ML, Loo BM, Harris T, Garcia M, Kanaya A, Haun M, Klopp N, Wichmann HE, Deloukas P, Katsareli E, Couper DJ, Duncan BB, Kloppenburg M, Adair LS, Borja JB, Wilson JG, Musani S, Guo X, Johnson T, Semple R, Teslovich TM, Allison MA, Redline S, Buxbaum SG, Mohlke KL, Meulenbelt I, Ballantyne CM, Dedoussis GV, Hu FB, Liu Y, Paulweber B, Spector TD, Slagboom P, Ferrucci L, Jula A, Perola M, Raitakari O, Florez JC, Salomaa V, Eriksson JG, Frayling TM, Hicks AA, Lehtimäki T, Smith GD, Siscovick DS, Kronenberg F, van Duijn C, Loos RJ, Waterworth DM, Meigs JB, Dupuis J, Richards JB, Deloukas P, Kanoni S, Willenborg C, Farrall M, Assimes TL, Thompson JR, Ingelsson E, Saleheen D, Erdmann J, Goldstein BA, Stirrups K, König IR, Cazier JB, Johansson Å, Hall AS, Lee JY, Willer CJ, Chambers JC, Esko T, Folkersen L, Goel A, Grundberg E, Havulinna AS, Ho WK, Hopewell JC, Eriksson N, Kleber ME, Kristiansson K, Lundmark P, Lyytikäinen LP, Rafelt S, Shungin D, Strawbridge RJ, Thorleifsson G, Tikkanen E, Van Zuydam N, Voight BF, Waite LL, Zhang W, Ziegler A, Absher D, Altshuler D, Balmforth AJ, Barroso I, Braund PS, Burgdorf C, Claudi-Boehm S, Cox D, Dimitriou M, Do R, Doney AS, El Mokhtari N, Eriksson P, Fischer K, Fontanillas P, Franco-Cereceda A, Gigante B, Groop L, Gustafsson S, Hager J, Hallmans G, Han BG, Hunt SE, Kang HM, Illig T, Kessler T, Knowles JW, Kolovou G, Kuusisto J, Langenberg C, Langford C, Leander K, Lokki ML, Lundmark A, McCarthy MI, Meisinger C, Melander O, Mihailov E, Maouche S, Morris AD, Müller-Nurasyid M, Nikus K, Peden JF, Rayner NW, Rasheed A, Rosinger S, Rubin D, Rumpf MP, Schäfer A, Sivananthan M, Song C, Stewart AF, Tan ST, Thorgeirsson G, van der Schoot CE, Wagner PJ, Wells GA, Wild PS, Yang TP, Amouyel P, Arveiler D, Basart H, Boehnke M, Boerwinkle E, Brambilla P, Cambien F, Cupples AL, de Faire U, Dehghan A, Diemert P, Epstein SE, Evans A, Ferrario MM, Ferrières J, Gauguier D, Go AS, Goodall AH, Gudnason V, Hazen S, Holm H, Iribarren C, Jang Y, Kähönen M, Kee F, Kim HS, Klopp N, Koenig W, Kratzer W, Kuulasmaa K, Laakso M, Laaksonen R, Lee JY, Lind L, Ouwehand WH, Parish S, Park JE, Pedersen NL, Peters A, Quertermous T, Rader DJ, Salomaa V, Schadt E, Shah SH, Sinisalo J, Stark K, Stefansson K, Trégouët DA, Virtamo J, Wallentin L, Wareham N, Zimmermann ME, Nieminen MS, Hengstenberg C, Sandhu MS, Pastinen T, Syvänen AC, Hovingh GK, Dedoussis G, Franks PW, Lehtimäki T, Metspalu A, Zalloua PA, Siegbahn A, Schreiber S, Ripatti S, Blankenberg SS, Perola M, Clarke R, Boehm BO, O'Donnell C, Reilly MP, März W, Collins R, Kathiresan S, Hamsten A, Kooner JS, Thorsteinsdottir U, Danesh J, Palmer CN, Roberts R, Watkins H, Schunkert H, Samani NJ, Pattaro C, Köttgen A, Teumer A, Garnaas M, Böger CA, Fuchsberger C, Olden M, Chen MH, Tin A, Taliun D, Li M, Gao X, Gorski M, Yang Q, Hundertmark C, Foster MC, O'Seaghdha CM, Glazer N, Isaacs A, Liu CT, Smith AV, O'Connell JR, Struchalin M, Tanaka T, Li G, Johnson AD, Gierman HJ, Feitosa M, Hwang SJ, Atkinson EJ, Lohman K, Cornelis MC, Johansson Å, Tönjes A, Dehghan A, Chouraki V, Holliday EG, Sorice R, Kutalik Z, Lehtimäki T, Esko T, Deshmukh H, Ulivi S, Chu AY, Murgia F, Trompet S, Imboden M, Kollerits B, Pistis G, Harris TB, Launer LJ, Aspelund T, Eiriksdottir G, Mitchell BD, Boerwinkle E, Schmidt H, Cavalieri M, Rao M, Hu FB, Demirkan A, Oostra BA, de Andrade M, Turner ST, Ding J, Andrews JS, Freedman BI, Koenig W, Illig T, Döring A, Wichmann H-, Kolcic I, Zemunik T, Boban M, Minelli C, Wheeler HE, Igl W, Zaboli G, Wild SH, Wright AF, Campbell H, Ellinghaus D, Nöthlings U, Jacobs G, Biffar R, Endlich K, Ernst F, Homuth G, Kroemer HK, Nauck M, Stracke S, Völker U, Völzke H, Kovacs P, Stumvoll M, Mägi R, Hofman A, Uitterlinden AG, Rivadeneira F, Aulchenko YS, Polasek O, Hastie N, Vitart V, Helmer C, Wang JJ, Ruggiero D, Bergmann S, Kähönen M, Viikari J, Nikopensius T, Province M, Ketkar S, Colhoun H, Doney A, Robino A, Giulianini F, Krämer BK, Portas L, Ford I, Buckley BM, Adam M, Thun GA, Paulweber B, Haun M, Sala C, Metzger M, Mitchell P, Ciullo M, Kim SK, Vollenweider P, Raitakari O, Metspalu A, Palmer C, Gasparini P, Pirastu M, Jukema JW, Probst-Hensch NM, Kronenberg F, Toniolo D, Gudnason V, Shuldiner AR, Coresh J, Schmidt R, Ferrucci L, Siscovick DS, van Duijn CM, Borecki I, Kardia SL, Liu Y, Curhan GC, Rudan I, Gyllensten U, Wilson JF, Franke A, Pramstaller PP, Rettig R, Prokopenko I, Witteman JC, Hayward C, Ridker P, Parsa A, Bochud M, Heid IM, Goessling W, Chasman DI, Kao W, Fox CS, Böger CA, Chen MH, Tin A, Olden M, Köttgen A, de Boer IH, Fuchsberger C, O'Seaghdha CM, Pattaro C, Teumer A, Liu CT, Glazer NL, Li M, O'Connell JR, Tanaka T, Peralta CA, Kutalik Z, Luan J, Zhao JH, Hwang SJ, Akylbekova E, Kramer H, van der Harst P, Smith AV, Lohman K, de Andrade M, Hayward C, Kollerits B, Tönjes A, Aspelund T, Ingelsson E, Eiriksdottir G, Launer LJ, Harris TB, Shuldiner AR, Mitchell BD, Arking DE, Franceschini N, Boerwinkle E, Egan J, Hernandez D, Reilly M, Townsend RR, Lumley T, Siscovick DS, Psaty BM, Kestenbaum B, Haritunians T, Bergmann S, Vollenweider P, Waeber G, Mooser V, Waterworth D, Johnson AD, Florez JC, Meigs JB, Lu X, Turner ST, Atkinson EJ, Leak TS, Aasarød K, Skorpen F, Syvänen AC, Illig T, Baumert J, Koenig W, Krämer BK, Devuyst O, Mychaleckyj JC, Minelli C, Bakker SJ, Kedenko L, Paulweber B, Coassin S, Endlich K, Kroemer HK, Biffar R, Stracke S, Völzke H, Stumvoll M, Mägi R, Campbell H, Vitart V, Hastie ND, Gudnason V, Kardia SL, Liu Y, Polasek O, Curhan G, Kronenberg F, Prokopenko I, Rudan I, Ärnlöv J, Hallan S, Navis G, Parsa A, Ferrucci L, Coresh J, Shlipak MG, Bull SB, Paterson AD, Wichmann H-, Wareham NJ, Loos RJ, Rotter JI, Pramstaller PP, Cupples L, Beckmann JS, Yang Q, Heid IM, Rettig R, Dreisbach AW, Bochud M, Fox CS, Kao WH, Estrada K, Styrkarsdottir U, Evangelou E, Hsu YH, Duncan EL, Ntzani EE, Oei L, Albagha OM, Amin N, Kemp JP, Koller DL, Li G, Liu CT, Minster RL, Moayyeri A, Vandenput L, Willner D, Xiao SM, Yerges-Armstrong LM, Zheng HF, Alonso N, Eriksson J, Kammerer CM, Kaptoge SK, Leo PJ, Thorleifsson G, Wilson SG, Wilson JF, Aalto V, Alen M, Aragaki AK, Aspelund T, Center JR, Dailiana Z, Duggan DJ, Garcia M, Garcia-Giralt N, Giroux S, Hallmans G, Hocking LJ, Husted LB, Jameson KA, Khusainova R, Kim GS, Kooperberg C, Koromila T, Kruk M, Laaksonen M, Lacroix AZ, Lee SH, Leung PC, Lewis JR, Masi L, Mencej-Bedrac S, Nguyen TV, Nogues X, Patel MS, Prezelj J, Rose LM, Scollen S, Siggeirsdottir K, Smith AV, Svensson O, Trompet S, Trummer O, van Schoor NM, Woo J, Zhu K, Balcells S, Brandi ML, Buckley BM, Cheng S, Christiansen C, Cooper C, Dedoussis G, Ford I, Frost M, Goltzman D, González-Macías J, Kähönen M, Karlsson M, Khusnutdinova E, Koh JM, Kollia P, Langdahl BL, Leslie WD, Lips P, Ljunggren Ö, Lorenc RS, Marc J, Mellström D, Obermayer-Pietsch B, Olmos JM, Pettersson-Kymmer U, Reid DM, Riancho JA, Ridker PM, Rousseau F, Slagboom PE, Tang NL, Urreizti R, Van Hul W, Viikari J, Zarrabeitia MT, Aulchenko YS, Castano-Betancourt M, Grundberg E, Herrera L, Ingvarsson T, Johannsdottir H, Kwan T, Li R, Luben R, Medina-Gómez C, Palsson ST, Reppe S, Rotter JI, Sigurdsson G, van Meurs JB, Verlaan D, Williams FM, Wood AR, Zhou Y, Gautvik KM, Pastinen T, Raychaudhuri S, Cauley JA, Chasman DI, Clark GR, Cummings SR, Danoy P, Dennison EM, Eastell R, Eisman JA, Gudnason V, Hofman A, Jackson RD, Jones G, Jukema JW, Khaw KT, Lehtimäki T, Liu Y, Lorentzon M, McCloskey E, Mitchell BD, Nandakumar K, Nicholson GC, Oostra BA, Peacock M, Pols H, Prince RL, Raitakari O, Reid IR, Robbins J, Sambrook PN, Sham PC, Shuldiner AR, Tylavsky FA, van Duijn CM, Wareham NJ, Cupples LA, Econs MJ, Evans DM, Harris TB, Kung AW, Psaty BM, Reeve J, Spector TD, Streeten EA, Zillikens MC, Thorsteinsdottir U, Ohlsson C, Karasik D, Richards JB, Brown MA, Stefansson K, Uitterlinden AG, Ralston SH, Ioannidis JP, Kiel DP, Rivadeneira F, Sandholm N, Salem RM, McKnight AJ, Brennan EP, Forsblom C, Isakova T, McKay GJ, Williams WW, Sadlier DM, Mäkinen VP, Swan EJ, Palmer C, Boright AP, Ahlqvist E, Deshmukh HA, Keller BJ, Huang H, Ahola A, Fagerholm E, Gordin D, Harjutsalo V, He B, Heikkilä O, Hietala K, Kytö J, Lahermo P, Lehto M, Österholm AM, Parkkonen M, Pitkäniemi J, Rosengård-Bärlund M, Saraheimo M, Sarti C, Söderlund J, Soro-Paavonen A, Syreeni A, Thorn LM, Tikkanen H, Tolonen N, Tryggvason K, Tuomilehto J, Wadén J, Gill GV, Prior S, Guiducci C, Mirel DB, Taylor A, Hosseini M, Parving HH, Rossing P, Tarnow L, Ladenvall C, Alhenc-Gelas F, Lefebvre P, Rigalleau V, Roussel R, Tregouet DA, Maestroni A, Maestroni S, Falhammar H, Gu T, Möllsten A, Cimponeriu D, Mihai I, Mota M, Mota E, Serafinceanu C, Stavarachi M, Hanson RL, Nelson RG, Kretzler M, Colhoun HM, Panduru NM, Gu H, Brismar K, Zerbini G, Hadjadj S, Marre M, Groop L, Lajer M, Bull SB, Waggott D, Paterson AD, Savage DA, Bain SC, Martin F, Hirschhorn JN, Godson C, Florez JC, Groop PH, Maxwell AP, Willer CJ, Schmidt EM, Sengupta S, Peloso GM, Gustafsson S, Kanoni S, Ganna A, Chen J, Buchkovich ML, Mora S, Beckmann JS, Bragg-Gresham JL, Chang HY, Demirkan A, Den Hertog HM, Do R, Donnelly LA, Ehret GB, Esko T, Feitosa MF, Ferreira T, Fischer K, Fontanillas P, Fraser RM, Freitag DF, Gurdasani D, Heikkilä K, Hyppönen E, Isaacs A, Jackson AU, Johansson Å, Johnson T, Kaakinen M, Kettunen J, Kleber ME, Li X, Luan J, Lyytikäinen LP, Magnusson PK, Mangino M, Mihailov E, Montasser ME, Müller-Nurasyid M, Nolte IM, O'Connell JR, Palmer CD, Perola M, Petersen AK, Sanna S, Saxena R, Service SK, Shah S, Shungin D, Sidore C, Song C, Strawbridge RJ, Surakka I, Tanaka T, Teslovich TM, Thorleifsson G, Van den Herik EG, Voight BF, Volcik KA, Waite LL, Wong A, Wu Y, Zhang W, Absher D, Asiki G, Barroso I, Been LF, Bolton JL, Bonnycastle LL, Brambilla P, Burnett MS, Cesana G, Dimitriou M, Doney AS, Döring A, Elliott P, Epstein SE, Eyjolfsson GI, Gigante B, Goodarzi MO, Grallert H, Gravito ML, Groves CJ, Hallmans G, Hartikainen AL, Hayward C, Hernandez D, Hicks AA, Holm H, Hung YJ, Illig T, Jones MR, Kaleebu P, Kastelein JJ, Khaw KT, Kim E, Klopp N, Komulainen P, Kumari M, Langenberg C, Lehtimäki T, Lin SY, Lindström J, Loos RJ, Mach F, McArdle WL, Meisinger C, Mitchell BD, Müller G, Nagaraja R, Narisu N, Nieminen TV, Nsubuga RN, Olafsson I, Ong KK, Palotie A, Papamarkou T, Pomilla C, Pouta A, Rader DJ, Reilly MP, Ridker PM, Rivadeneira F, Rudan I, Ruokonen A, Samani N, Scharnagl H, Seeley J, Silander K, Stančáková A, Stirrups K, Swift AJ, Tiret L, Uitterlinden AG, van Pelt L, Vedantam S, Wainwright N, Wijmenga C, Wild SH, Willemsen G, Wilsgaard T, Wilson JF, Young EH, Zhao JH, Adair LS, Arveiler D, Assimes TL, Bandinelli S, Bennett F, Bochud M, Boehm BO, Boomsma DI, Borecki IB, Bornstein SR, Bovet P, Burnier M, Campbell H, Chakravarti A, Chambers JC, Chen YD, Collins FS, Cooper RS, Danesh J, Dedoussis G, de Faire U, Feranil AB, Ferrières J, Ferrucci L, Freimer NB, Gieger C, Groop LC, Gudnason V, Gyllensten U, Hamsten A, Harris TB, Hingorani A, Hirschhorn JN, Hofman A, Hovingh G, Hsiung CA, Humphries SE, Hunt SC, Hveem K, Iribarren C, Järvelin MR, Jula A, Kähönen M, Kaprio J, Kesäniemi A, Kivimaki M, Kooner JS, Koudstaal PJ, Krauss RM, Kuh D, Kuusisto J, Kyvik KO, Laakso M, Lakka TA, Lind L, Lindgren CM, Martin NG, März W, McCarthy MI, McKenzie CA, Meneton P, Metspalu A, Moilanen L, Morris AD, Munroe PB, Njølstad I, Pedersen NL, Power C, Pramstaller PP, Price JF, Psaty BM, Quertermous T, Rauramaa R, Saleheen D, Salomaa V, Sanghera DK, Saramies J, Schwarz PE, Sheu WH, Shuldiner AR, Siegbahn A, Spector TD, Stefansson K, Strachan DP, Tayo BO, Tremoli E, Tuomilehto J, Uusitupa M, van Duijn CM, Vollenweider P, Wallentin L, Wareham NJ, Whitfield JB, Wolffenbuttel BH, Ordovas JM, Boerwinkle E, Palmer CN, Thorsteinsdottir U, Chasman DI, Rotter JI, Franks PW, Ripatti S, Cupples L, Sandhu MS, Rich SS, Boehnke M, Deloukas P, Kathiresan S, Mohlke KL, Ingelsson E, Abecasis GR, Abecasis G, Bochud M, Caulfield M, Chakravarti A, Chasman D, Ehret G, Elliott P, Johnson A, Johnson L, Larson M, Levy D, Munroe P, Newton-Cheh C, O'Reilly P, Palmas W, Psaty B, Rice K, Smith A, Snider H, Tobin M, Van Duijn C, Verwoert G, Ehret GB, Munroe PB, Rice KM, Bochud M, Johnson AD, Chasman DI, Smith AV, Tobin MD, Verwoert GC, Hwang SJ, Pihur V, Vollenweider P, O'Reilly PF, Amin N, Bragg-Gresham JL, Teumer A, Glazer NL, Launer L, Zhao JH, Aulchenko Y, Heath S, Sõber S, Parsa A, Luan J, Arora P, Dehghan A, Zhang F, Lucas G, Hicks AA, Jackson AU, Peden JF, Tanaka T, Wild SH, Rudan I, Igl W, Milaneschi Y, Parker AN, Fava C, Chambers JC, Fox ER, Kumari M, Go MJ, van der Harst P, Kao WH, Sjögren M, Vinay D, Alexander M, Tabara Y, Shaw-Hawkins S, Whincup PH, Liu Y, Shi G, Kuusisto J, Tayo B, Seielstad M, Sim X, Nguyen KD, Lehtimäki T, Matullo G, Wu Y, Gaunt TR, Onland-Moret NC, Cooper MN, Platou CG, Org E, Hardy R, Dahgam S, Palmen J, Vitart V, Braund PS, Kuznetsova T, Uiterwaal CS, Adeyemo A, Palmas W, Campbell H, Ludwig B, Tomaszewski M, Tzoulaki I, Palmer ND, Aspelund T, Garcia M, Chang YP, O'Connell JR, Steinle NI, Grobbee DE, Arking DE, Kardia SL, Morrison AC, Hernandez D, Najjar S, McArdle WL, Hadley D, Brown MJ, Connell JM, Hingorani AD, Day IN, Lawlor DA, Beilby JP, Lawrence RW, Clarke R, Collins R, Hopewell JC, Ongen H, Dreisbach AW, Li Y, Young JH, Bis JC, Kähönen M, Viikari J, Adair LS, Lee NR, Chen MH, Olden M, Pattaro C, Bolton JA, Köttgen A, Bergmann S, Mooser V, Chaturvedi N, Frayling TM, Islam M, Jafar TH, Erdmann J, Kulkarni SR, Bornstein SR, Grässler J, Groop L, Voight BF, Kettunen J, Howard P, Taylor A, Guarrera S, Ricceri F, Emilsson V, Plump A, Barroso I, Khaw KT, Weder AB, Hunt SC, Sun YV, Bergman RN, Collins FS, Bonnycastle LL, Scott LJ, Stringham HM, Peltonen L, Perola M, Vartiainen E, Brand SM, Staessen JA, Wang TJ, Burton PR, Artigas MS, Dong Y, Snieder H, Wang X, Zhu H, Lohman KK, Rudock ME, Heckbert SR, Smith NL, Wiggins KL, Doumatey A, Shriner D, Veldre G, Viigimaa M, Kinra S, Prabhakaran D, Tripathy V, Langefeld CD, Rosengren A, Thelle DS, Corsi AM, Singleton A, Forrester T, Hilton G, McKenzie CA, Salako T, Iwai N, Kita Y, Ogihara T, Ohkubo T, Okamura T, Ueshima H, Umemura S, Eyheramendy S, Meitinger T, Wichmann HE, Cho YS, Kim HL, Lee JY, Scott J, Sehmi JS, Zhang W, Hedblad B, Nilsson P, Smith GD, Wong A, Narisu N, Stanèáková A, Raffel LJ, Yao J, Kathiresan S, O'Donnell C, Schwartz SM, Ikram M, Longstreth W Jr, Mosley TH, Seshadri S, Shrine NR, Wain LV, Morken MA, Swift AJ, Laitinen J, Prokopenko I, Zitting P, Cooper JA, Humphries SE, Danesh J, Rasheed A, Goel A, Hamsten A, Watkins H, Bakker SJ, van Gilst WH, Janipalli CS, Mani K, Yajnik CS, Hofman A, Mattace-Raso FU, Oostra BA, Demirkan A, Isaacs A, Rivadeneira F, Lakatta EG, Orru M, Scuteri A, Ala-Korpela M, Kangas AJ, Lyytikäinen LP, Soininen P, Tukiainen T, Würtz P, Ong RT, Dörr M, Kroemer HK, Völker U, Völzke H, Galan P, Hercberg S, Lathrop M, Zelenika D, Deloukas P, Mangino M, Spector TD, Zhai G, Meschia JF, Nalls MA, Sharma P, Terzic J, Kumar M, Denniff M, Zukowska-Szczechowska E, Wagenknecht LE, Fowkes F, Charchar FJ, Schwarz PE, Hayward C, Guo X, Rotimi C, Bots ML, Brand E, Samani NJ, Polasek O, Talmud PJ, Nyberg F, Kuh D, Laan M, Hveem K, Palmer LJ, van der Schouw YT, Casas JP, Mohlke KL, Vineis P, Raitakari O, Ganesh SK, Wong TY, Tai ES, Cooper RS, Laakso M, Rao DC, Harris TB, Morris RW, Dominiczak AF, Kivimaki M, Marmot MG, Miki T, Saleheen D, Chandak GR, Coresh J, Navis G, Salomaa V, Han BG, Zhu X, Kooner JS, Melander O, Ridker PM, Bandinelli S, Gyllensten UB, Wright AF, Wilson JF, Ferrucci L, Farrall M, Tuomilehto J, Pramstaller PP, Elosua R, Soranzo N, Sijbrands EJ, Altshuler D, Loos RJ, Shuldiner AR, Gieger C, Meneton P, Uitterlinden AG, Wareham NJ, Gudnason V, Rotter JI, Rettig R, Uda M, Strachan DP, Witteman JC, Hartikainen AL, Beckmann JS, Boerwinkle E, Vasan RS, Boehnke M, Larson MG, Järvelin MR, Psaty BM, Abecasis GR, Chakravarti A, Elliott P, van Duijn CM, Newton-Cheh C, Levy D, Caulfield MJ, Johnson T, Anderson CA, Gordon S, Guo Q, Henders A, Lambert A, Lee SH, Kraft P, Kennedy SH, Macgregor S, Martin NG, Missmer SA, Montgomery GW, Morris AP, Nyholt DR, Painter JN, Roseman F, Treloar SA, Visscher PM, Wallace L, Zondervan KT, Alizadeh B, de Boer RA, Boezen HM, Bruinenberg M, Franke L, van der Harst P, Hillege HL, van der Klauw MM, Navis G, Ormel J, Postma DS, Rosmalen JG, Slaets JP, Snieder H, Stolk RP, Wolffenbuttel BH, Wijmenga C, Scott RA, Lagou V, Welch RP, Wheeler E, Montasser ME, Luan J, Mägi R, Strawbridge RJ, Rehnberg E, Gustafsson S, Kanoni S, Rasmussen-Torvik LJ, Yengo L, Lecoeur C, Shungin D, Sanna S, Sidore C, Johnson PC, Jukema JW, Johnson T, Mahajan A, Verweij N, Thorleifsson G, Hottenga JJ, Shah S, Smith AV, Sennblad B, Gieger C, Salo P, Perola M, Timpson NJ, Evans DM, St Pourcain B, Wu Y, Andrews JS, Hui J, Bielak LF, Zhao W, Horikoshi M, Navarro P, Isaacs A, O'Connell JR, Stirrups K, Vitart V, Hayward C, Esko T, Mihailov E, Fraser RM, Fall T, Voight BF, Raychaudhuri S, Chen H, Lindgren CM, Morris AP, Rayner NW, Robertson N, Rybin D, Liu CT, Beckmann JS, Willems SM, Chines PS, Jackson AU, Kang HM, Stringham HM, Song K, Tanaka T, Peden JF, Goel A, Hicks AA, An P, Müller-Nurasyid M, Franco-Cereceda A, Folkersen L, Marullo L, Jansen H, Oldehinkel AJ, Bruinenberg M, Pankow JS, North KE, Forouhi NG, Loos RJ, Edkins S, Varga TV, Hallmans G, Oksa H, Antonella M, Nagaraja R, Trompet S, Ford I, Bakker SJ, Kong A, Kumari M, Gigante B, Herder C, Munroe PB, Caulfield M, Antti J, Mangino M, Small K, Miljkovic I, Liu Y, Atalay M, Kiess W, James AL, Rivadeneira F, Uitterlinden AG, Palmer CN, Doney AS, Willemsen G, Smit JH, Campbell S, Polasek O, Bonnycastle LL, Hercberg S, Dimitriou M, Bolton JL, Fowkes GR, Kovacs P, Lindström J, Zemunik T, Bandinelli S, Wild SH, Basart HV, Rathmann W, Grallert H, Maerz W, Kleber ME, Boehm BO, Peters A, Pramstaller PP, Province MA, Borecki IB, Hastie ND, Rudan I, Campbell H, Watkins H, Farrall M, Stumvoll M, Ferrucci L, Waterworth DM, Bergman RN, Collins FS, Tuomilehto J, Watanabe RM, de Geus EJ, Penninx BW, Hofman A, Oostra B, Psaty BM, Vollenweider P, Wilson JF, Wright AF, Hovingh GK, Metspalu A, Uusitupa M, Magnusson PK, Kyvik KO, Kaprio J, Price JF, Dedoussis GV, Deloukas P, Meneton P, Lind L, Boehnke M, Shuldiner AR, van Duijn CM, Morris AD, Toenjes A, Peyser PA, Beilby JP, Körner A, Kuusisto J, Laakso M, Bornstein SR, Schwarz PE, Lakka TA, Rauramaa R, Adair LS, Smith GD, Spector TD, Illig T, de Faire U, Hamsten A, Gudnason V, Kivimaki M, Hingorani A, Keinanen-Kiukaanniemi SM, Saaristo TE, Boomsma D, Stefansson K, van der Harst P, Dupuis J, Pedersen NL, Sattar N, Harris TB, Cucca F, Ripatti S, Salomaa V, Mohlke KL, Balkau B, Froguel P, Pouta A, Jarvelin MR, Wareham NJ, Bouatia-Naji N, McCarthy MI, Franks PW, Meigs JB, Teslovich TM, Florez JC, Langenberg C, Ingelsson E, Prokopenko I, Barroso I, Ahmadi KR, Ainali C, Barrett A, Bataille V, Bell JT, Buil A, Deloukas P, Dermitzakis ET, Dimas AS, Durbin R, Glass D, Grundberg E, Hassanali N, Hedman ÅK, Ingle C, Keildson S, Knowles D, Krestyaninova M, Lindgren CM, Lowe CE, McCarthy MI, Meduri E, di Meglio P, Min JL, Montgomery SB, Nestle FO, Nica AC, Nisbet J, O'Rahilly S, Parts L, Potter S, Sekowska M, Shin SY, Small KS, Soranzo N, Spector TD, Surdulescu G, Travers ME, Tsaprouni L, Tsoka S, Wilk A, Yang TP, Zondervan KT, Matise T, Buyske S, Higashio J, Williams R, Nato A, Ambite JL, Deelman E, Manolio T, Hindorff L, North KE, Heiss G, Taylor K, Franceschini N, Avery C, Graff M, Lin D, Quibrera M, Cochran B, Kao L, Umans J, Cole S, MacCluer J, Person S, Pankow J, Gross M, Boerwinkle E, Fornage M, Durda P, Jenny N, Patsy B, Arnold A, Buzkova P, Crawford D, Haines J, Murdock D, Glenn K, Brown-Gentry K, Thornton-Wells T, Dumitrescu L, Jeff J, Bush WS, Mitchell SL, Goodloe R, Wilson S, Boston J, Malinowski J, Restrepo N, Oetjens M, Fowke J, Zheng W, Spencer K, Ritchie M, Pendergrass S, Le Marchand L, Wilkens L, Park L, Tiirikainen M, Kolonel L, Lim U, Cheng I, Wang H, Shohet R, Haiman C, Stram D, Henderson B, Monroe K, Schumacher F, Kooperberg C, Peters U, Anderson G, Carlson C, Prentice R, LaCroix A, Wu C, Carty C, Gong J, Rosse S, Young A, Haessler J, Kocarnik J, Lin Y, Jackson R, Duggan D, Kuller L, Stolk L, Perry JR, Chasman DI, He C, Mangino M, Sulem P, Barbalic M, Broer L, Byrne EM, Ernst F, Esko T, Franceschini N, Gudbjartsson DF, Hottenga JJ, Kraft P, McArdle PF, Porcu E, Shin SY, Smith AV, van Wingerden S, Zhai G, Zhuang W, Albrecht E, Alizadeh BZ, Aspelund T, Bandinelli S, Lauc LB, Beckmann JS, Boban M, Boerwinkle E, Broekmans FJ, Burri A, Campbell H, Chanock SJ, Chen C, Cornelis MC, Corre T, Coviello AD, d'Adamo P, Davies G, de Faire U, de Geus EJ, Deary IJ, Dedoussis GV, Deloukas P, Ebrahim S, Eiriksdottir G, Emilsson V, Eriksson JG, Fauser BC, Ferreli L, Ferrucci L, Fischer K, Folsom AR, Garcia ME, Gasparini P, Gieger C, Glazer N, Grobbee DE, Hall P, Haller T, Hankinson SE, Hass M, Hayward C, Heath AC, Hofman A, Ingelsson E, Janssens AC, Johnson AD, Karasik D, Kardia SL, Keyzer J, Kiel DP, Kolcic I, Kutalik Z, Lahti J, Lai S, Laisk T, Laven JS, Lawlor DA, Liu J, Lopez LM, Louwers YV, Magnusson PK, Marongiu M, Martin NG, Klaric IM, Masciullo C, McKnight B, Medland SE, Melzer D, Mooser V, Navarro P, Newman AB, Nyholt DR, Onland-Moret NC, Palotie A, Paré G, Parker AN, Pedersen NL, Peeters PH, Pistis G, Plump AS, Polasek O, Pop VJ, Psaty BM, Räikkönen K, Rehnberg E, Rotter JI, Rudan I, Sala C, Salumets A, Scuteri A, Singleton A, Smith JA, Snieder H, Soranzo N, Stacey SN, Starr JM, Stathopoulou MG, Stirrups K, Stolk RP, Styrkarsdottir U, Sun YV, Tenesa A, Thorand B, Toniolo D, Tryggvadottir L, Tsui K, Ulivi S, van Dam RM, van der Schouw YT, van Gils CH, van Nierop P, Vink JM, Visscher PM, Voorhuis M, Waeber G, Wallaschofski H, Wichmann HE, Widen E, Wijnands-van Gent CJ, Willemsen G, Wilson JF, Wolffenbuttel BH, Wright AF, Yerges-Armstrong LM, Zemunik T, Zgaga L, Zillikens MC, Zygmunt M, Arnold AM, Boomsma DI, Buring JE, Crisponi L, Demerath EW, Gudnason V, Harris TB, Hu FB, Hunter DJ, Launer LJ, Metspalu A, Montgomery GW, Oostra BA, Ridker PM, Sanna S, Schlessinger D, Spector TD, Stefansson K, Streeten EA, Thorsteinsdottir U, Uda M, Uitterlinden AG, van Duijn CM, Völzke H, Murray A, Murabito JM, Visser JA, Lunetta KL, Elks CE, Perry JR, Sulem P, Chasman DI, Franceschini N, He C, Lunetta KL, Visser JA, Byrne EM, Cousminer DL, Gudbjartsson DF, Esko T, Feenstra B, Hottenga JJ, Koller DL, Kutalik Z, Lin P, Mangino M, Marongiu M, McArdle PF, Smith AV, Stolk L, van Wingerden SW, Zhao JH, Albrecht E, Corre T, Ingelsson E, Hayward C, Magnusson PK, Smith EN, Ulivi S, Warrington NM, Zgaga L, Alavere H, Amin N, Aspelund T, Bandinelli S, Barroso I, Berenson GS, Bergmann S, Blackburn H, Boerwinkle E, Buring JE, Busonero F, Campbell H, Chanock SJ, Chen W, Cornelis MC, Couper D, Coviello AD, d'Adamo P, de Faire U, de Geus EJ, Deloukas P, Döring A, Smith GD, Easton DF, Eiriksdottir G, Emilsson V, Eriksson J, Ferrucci L, Folsom AR, Foroud T, Garcia M, Gasparini P, Geller F, Gieger C, Gudnason V, Hall P, Hankinson SE, Ferreli L, Heath AC, Hernandez DG, Hofman A, Hu FB, Illig T, Järvelin MR, Johnson AD, Karasik D, Khaw KT, Kiel DP, Kilpeläinen TO, Kolcic I, Kraft P, Launer LJ, Laven JS, Li S, Liu J, Levy D, Martin NG, McArdle WL, Melbye M, Mooser V, Murray JC, Murray SS, Nalls MA, Navarro P, Nelis M, Ness AR, Northstone K, Oostra BA, Peacock M, Palmer LJ, Palotie A, Paré G, Parker AN, Pedersen NL, Peltonen L, Pennell CE, Pharoah P, Polasek O, Plump AS, Pouta A, Porcu E, Rafnar T, Rice JP, Ring SM, Rivadeneira F, Rudan I, Sala C, Salomaa V, Sanna S, Schlessinger D, Schork NJ, Scuteri A, Segrè AV, Shuldiner AR, Soranzo N, Sovio U, Srinivasan SR, Strachan DP, Tammesoo ML, Tikkanen E, Toniolo D, Tsui K, Tryggvadottir L, Tyrer J, Uda M, van Dam RM, van Meurs JB, Vollenweider P, Waeber G, Wareham NJ, Waterworth DM, Weedon MN, Wichmann H, Willemsen G, Wilson JF, Wright AF, Young L, Zhai G, Zhuang WV, Bierut LJ, Boomsma D, Boyd HA, Crisponi L, Demerath EW, van Duijn CM, Econs MJ, Harris TB, Hunter DJ, Loos RJ, Metspalu A, Montgomery GW, Ridker PM, Spector TD, Streeten EA, Stefansson K, Thorsteinsdottir U, Uitterlinden AG, Widen E, Murabito JM, Ong KK, Murray A)
Title: New genetic loci link adipose and insulin biology to body fat distribution.
Type: Journal Article
Date: 2015 Feb 12
Journal: Nature 518(7538):187-196
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Cancer Research Network (CRN)
Keywords: Adipocytes;  Adipogenesis;  Adipose Tissue;  Age Factors;  Body Fat Distribution;  Body Mass Index;  Continental Population Groups;  Epigenesis, Genetic;  Europe;  Female;  Genome, Human;  Genome-Wide Association Study;  Humans;  Insulin;  Insulin Resistance;  Male;  Models, Biological;  Neovascularization, Physiologic;  Obesity;  Polymorphism, Single Nucleotide;  Quantitative Trait Loci;  Sex Characteristics;  Transcription, Genetic;  Waist-Hip Ratio
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Authors: Kirsch M, Mitchell SA, Dobbels F, Stussi G, Basch E, Halter JP, De Geest S
Title: Linguistic and content validation of a German-language PRO-CTCAE-based patient-reported outcomes instrument to evaluate the late effect symptom experience after allogeneic hematopoietic stem cell transplantation.
Type: Journal Article
Date: 2015 Feb
Journal: Eur J Oncol Nurs 19(1):66-74
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: Adult;  Aged;  Female;  Germany;  Hematopoietic Stem Cell Transplantation;  Humans;  Leukemia;  Linguistics;  Male;  Middle Aged;  Patient Outcome Assessment;  Reproducibility of Results;  Self Report;  Socioeconomic Factors;  Symptom Assessment;  Translating;  Young Adult
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Authors: Walling AM, Weeks JC, Kahn KL, Tisnado D, Keating NL, Dy SM, Arora NK, Mack JW, Pantoja PM, Malin JL
Title: Symptom prevalence in lung and colorectal cancer patients.
Type: Journal Article
Date: 2015 Feb
Journal: J Pain Symptom Manage 49(2):192-202
Topic(s): none
Tumor Site(s): Colorectal;  Lung
Data Source/Project/Initiative(s): Cancer Care Outcomes Research & Surveillance Consortium (CanCORS)
Keywords: Adult;  Aged;  Aged, 80 and over;  Cohort Studies;  Colorectal Neoplasms;  Comorbidity;  Disease Progression;  Female;  Humans;  Logistic Models;  Lung Neoplasms;  Male;  Middle Aged;  Multivariate Analysis;  Prevalence;  Severity of Illness Index;  Surveys and Questionnaires;  United States;  Young Adult
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Authors: Nguyen AB, Chawla N, Noone AM, Srinivasan S
Title: Disaggregated data and beyond: future queries in cancer control research.
Type: Journal Article
Date: 2014 Nov
Journal: Cancer Epidemiol Biomarkers Prev 23(11):2266-72
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Cancer Research Network (CRN)
Keywords: Asian Americans;  Biomedical Research;  Financing, Government;  Health Policy;  Health Status Disparities;  Humans;  Minority Groups;  National Cancer Institute (U.S.);  Neoplasms;  Socioeconomic Factors;  Statistics as Topic;  United States
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Authors: Potosky AL, Harlan LC, Albritton K, Cress RD, Friedman DL, Hamilton AS, Kato I, Keegan TH, Keel G, Schwartz SM, Seibel NL, Shnorhavorian M, West MM, Wu XC, AYA HOPE Study Collaborative Group (Schwartz SM, Shellenberger M, Janes T, Lynch CF, West MM, Somers LA, Kato I, Bankowski A, Stock M, Cress R, Agha G, Cruz M, Wu XC, Chen V, Prasad PK, Keegan T, Allen L, Loya Z, Shelton-Herendeen L, Hamilton A, Zelaya J, Trinidad U, Harlan LC, Smith AW, Keel G, Eisenstein J, Potosky A, Bellizzi K, Albritton K, Link M, Friedman D, Zebrack B)
Title: Use of appropriate initial treatment among adolescents and young adults with cancer.
Type: Journal Article
Date: 2014 Nov
Journal: J Natl Cancer Inst 106(11):
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Female;  Germinoma;  Hodgkin Disease;  Humans;  Logistic Models;  Lymphoma, Non-Hodgkin;  Male;  Neoplasms;  Precursor Cell Lymphoblastic Leukemia-Lymphoma;  Quality of Health Care;  Registries;  Retrospective Studies;  SEER Program;  Sarcoma;  United States;  Young Adult
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Authors: Chawla N, Yabroff KR, Mariotto A, McNeel TS, Schrag D, Warren JL
Title: Limited validity of diagnosis codes in Medicare claims for identifying cancer metastases and inferring stage.
Type: Journal Article
Date: 2014 Sep
Journal: Ann Epidemiol 24(9):666-2
Topic(s): none
Tumor Site(s): Breast;  Colorectal;  Lung
Data Source/Project/Initiative(s): SEER-Medicare Linked DatabaseCancer Research Network (CRN)
Keywords: Aged;  Aged, 80 and over;  Breast Neoplasms;  Clinical Coding;  Colorectal Neoplasms;  Female;  Humans;  Insurance Claim Review;  International Classification of Diseases;  Lung Neoplasms;  Male;  Medicare;  Multivariate Analysis;  Neoplasm Staging;  Predictive Value of Tests;  Regression Analysis;  Reproducibility of Results;  SEER Program;  Socioeconomic Factors;  United States
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Authors: Togawa K, Ma H, Sullivan-Halley J, Neuhouser ML, Imayama I, Baumgartner KB, Smith AW, Alfano CM, McTiernan A, Ballard-Barbash R, Bernstein L
Title: Risk factors for self-reported arm lymphedema among female breast cancer survivors: a prospective cohort study.
Type: Journal Article
Date: 2014 Aug 22
Journal: Breast Cancer Res 16(4):414
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;  Aged;  Arm;  Breast Neoplasms;  Cohort Studies;  Female;  Humans;  Incidence;  Lymphedema;  Middle Aged;  Prospective Studies;  Risk Factors;  Self Report;  Survivors;  Young Adult
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Authors: Parsons HM, Schmidt S, Harlan LC, Kent EE, Lynch CF, Smith AW, Keegan TH, AYA HOPE Collaborative
Title: Young and uninsured: Insurance patterns of recently diagnosed adolescent and young adult cancer survivors in the AYA HOPE study.
Type: Journal Article
Date: 2014 Aug 01
Journal: Cancer 120(15):2352-60
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adult;  Age Factors;  Female;  Humans;  Insurance Coverage;  Male;  Medically Uninsured;  Neoplasms;  Patient Protection and Affordable Care Act;  SEER Program;  Survivors;  United States;  Young Adult
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Authors: Guy GP Jr, Yabroff KR, Ekwueme DU, Smith AW, Dowling EC, Rechis R, Nutt S, Richardson LC
Title: Estimating the health and economic burden of cancer among those diagnosed as adolescents and young adults.
Type: Journal Article
Date: 2014 Jun
Journal: Health Aff (Millwood) 33(6):1024-31
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Health Economics Research on Cancer Interagency Consortium (HEROiC)Medical Expenditure Panel Survey (MEPS) - Experiences with Cancer Survivorship Supplement
Keywords: Adolescent;  Adult;  Age Factors;  Cost of Illness;  Disability Evaluation;  Female;  Health Care Costs;  Health Expenditures;  Health Services Accessibility;  Humans;  Long-Term Care;  Male;  Neoplasms;  Sick Leave;  Survivors;  United States;  Young Adult
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Authors: Keegan TH, Tao L, DeRouen MC, Wu XC, Prasad P, Lynch CF, Shnorhavorian M, Zebrack BJ, Chu R, Harlan LC, Smith AW, Parsons HM, AYA HOPE Study Collaborative Group (Cress R, Agha G, Cruz M, Schwartz SM, Shellenberger M, Janes T, Kato I, Bankowski A, Stock M, Wu XC, Chen V, Tompkins B, Keegan T, Allen L, Loya Z, Shelton-Herendeen L, Lynch CF, West MM, Odle LA, Hamilton A, Zelaya J, Lo M, Trinidad U, Harlan LC, Smith AW, Eisenstein J, Keel G, Potosky A, Bellizzi K, Albritton K, Link M, Zebrack B)
Title: Medical care in adolescents and young adult cancer survivors: what are the biggest access-related barriers?
Type: Journal Article
Date: 2014 Jun
Journal: J Cancer Surviv 8(2):282-92
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Female;  Health Services Accessibility;  Health Status;  Humans;  Insurance, Health;  Logistic Models;  Male;  Neoplasms;  Survivors;  Young Adult
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Authors: Kepka D, Smith A, Zeruto C, Yabroff KR
Title: Is provider type associated with cancer screening and prevention: advanced practice registered nurses, physician assistants, and physicians.
Type: Journal Article
Date: 2014 Mar 31
Journal: BMC Cancer 14():233
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): National Health Interview Survey (NHIS) - Cancer Control Supplement (CCS)
Keywords: Attitude of Health Personnel;  Early Detection of Cancer;  Humans;  Mass Screening;  Neoplasms;  Nurses;  Patient Compliance;  Patient Protection and Affordable Care Act;  Physician Assistants;  Physicians, Primary Care;  Smoking
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Authors: Hays RD, Reeve BB, Smith AW, Clauser SB
Title: Associations of cancer and other chronic medical conditions with SF-6D preference-based scores in Medicare beneficiaries.
Type: Journal Article
Date: 2014 Mar
Journal: Qual Life Res 23(2):385-91
Topic(s): none
Tumor Site(s): Breast;  Colorectal;  Corpus Uteri;  Lung;  Lymphoma;  Prostate;  Renal;  Skin;  Urinary Bladder
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;  Aged, 80 and over;  Chronic Disease;  Comorbidity;  Female;  Health Surveys;  Humans;  Male;  Medicare;  Neoplasms;  Quality of Life;  SEER Program;  Sickness Impact Profile;  United States
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Authors: Hay JL, Atkinson TM, Reeve BB, Mitchell SA, Mendoza TR, Willis G, Minasian LM, Clauser SB, Denicoff A, O'Mara A, Chen A, Bennett AV, Paul DB, Gagne J, Rogak L, Sit L, Viswanath V, Schrag D, Basch E, NCI PRO-CTCAE Study Group (Geoghegan C, Sloan JA, Cleeland CS, Abernethy AP, Bruner DW, Barz A, Dueck AC, Li Y)
Title: Cognitive interviewing of the US National Cancer Institute's Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE).
Type: Journal Article
Date: 2014 Feb
Journal: Qual Life Res 23(1):257-69
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: Adverse Drug Reaction Reporting Systems;  Antineoplastic Agents;  Cognition Disorders;  Drug Labeling;  Drug-Related Side Effects and Adverse Reactions;  Female;  Humans;  Interview, Psychological;  Male;  National Cancer Institute (U.S.);  Neoplasms;  Outcome and Process Assessment (Health Care);  Psychometrics;  Reproducibility of Results;  Self Report;  Terminology as Topic;  United States
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Authors: Kent EE, Mitchell SA, Oakley-Girvan I, Arora NK
Title: The importance of symptom surveillance during follow-up care of leukemia, bladder, and colorectal cancer survivors.
Type: Journal Article
Date: 2014 Jan
Journal: Support Care Cancer 22(1):163-72
Topic(s): none
Tumor Site(s): Colorectal;  Leukemia;  Urinary Bladder
Data Source/Project/Initiative(s): Assessment of Patients' Experience of Cancer Care (APECC) Study
Keywords: Colorectal Neoplasms;  Female;  Follow-Up Studies;  Humans;  Leukemia;  Male;  Middle Aged;  Neoplasm Recurrence, Local;  Quality of Life;  Self Report;  Survivors;  Symptom Assessment;  Urinary Bladder Neoplasms
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Authors: Klabunde CN, Clauser SB, Liu B, Pronk NP, Ballard-Barbash R, Huang TT, Smith AW
Title: Organization of primary care practice for providing energy balance care.
Type: Journal Article
Date: 2014 Jan-Feb
Journal: Am J Health Promot 28(3):e67-80
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Physician Surveys
Keywords: Body Mass Index;  Data Collection;  Diet;  Energy Metabolism;  Humans;  Motor Activity;  Obesity;  Practice Patterns, Physicians';  Primary Health Care;  Surveys and Questionnaires;  United States
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Authors: Zebrack B, Kent EE, Keegan TH, Kato I, Smith AW, AYA HOPE Study Collaborative Group (Cress R, Agha G, Cruz M, Schwartz S, Shellenberger M, Janes T, Kato I, Bankowski A, Stock M, Wu XC, Chen V, Tompkins B, Keegan T, Allen L, Loya Z, Hussain K, Lynch C, West M, Odle L, Hamilton A, Zelaya J, Lo M, Trinidad U, Harlan L, Wilder Smith A, Eisenstein J, Keel G, Potosky A, Bellizzi K, Albritton K, Friedman D, Link M, Zebrack B)
Title: "Cancer sucks," and other ponderings by adolescent and young adult cancer survivors.
Type: Journal Article
Date: 2014
Journal: J Psychosoc Oncol 32(1):1-15
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Attitude to Health;  Cohort Studies;  Data Collection;  Female;  Humans;  Male;  Neoplasms;  Patient Satisfaction;  Qualitative Research;  Survivors;  Young Adult
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Authors: Arora NK, Jensen RE, Sulayman N, Hamilton AS, Potosky AL
Title: Patient-physician communication about health-related quality-of-life problems: are non-Hodgkin lymphoma survivors willing to talk?
Type: Journal Article
Date: 2013 Nov 01
Journal: J Clin Oncol 31(31):3964-70
Topic(s): none
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Experience of Care & Health Outcomes of Survivors of Non-Hodgkin's Lymphoma (ECHOS-NHL) Study
Keywords: Adult;  Aged;  Cross-Sectional Studies;  Female;  Humans;  Lymphoma, Non-Hodgkin;  Male;  Middle Aged;  Physician-Patient Relations;  Quality of Life;  Survivors
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Authors: Stover AM, Reeve BB, Piper BF, Alfano CM, Smith AW, Mitchell SA, Bernstein L, Baumgartner KB, McTiernan A, Ballard-Barbash R
Title: Deriving clinically meaningful cut-scores for fatigue in a cohort of breast cancer survivors: a Health, Eating, Activity, and Lifestyle (HEAL) Study.
Type: Journal Article
Date: 2013 Nov
Journal: Qual Life Res 22(9):2279-92
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Aged;  Breast Neoplasms;  Cohort Studies;  Fatigue;  Female;  Health Status;  Humans;  Middle Aged;  Quality of Life;  Reference Values;  Survivors
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Authors: George SM, McTiernan A, Villaseñor A, Alfano CM, Irwin ML, Neuhouser ML, Baumgartner RN, Baumgartner KB, Bernstein L, Smith AW, Ballard-Barbash R
Title: Disentangling the body weight-bone mineral density association among breast cancer survivors: an examination of the independent roles of lean mass and fat mass.
Type: Journal Article
Date: 2013 Oct 25
Journal: BMC Cancer 13():497
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adipose Tissue;  Adult;  Aged;  Aged, 80 and over;  Body Composition;  Body Weight;  Bone Density;  Breast Neoplasms;  Female;  Humans;  Middle Aged;  New Mexico;  Risk Factors;  SEER Program;  Survivors;  Washington
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Authors: Forsythe LP, Parry C, Alfano CM, Kent EE, Leach CR, Haggstrom DA, Ganz PA, Aziz N, Rowland JH
Title: Use of survivorship care plans in the United States: associations with survivorship care.
Type: Journal Article
Date: 2013 Oct 16
Journal: J Natl Cancer Inst 105(20):1579-87
Topic(s): none
Tumor Site(s): Breast;  Colorectal
Data Source/Project/Initiative(s): Physician Surveys
Keywords: Adult;  Aged;  Continuity of Patient Care;  Cross-Sectional Studies;  Female;  Health Care Surveys;  Humans;  Interprofessional Relations;  Logistic Models;  Male;  Medical Oncology;  Middle Aged;  Multivariate Analysis;  National Cancer Institute (U.S.);  Neoplasms;  Patient Care Planning;  Physicians, Primary Care;  Practice Patterns, Physicians';  Quality of Health Care;  Surveys and Questionnaires;  Survivors;  United States
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Authors: Kent EE, Forsythe LP, Yabroff KR, Weaver KE, de Moor JS, Rodriguez JL, Rowland JH
Title: Are survivors who report cancer-related financial problems more likely to forgo or delay medical care?
Type: Journal Article
Date: 2013 Oct 15
Journal: Cancer 119(20):3710-7
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): National Health Interview Survey (NHIS) - Cancer Control Supplement (CCS)
Keywords: Adult;  Aged;  Delivery of Health Care;  Female;  Follow-Up Studies;  Health Expenditures;  Health Services Accessibility;  Humans;  Male;  Middle Aged;  Neoplasms;  Patient Preference;  Prognosis;  Survivors;  Withholding Treatment
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Authors: Wood WA, Deal AM, Reeve BB, Abernethy AP, Basch E, Mitchell SA, Shatten C, Hie Kim Y, Whitley J, Serody JS, Shea T, Battaglini C
Title: Cardiopulmonary fitness in patients undergoing hematopoietic SCT: a pilot study.
Type: Journal Article
Date: 2013 Oct
Journal: Bone Marrow Transplant 48(10):1342-9
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma
Data Source/Project/Initiative(s): Patient-Reported Outcomes Measurement Information System (PROMIS);  Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: Adult;  Aged;  Cardiovascular Physiological Phenomena;  Exercise Test;  Female;  Hematopoietic Stem Cell Transplantation;  Humans;  Male;  Middle Aged;  Oxygen Consumption;  Pilot Projects;  Quality of Life;  Transplantation Conditioning;  Transplantation, Homologous
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Authors: Dowling EC, Chawla N, Forsythe LP, de Moor J, McNeel T, Rozjabek HM, Ekwueme DU, Yabroff KR
Title: Lost productivity and burden of illness in cancer survivors with and without other chronic conditions.
Type: Journal Article
Date: 2013 Sep 15
Journal: Cancer 119(18):3393-401
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Health Economics Research on Cancer Interagency Consortium (HEROiC)Medical Expenditure Panel Survey (MEPS) - Experiences with Cancer Survivorship Supplement
Keywords: Adolescent;  Adult;  Aged;  Aged, 80 and over;  Chronic Disease;  Cost of Illness;  Female;  Humans;  Male;  Middle Aged;  Neoplasms;  Quality of Life;  Survivors;  United States;  Young Adult
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Authors: Mazor KM, Gaglio B, Nekhlyudov L, Alexander GL, Stark A, Hornbrook MC, Walsh K, Boggs J, Lemay CA, Firneno C, Biggins C, Blosky MA, Arora NK
Title: Assessing patient-centered communication in cancer care: stakeholder perspectives.
Type: Journal Article
Date: 2013 Sep
Journal: J Oncol Pract 9(5):e186-93
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-centered Care & Communication;  Cancer Research Network (CRN)
Keywords: Adult;  Aged;  Aged, 80 and over;  Communication;  Delivery of Health Care;  Family;  Humans;  Middle Aged;  Neoplasms;  Patient-Centered Care;  Physician-Patient Relations;  Professional-Family Relations;  Qualitative Research;  Quality Assurance, Health Care;  Self Report;  Surveys and Questionnaires
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Authors: Barile JP, Reeve BB, Smith AW, Zack MM, Mitchell SA, Kobau R, Cella DF, Luncheon C, Thompson WW
Title: Monitoring population health for Healthy People 2020: evaluation of the NIH PROMIS® Global Health, CDC Healthy Days, and satisfaction with life instruments.
Type: Journal Article
Date: 2013 Aug
Journal: Qual Life Res 22(6):1201-11
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes Measurement Information System (PROMIS)
Keywords: Adult;  Centers for Disease Control and Prevention (U.S.);  Factor Analysis, Statistical;  Female;  Health Status;  Healthy People Programs;  Humans;  Male;  Mental Health;  Middle Aged;  National Institutes of Health (U.S.);  Patient Outcome Assessment;  Personal Satisfaction;  Program Evaluation;  Quality of Life;  United States;  Young Adult
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Authors: Han PK, Kobrin S, Breen N, Joseph DA, Li J, Frosch DL, Klabunde CN
Title: National evidence on the use of shared decision making in prostate-specific antigen screening.
Type: Journal Article
Date: 2013 Jul-Aug
Journal: Ann Fam Med 11(4):306-14
Topic(s): none
Tumor Site(s): Prostate
Data Source/Project/Initiative(s): National Health Interview Survey (NHIS) - Cancer Control Supplement (CCS)
Keywords: Adult;  Aged;  Attitude to Health;  Biomarkers, Tumor;  Decision Making;  Early Detection of Cancer;  Humans;  Male;  Mass Screening;  Middle Aged;  Patient Navigation;  Patient Participation;  Prevalence;  Prostate-Specific Antigen;  Prostatic Neoplasms;  Risk Factors;  United States
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Authors: Smith AW, Bellizzi KM, Keegan TH, Zebrack B, Chen VW, Neale AV, Hamilton AS, Shnorhavorian M, Lynch CF
Title: Health-related quality of life of adolescent and young adult patients with cancer in the United States: the Adolescent and Young Adult Health Outcomes and Patient Experience study.
Type: Journal Article
Date: 2013 Jun 10
Journal: J Clin Oncol 31(17):2136-45
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Female;  Humans;  Male;  Neoplasms;  Quality of Life;  Treatment Outcome;  United States;  Young Adult
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Authors: Forsythe LP, Kent EE, Weaver KE, Buchanan N, Hawkins NA, Rodriguez JL, Ryerson AB, Rowland JH
Title: Receipt of psychosocial care among cancer survivors in the United States.
Type: Journal Article
Date: 2013 Jun 01
Journal: J Clin Oncol 31(16):1961-9
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): National Health Interview Survey (NHIS) - Cancer Control Supplement (CCS)
Keywords: Adult;  African Americans;  Aged;  Counseling;  European Continental Ancestry Group;  Female;  Health Services Needs and Demand;  Hispanic Americans;  Humans;  Logistic Models;  Male;  Middle Aged;  Multivariate Analysis;  Neoplasms;  Patient Satisfaction;  Stress, Psychological;  Survivors;  United States
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Authors: George SM, Smith AW, Alfano CM, Bowles HR, Irwin ML, McTiernan A, Bernstein L, Baumgartner KB, Ballard-Barbash R
Title: The association between television watching time and all-cause mortality after breast cancer.
Type: Journal Article
Date: 2013 Jun
Journal: J Cancer Surviv 7(2):247-52
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Antineoplastic Agents, Hormonal;  Breast Neoplasms;  Cause of Death;  Comorbidity;  Exercise;  Female;  Humans;  Middle Aged;  Mortality;  Motor Activity;  Proportional Hazards Models;  Prospective Studies;  Risk Factors;  SEER Program;  Sedentary Lifestyle;  Socioeconomic Factors;  Surveys and Questionnaires;  Survivors;  Tamoxifen;  Television;  Time Factors
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Authors: Kent EE, Smith AW, Keegan TH, Lynch CF, Wu XC, Hamilton AS, Kato I, Schwartz SM, Harlan LC
Title: Talking About Cancer and Meeting Peer Survivors: Social Information Needs of Adolescents and Young Adults Diagnosed with Cancer.
Type: Journal Article
Date: 2013 Jun
Journal: J Adolesc Young Adult Oncol 2(2):44-52
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: none
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Authors: Mason C, Alfano CM, Smith AW, Wang CY, Neuhouser ML, Duggan C, Bernstein L, Baumgartner KB, Baumgartner RN, Ballard-Barbash R, McTiernan A
Title: Long-term physical activity trends in breast cancer survivors.
Type: Journal Article
Date: 2013 Jun
Journal: Cancer Epidemiol Biomarkers Prev 22(6):1153-61
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Breast Neoplasms;  Ethnic Groups;  Exercise;  Female;  Follow-Up Studies;  Health Behavior;  Humans;  Middle Aged;  Neoplasm Staging;  Prognosis;  Prospective Studies;  Survival Rate;  Survivors;  Time Factors
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Authors: Hamilton AS, Miller MF, Arora NK, Bellizzi KM, Rowland JH
Title: Predictors of use of complementary and alternative medicine by non-hodgkin lymphoma survivors and relationship to quality of life.
Type: Journal Article
Date: 2013 May
Journal: Integr Cancer Ther 12(3):225-35
Topic(s): none
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Experience of Care & Health Outcomes of Survivors of Non-Hodgkin's Lymphoma (ECHOS-NHL) Study
Keywords: Aged;  Complementary Therapies;  Cross-Sectional Studies;  Data Collection;  Female;  Humans;  Los Angeles;  Lymphoma, Non-Hodgkin;  Male;  Mental Health;  Middle Aged;  Quality of Life;  Survivors
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Authors: Duggan C, Wang CY, Neuhouser ML, Xiao L, Smith AW, Reding KW, Baumgartner RN, Baumgartner KB, Bernstein L, Ballard-Barbash R, McTiernan A
Title: Associations of insulin-like growth factor and insulin-like growth factor binding protein-3 with mortality in women with breast cancer.
Type: Journal Article
Date: 2013 Mar 01
Journal: Int J Cancer 132(5):1191-200
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;  Aged;  Aged, 80 and over;  Body Mass Index;  Breast Neoplasms;  California;  Cohort Studies;  Female;  Humans;  Insulin-Like Growth Factor Binding Protein 3;  Insulin-Like Growth Factor I;  Middle Aged;  New Mexico;  Proportional Hazards Models;  Prospective Studies;  Risk Factors;  SEER Program;  Washington
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Authors: Fouad MN, Lee JY, Catalano PJ, Vogt TM, Zafar SY, West DW, Simon C, Klabunde CN, Kahn KL, Weeks JC, Kiefe CI
Title: Enrollment of patients with lung and colorectal cancers onto clinical trials.
Type: Journal Article
Date: 2013 Mar
Journal: J Oncol Pract 9(2):e40-7
Topic(s): none
Tumor Site(s): Colorectal;  Lung
Data Source/Project/Initiative(s): Cancer Care Outcomes Research & Surveillance Consortium (CanCORS)Cancer Research Network (CRN)
Keywords: Adult;  Aged;  Aged, 80 and over;  Cancer Care Facilities;  Clinical Trials as Topic;  Colorectal Neoplasms;  Data Collection;  Demography;  Female;  Humans;  Lung Neoplasms;  Male;  Medical Oncology;  Middle Aged;  Practice Patterns, Physicians';  Sex Factors;  Specialization;  Young Adult
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Authors: Jensen RE, Arora NK, Bellizzi KM, Rowland JH, Hamilton AS, Aziz NM, Potosky AL
Title: Health-related quality of life among survivors of aggressive non-Hodgkin lymphoma.
Type: Journal Article
Date: 2013 Feb 01
Journal: Cancer 119(3):672-80
Topic(s): none
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Experience of Care & Health Outcomes of Survivors of Non-Hodgkin's Lymphoma (ECHOS-NHL) Study
Keywords: Adult;  Aged;  Aged, 80 and over;  Cognition;  Female;  Health Status;  Humans;  Lymphoma, Non-Hodgkin;  Male;  Middle Aged;  Neoplasm Invasiveness;  Quality of Life;  Self Efficacy;  Survivors
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Authors: Buchanan ND, King JB, Rodriguez JL, White A, Trivers KF, Forsythe LP, Kent EE, Rowland JH, Sabatino SA
Title: Changes among US Cancer Survivors: Comparing Demographic, Diagnostic, and Health Care Findings from the 1992 and 2010 National Health Interview Surveys.
Type: Journal Article
Date: 2013
Journal: ISRN Oncol 2013():238017
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): National Health Interview Survey (NHIS) - Cancer Control Supplement (CCS)
Keywords: none
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Authors: Butler EN, Chawla N, Lund J, Harlan LC, Warren JL, Yabroff KR
Title: Patterns of colorectal cancer care in the United States and Canada: a systematic review.
Type: Journal Article
Date: 2013
Journal: J Natl Cancer Inst Monogr 2013(46):13-35
Topic(s): none
Tumor Site(s): Colorectal
Data Source/Project/Initiative(s): Patterns of Care Studies/Quality of Care Studies
Keywords: Canada;  Colorectal Neoplasms;  Humans;  Quality of Health Care;  Survival Analysis;  Terminal Care;  United States
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Authors: Chawla N, Butler EN, Lund J, Warren JL, Harlan LC, Yabroff KR
Title: Patterns of colorectal cancer care in Europe, Australia, and New Zealand.
Type: Journal Article
Date: 2013
Journal: J Natl Cancer Inst Monogr 2013(46):36-61
Topic(s): none
Tumor Site(s): Colorectal
Data Source/Project/Initiative(s): Patterns of Care Studies/Quality of Care Studies
Keywords: Adult;  Aged;  Australia;  Colorectal Neoplasms;  Delivery of Health Care;  Europe;  Female;  Humans;  Male;  Middle Aged;  New Zealand;  Quality of Health Care;  Registries;  Socioeconomic Factors;  Terminal Care;  Young Adult
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Authors: Kent EE, Alfano CM, Smith AW, Bernstein L, McTiernan A, Baumgartner KB, Ballard-Barbash R
Title: The roles of support seeking and race/ethnicity in posttraumatic growth among breast cancer survivors.
Type: Journal Article
Date: 2013
Journal: J Psychosoc Oncol 31(4):393-412
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adaptation, Psychological;  Adult;  African Americans;  Breast Neoplasms;  European Continental Ancestry Group;  Female;  Hispanic Americans;  Humans;  Middle Aged;  Physician-Patient Relations;  Self-Help Groups;  Social Support;  Survivors
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Authors: Smith AW, Parsons HM, Kent EE, Bellizzi K, Zebrack BJ, Keel G, Lynch CF, Rubenstein MB, Keegan TH, AYA HOPE Study Collaborative Group
Title: Unmet Support Service Needs and Health-Related Quality of Life among Adolescents and Young Adults with Cancer: The AYA HOPE Study.
Type: Journal Article
Date: 2013
Journal: Front Oncol 3():75
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: none
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Authors: Reeve BB, Stover AM, Jensen RE, Chen RC, Taylor KL, Clauser SB, Collins SP, Potosky AL
Title: Impact of diagnosis and treatment of clinically localized prostate cancer on health-related quality of life for older Americans: a population-based study.
Type: Journal Article
Date: 2012 Nov 15
Journal: Cancer 118(22):5679-87
Topic(s): none
Tumor Site(s): Prostate
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Activities of Daily Living;  Aged;  Aged, 80 and over;  Depressive Disorder, Major;  Health Status;  Humans;  Male;  Prostatectomy;  Prostatic Neoplasms;  Quality of Life;  SEER Program
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Authors: Reeve BB, Stover AM, Alfano CM, Smith AW, Ballard-Barbash R, Bernstein L, McTiernan A, Baumgartner KB, Piper BF
Title: The Piper Fatigue Scale-12 (PFS-12): psychometric findings and item reduction in a cohort of breast cancer survivors.
Type: Journal Article
Date: 2012 Nov
Journal: Breast Cancer Res Treat 136(1):9-20
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Breast Neoplasms;  Cognition;  Fatigue;  Female;  Humans;  Psychometrics;  Surveys and Questionnaires;  Survivors
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Authors: Bellizzi KM, Smith A, Schmidt S, Keegan TH, Zebrack B, Lynch CF, Deapen D, Shnorhavorian M, Tompkins BJ, Simon M, Adolescent and Young Adult Health Outcomes and Patient Experience (AYA HOPE) Study Collaborative Group (Agha G, Cruz M, Hutchinson F, Schwartz SM, Shellenberger M, Janes T, Kato I, Bankowski A, Stock M, Wu XC, Chen V, Keegan T, Allen L, Loya Z, Hussain K, Lynch CF, West MM, Odle LA, Hamilton A, Zelaya J, Lo M, Harlan LC, Smith AW, Stringer SM, Keel G, Potosky A, Bellizzi K, Albritton K, Link M, Zebrack B)
Title: Positive and negative psychosocial impact of being diagnosed with cancer as an adolescent or young adult.
Type: Journal Article
Date: 2012 Oct 15
Journal: Cancer 118(20):5155-62
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Body Image;  Female;  Goals;  Humans;  Interpersonal Relations;  Male;  Neoplasms;  Population Surveillance;  Psychology, Adolescent;  Quality of Life;  Social Support;  Socioeconomic Factors;  Survivors;  Young Adult
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Authors: Keegan TH, Lichtensztajn DY, Kato I, Kent EE, Wu XC, West MM, Hamilton AS, Zebrack B, Bellizzi KM, Smith AW, AYA HOPE Study Collaborative Group (Agha G, Cruz M, Schwartz SM, Shellenberger M, Janes T, Kato I, Bankowski A, Stock M, Wu XC, Chen V, Tompkins B, Keegan T, Allen L, Loya Z, Hussain K, Lynch CF, West MM, Odle LA, Hamilton A, Zelaya J, Lo M, Trinidad U, Harlan LC, Smith AW, Stringer SM, Keel G, Potosky A, Bellizzi K, Albritton K, Link M, Zebrack B)
Title: Unmet adolescent and young adult cancer survivors information and service needs: a population-based cancer registry study.
Type: Journal Article
Date: 2012 Sep
Journal: J Cancer Surviv 6(3):239-50
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Female;  Health Care Surveys;  Health Services Accessibility;  Health Services Needs and Demand;  Humans;  Information Services;  Male;  Needs Assessment;  Neoplasms;  Quality of Life;  Registries;  Surveys and Questionnaires;  Survivors;  Young Adult
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Authors: Parsons HM, Harlan LC, Lynch CF, Hamilton AS, Wu XC, Kato I, Schwartz SM, Smith AW, Keel G, Keegan TH
Title: Impact of cancer on work and education among adolescent and young adult cancer survivors.
Type: Journal Article
Date: 2012 Jul 01
Journal: J Clin Oncol 30(19):2393-400
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Educational Status;  Employment;  Humans;  Multivariate Analysis;  Neoplasms;  Survivors;  Young Adult
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Authors: Pronk NP, Krebs-Smith SM, Galuska DA, Liu B, Kushner RF, Troiano RP, Clauser SB, Ballard-Barbash R, Smith AW
Title: Knowledge of energy balance guidelines and associated clinical care practices: the U.S. National Survey of Energy Balance Related Care among Primary Care Physicians.
Type: Journal Article
Date: 2012 Jul
Journal: Prev Med 55(1):28-33
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Physician Surveys
Keywords: Adolescent;  Adult;  Aged;  Body Mass Index;  Child;  Diet;  Energy Intake;  Exercise;  Female;  Health Care Surveys;  Health Knowledge, Attitudes, Practice;  Humans;  Male;  Middle Aged;  Outcome and Process Assessment (Health Care);  Physicians, Family;  Practice Guidelines as Topic;  Practice Patterns, Physicians';  Primary Health Care;  Sex Distribution;  Socioeconomic Factors;  Surveys and Questionnaires;  United States
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Authors: Alfano CM, Imayama I, Neuhouser ML, Kiecolt-Glaser JK, Smith AW, Meeske K, McTiernan A, Bernstein L, Baumgartner KB, Ulrich CM, Ballard-Barbash R
Title: Fatigue, inflammation, and ω-3 and ω-6 fatty acid intake among breast cancer survivors.
Type: Journal Article
Date: 2012 Apr 20
Journal: J Clin Oncol 30(12):1280-7
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;  Aged;  Analysis of Variance;  Breast Neoplasms;  C-Reactive Protein;  Carcinoma, Intraductal, Noninfiltrating;  Cohort Studies;  Dietary Supplements;  Fatigue;  Fatty Acids, Omega-3;  Fatty Acids, Omega-6;  Female;  Follow-Up Studies;  Humans;  Inflammation;  Inflammation Mediators;  Logistic Models;  Middle Aged;  Odds Ratio;  Prospective Studies;  Risk Assessment;  Serum Amyloid A Protein;  Survivors;  Treatment Outcome
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Authors: Kent EE, Parry C, Montoya MJ, Sender LS, Morris RA, Anton-Culver H
Title: "You're too young for this": adolescent and young adults' perspectives on cancer survivorship.
Type: Journal Article
Date: 2012
Journal: J Psychosoc Oncol 30(2):260-79
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Age Factors;  Cost of Illness;  Delayed Diagnosis;  Female;  Focus Groups;  Humans;  Infertility;  Interpersonal Relations;  Interviews as Topic;  Male;  Medication Adherence;  Neoplasms;  Psychology;  Survivors;  Young Adult
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Authors: Yabroff KR, Zapka J, Klabunde CN, Yuan G, Buckman DW, Haggstrom D, Clauser SB, Miller J, Taplin SH
Title: Systems strategies to support cancer screening in U.S. primary care practice.
Type: Journal Article
Date: 2011 Dec
Journal: Cancer Epidemiol Biomarkers Prev 20(12):2471-9
Topic(s): none
Tumor Site(s): Breast;  Cervical;  Colorectal;  Lung
Data Source/Project/Initiative(s): Physician Surveys
Keywords: Adult;  Early Detection of Cancer;  Female;  Guideline Adherence;  Health Care Surveys;  Humans;  Male;  Middle Aged;  Physicians, Primary Care;  Practice Patterns, Physicians';  Primary Health Care;  United States
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Authors: Ma H, Sullivan-Halley J, Smith AW, Neuhouser ML, Alfano CM, Meeske K, George SM, McTiernan A, McKean-Cowdin R, Baumgartner KB, Ballard-Barbash R, Bernstein L
Title: Estrogenic botanical supplements, health-related quality of life, fatigue, and hormone-related symptoms in breast cancer survivors: a HEAL study report.
Type: Journal Article
Date: 2011 Nov 08
Journal: BMC Complement Altern Med 11():109
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;  Breast Neoplasms;  Dietary Supplements;  Fatigue;  Female;  Hot Flashes;  Humans;  Middle Aged;  Phytoestrogens;  Phytotherapy;  Plant Preparations;  Prospective Studies;  Quality of Life;  Survivors;  Sweating
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Authors: Alfano CM, Lichstein KL, Vander Wal GS, Smith AW, Reeve BB, McTiernan A, Bernstein L, Baumgartner KB, Ballard-Barbash R
Title: Sleep duration change across breast cancer survivorship: associations with symptoms and health-related quality of life.
Type: Journal Article
Date: 2011 Nov
Journal: Breast Cancer Res Treat 130(1):243-54
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;  Aged;  Breast Neoplasms;  Female;  Humans;  Middle Aged;  Prevalence;  Quality of Life;  Retrospective Studies;  Sleep;  Survivors
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Authors: Beckjord EB, Arora NK, Bellizzi K, Hamilton AS, Rowland JH
Title: Sexual well-being among survivors of non-Hodgkin lymphoma.
Type: Journal Article
Date: 2011 Sep
Journal: Oncol Nurs Forum 38(5):E351-9
Topic(s): none
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Experience of Care & Health Outcomes of Survivors of Non-Hodgkin's Lymphoma (ECHOS-NHL) Study
Keywords: Adult;  Aged;  Cross-Sectional Studies;  Female;  Humans;  Lymphoma, Non-Hodgkin;  Male;  Middle Aged;  Personal Satisfaction;  Quality of Life;  Sexual Behavior;  Sexual Dysfunctions, Psychological;  Survivors
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Authors: Harlan LC, Lynch CF, Keegan TH, Hamilton AS, Wu XC, Kato I, West MM, Cress RD, Schwartz SM, Smith AW, Deapen D, Stringer SM, Potosky AL, AYA HOPE Study Collaborative Group
Title: Recruitment and follow-up of adolescent and young adult cancer survivors: the AYA HOPE Study.
Type: Journal Article
Date: 2011 Sep
Journal: J Cancer Surviv 5(3):305-14
Topic(s): none
Tumor Site(s): Leukemia;  Lymphoma;  Ovary;  Testis;  Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;  Adult;  Algorithms;  Continuity of Patient Care;  Data Collection;  Female;  Follow-Up Studies;  Humans;  Male;  Neoplasms;  Patient Participation;  Patient Selection;  Psychology;  Quality of Life;  SEER Program;  Survivors;  Young Adult
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Authors: Meissner HI, Klabunde CN, Han PK, Benard VB, Breen N
Title: Breast cancer screening beliefs, recommendations and practices: primary care physicians in the United States.
Type: Journal Article
Date: 2011 Jul 15
Journal: Cancer 117(14):3101-11
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Physician Surveys
Keywords: Adult;  Attitude of Health Personnel;  Breast Neoplasms;  Breast Self-Examination;  Early Detection of Cancer;  Female;  Guideline Adherence;  Health Care Surveys;  Humans;  Mammography;  Middle Aged;  Palpation;  Physicians, Primary Care;  Practice Patterns, Physicians';  United States
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Authors: Basch EM, Reeve BB, Mitchell SA, Clauser SB, Minasian L, Sit L, Chilukuri R, Baumgartner P, Rogak L, Blauel E, Abernethy AP, Bruner D
Title: Electronic toxicity monitoring and patient-reported outcomes.
Type: Journal Article
Date: 2011 Jul-Aug
Journal: Cancer J 17(4):231-4
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: Antineoplastic Agents;  Computer Communication Networks;  Drug Monitoring;  Humans;  Neoplasms;  Research Report;  Software;  Treatment Outcome
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Authors: Huang TT, Borowski LA, Liu B, Galuska DA, Ballard-Barbash R, Yanovski SZ, Olster DH, Atienza AA, Smith AW
Title: Pediatricians' and family physicians' weight-related care of children in the U.S.
Type: Journal Article
Date: 2011 Jul
Journal: Am J Prev Med 41(1):24-32
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Physician Surveys
Keywords: Adolescent;  Body Weight;  Child;  Child, Preschool;  Cross-Sectional Studies;  Diet;  Family Practice;  Female;  Health Care Surveys;  Humans;  Male;  Middle Aged;  Motor Activity;  Obesity;  Pediatrics;  Physicians, Family;  Practice Patterns, Physicians';  Primary Health Care;  United States
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Authors: Smith AW, Borowski LA, Liu B, Galuska DA, Signore C, Klabunde C, Huang TT, Krebs-Smith SM, Frank E, Pronk N, Ballard-Barbash R
Title: U.S. primary care physicians' diet-, physical activity-, and weight-related care of adult patients.
Type: Journal Article
Date: 2011 Jul
Journal: Am J Prev Med 41(1):33-42
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Physician Surveys
Keywords: Adult;  Body Weight;  Diet;  Female;  Health Care Surveys;  Humans;  Male;  Middle Aged;  Motor Activity;  Obesity;  Overweight;  Practice Patterns, Physicians';  Primary Health Care;  United States
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Authors: Clauser SB, Wagner EH, Aiello Bowles EJ, Tuzzio L, Greene SM
Title: Improving modern cancer care through information technology.
Type: Journal Article
Date: 2011 May
Journal: Am J Prev Med 40(5 Suppl 2):S198-207
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Cancer Research Network (CRN)
Keywords: Communication;  Cooperative Behavior;  Humans;  Medical Informatics;  Neoplasms;  Patient Participation;  Patient-Centered Care;  Quality of Health Care
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Authors: Arora NK, Reeve BB, Hays RD, Clauser SB, Oakley-Girvan I
Title: Assessment of quality of cancer-related follow-up care from the cancer survivor's perspective.
Type: Journal Article
Date: 2011 Apr 01
Journal: J Clin Oncol 29(10):1280-9
Topic(s): none
Tumor Site(s): Colorectal;  Leukemia;  Urinary Bladder
Data Source/Project/Initiative(s): Assessment of Patients' Experience of Cancer Care (APECC) Study
Keywords: Aged;  Attitude of Health Personnel;  California;  Colorectal Neoplasms;  Communication;  Cross-Sectional Studies;  Female;  Health Knowledge, Attitudes, Practice;  Health Promotion;  Humans;  Leukemia;  Linear Models;  Male;  Middle Aged;  Patient Satisfaction;  Patient-Centered Care;  Perception;  Physician-Patient Relations;  Quality of Health Care;  Registries;  Surveys and Questionnaires;  Survivors;  Time Factors;  Urinary Bladder Neoplasms
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Authors: McCormack LA, Treiman K, Rupert D, Williams-Piehota P, Nadler E, Arora NK, Lawrence W, Street RL Jr
Title: Measuring patient-centered communication in cancer care: a literature review and the development of a systematic approach.
Type: Journal Article
Date: 2011 Apr
Journal: Soc Sci Med 72(7):1085-95
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-centered Care & Communication
Keywords: Communication;  Decision Making;  Emotions;  Health Knowledge, Attitudes, Practice;  Humans;  National Cancer Institute (U.S.);  Neoplasms;  Professional Role;  Professional-Patient Relations;  Qualitative Research;  Self Care;  United States
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Authors: Zapka JM, Klabunde CN, Arora NK, Yuan G, Smith JL, Kobrin SC
Title: Physicians' colorectal cancer screening discussion and recommendation patterns.
Type: Journal Article
Date: 2011 Mar
Journal: Cancer Epidemiol Biomarkers Prev 20(3):509-21
Topic(s): none
Tumor Site(s): Colorectal
Data Source/Project/Initiative(s): Physician Surveys
Keywords: Adult;  Colorectal Neoplasms;  Early Detection of Cancer;  Female;  Health Care Surveys;  Humans;  Male;  Middle Aged;  Physicians, Primary Care;  Practice Patterns, Physicians';  Primary Health Care
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Authors: Han PK, Klabunde CN, Breen N, Yuan G, Grauman A, Davis WW, Taplin SH
Title: Multiple clinical practice guidelines for breast and cervical cancer screening: perceptions of US primary care physicians.
Type: Journal Article
Date: 2011 Feb
Journal: Med Care 49(2):139-48
Topic(s): none
Tumor Site(s): Breast;  Cervical
Data Source/Project/Initiative(s): Physician Surveys
Keywords: Attitude of Health Personnel;  Breast Neoplasms;  Cross-Sectional Studies;  Early Detection of Cancer;  Female;  Guideline Adherence;  Health Services Research;  Humans;  Mass Screening;  Multivariate Analysis;  Patient Selection;  Physicians, Primary Care;  Practice Guidelines as Topic;  Practice Patterns, Physicians';  United States;  Uterine Cervical Neoplasms
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Authors: Duggan C, Irwin ML, Xiao L, Henderson KD, Smith AW, Baumgartner RN, Baumgartner KB, Bernstein L, Ballard-Barbash R, McTiernan A
Title: Associations of insulin resistance and adiponectin with mortality in women with breast cancer.
Type: Journal Article
Date: 2011 Jan 01
Journal: J Clin Oncol 29(1):32-9
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adiponectin;  Adult;  Aged;  Aged, 80 and over;  Blood Glucose;  Body Mass Index;  Body Weight;  Breast Neoplasms;  Cohort Studies;  Female;  Humans;  Hyperinsulinism;  Insulin;  Insulin Resistance;  Middle Aged;  Obesity;  Prospective Studies;  Risk Factors
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Authors: Irwin ML, Duggan C, Wang CY, Smith AW, McTiernan A, Baumgartner RN, Baumgartner KB, Bernstein L, Ballard-Barbash R
Title: Fasting C-peptide levels and death resulting from all causes and breast cancer: the health, eating, activity, and lifestyle study.
Type: Journal Article
Date: 2011 Jan 01
Journal: J Clin Oncol 29(1):47-53
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Breast Neoplasms;  C-Peptide;  Diabetes Mellitus, Type 2;  Fasting;  Female;  Humans;  Insulin;  Insulin Resistance;  Life Style;  Middle Aged;  Motor Activity;  Prognosis;  Prospective Studies;  Risk Factors
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Authors: Bruner DW, Hanisch LJ, Reeve BB, Trotti AM, Schrag D, Sit L, Mendoza TR, Minasian L, O'Mara A, Denicoff AM, Rowland JH, Montello M, Geoghegan C, Abernethy AP, Clauser SB, Castro K, Mitchell SA, Burke L, Trentacosti AM, Basch EM
Title: Stakeholder perspectives on implementing the National Cancer Institute's patient-reported outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Type: Journal Article
Date: 2011
Journal: Transl Behav Med 1(1):110-22
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: Patient-reported outcomes;  Symptoms, adverse events;  Oncology;  Cancer, Clinical trials;  Toxicity, safety;  Tolerability;  Comparative effectiveness research;  Cooperative groups;  National Cancer Institute
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Authors: Wagner EH, Aiello Bowles EJ, Greene SM, Tuzzio L, Wiese CJ, Kirlin B, Clauser SB
Title: The quality of cancer patient experience: perspectives of patients, family members, providers and experts.
Type: Journal Article
Date: 2010 Dec
Journal: Qual Saf Health Care 19(6):484-9
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Cancer Research Network (CRN)
Keywords: Family;  Focus Groups;  Health Personnel;  Humans;  Neoplasms;  Patient Satisfaction;  Quality of Health Care;  United States
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Authors: Keating NL, Beth Landrum M, Arora NK, Malin JL, Ganz PA, van Ryn M, Weeks JC
Title: Cancer patients' roles in treatment decisions: do characteristics of the decision influence roles?
Type: Journal Article
Date: 2010 Oct 01
Journal: J Clin Oncol 28(28):4364-70
Topic(s): none
Tumor Site(s): Colorectal;  Lung
Data Source/Project/Initiative(s): Cancer Care Outcomes Research & Surveillance Consortium (CanCORS)Cancer Research Network (CRN)
Keywords: Adult;  Aged;  Aged, 80 and over;  Cohort Studies;  Colorectal Neoplasms;  Decision Making;  Female;  Humans;  Logistic Models;  Lung Neoplasms;  Male;  Middle Aged;  Patient Participation;  Patient Satisfaction;  Role;  United States
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Authors: Flynn KE, Shelby RA, Mitchell SA, Fawzy MR, Hardy NC, Husain AM, Keefe FJ, Krystal AD, Porter LS, Reeve BB, Weinfurt KP
Title: Sleep-wake functioning along the cancer continuum: focus group results from the Patient-Reported Outcomes Measurement Information System (PROMIS(®)).
Type: Journal Article
Date: 2010 Oct
Journal: Psychooncology 19(10):1086-93
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes Measurement Information System (PROMIS)
Keywords: Adult;  Aged;  Aged, 80 and over;  Female;  Focus Groups;  Humans;  Information Systems;  Male;  Middle Aged;  Neoplasms;  Outcome Assessment (Health Care);  Qualitative Research;  Quality of Life;  Self Disclosure;  Sleep Disorders, Circadian Rhythm;  Surveys and Questionnaires
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Authors: Ayanian JZ, Zaslavsky AM, Arora NK, Kahn KL, Malin JL, Ganz PA, van Ryn M, Hornbrook MC, Kiefe CI, He Y, Urmie JM, Weeks JC, Harrington DP
Title: Patients' experiences with care for lung cancer and colorectal cancer: findings from the Cancer Care Outcomes Research and Surveillance Consortium.
Type: Journal Article
Date: 2010 Sep 20
Journal: J Clin Oncol 28(27):4154-61
Topic(s): none
Tumor Site(s): Colorectal;  Lung
Data Source/Project/Initiative(s): Cancer Care Outcomes Research & Surveillance Consortium (CanCORS)Cancer Research Network (CRN)
Keywords: Adult;  African Americans;  Aged;  Asian Americans;  Colorectal Neoplasms;  Communication;  European Continental Ancestry Group;  Female;  Health Care Surveys;  Health Services Research;  Health Status Disparities;  Healthcare Disparities;  Hispanic Americans;  Humans;  Language;  Linear Models;  Logistic Models;  Lung Neoplasms;  Male;  Middle Aged;  Outcome and Process Assessment (Health Care);  Patient Care Team;  Patient Satisfaction;  Patients;  Physician-Patient Relations;  Quality of Health Care;  Surveys and Questionnaires;  Treatment Outcome;  United States;  Young Adult
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Authors: George SM, Neuhouser ML, Mayne ST, Irwin ML, Albanes D, Gail MH, Alfano CM, Bernstein L, McTiernan A, Reedy J, Smith AW, Ulrich CM, Ballard-Barbash R
Title: Postdiagnosis diet quality is inversely related to a biomarker of inflammation among breast cancer survivors.
Type: Journal Article
Date: 2010 Sep
Journal: Cancer Epidemiol Biomarkers Prev 19(9):2220-8
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adiponectin;  Biomarkers, Tumor;  Breast Neoplasms;  C-Reactive Protein;  Cohort Studies;  Diet;  Female;  Humans;  Inflammation;  Leptin;  Middle Aged;  Motor Activity;  Prognosis;  Prospective Studies;  Quality of Life;  Serum Amyloid A Protein;  Surveys and Questionnaires;  Survivors
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Authors: Wang X, Baldwin S, Wainer H, Bradlow ET, Reeve BB, Smith AW, Bellizzi KM, Baumgartner KB
Title: Using Testlet Response Theory to analyze data from a survey of attitude change among breast cancer survivors.
Type: Journal Article
Date: 2010 Aug 30
Journal: Stat Med 29(19):2028-44
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Attitude to Health;  Bayes Theorem;  Breast Neoplasms;  Data Interpretation, Statistical;  Female;  Health Surveys;  Humans;  Neoplasm Recurrence, Local;  Psychometrics;  Survivors;  Tamoxifen
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Authors:
Title: Patient-Reported Outcomes Measurement Information System (PROMIS)
Type: Report
Date: 2010 Jul
Report: NCI Pub. No. P233
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes Measurement Information System (PROMIS)
Keywords: none

Authors: Rogers SO Jr, Gray SW, Landrum MB, Klabunde CN, Kahn KL, Fletcher RH, Clauser S, Tisnado D, Doucette W, Keating NL
Title: Variations in surgeon treatment recommendations for lobectomy in early-stage non-small-cell lung cancer by patient age and comorbidity.
Type: Journal Article
Date: 2010 Jun
Journal: Ann Surg Oncol 17(6):1581-8
Topic(s): none
Tumor Site(s): Lung
Data Source/Project/Initiative(s): Cancer Care Outcomes Research & Surveillance Consortium (CanCORS)Cancer Research Network (CRN)
Keywords: Adult;  Age Factors;  Algorithms;  Boston;  Carcinoma, Non-Small-Cell Lung;  Comorbidity;  Decision Making;  Female;  General Surgery;  Health Care Surveys;  Humans;  Logistic Models;  Lung Neoplasms;  Male;  Middle Aged;  Pneumonectomy;  Practice Guidelines as Topic;  Practice Patterns, Physicians';  Pulmonary Disease, Chronic Obstructive;  Regression Analysis;  Risk Factors;  Severity of Illness Index;  Smoking;  Surveys and Questionnaires;  Thoracic Surgery
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Authors: Bellizzi KM, Smith AW, Reeve BB, Alfano CM, Bernstein L, Meeske K, Baumgartner KB, Ballard-Barbash RR
Title: Posttraumatic growth and health-related quality of life in a racially diverse cohort of breast cancer survivors.
Type: Journal Article
Date: 2010 May
Journal: J Health Psychol 15(4):615-26
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adaptation, Psychological;  Adult;  Aged;  Breast Neoplasms;  Cohort Studies;  Ethnic Groups;  Female;  Health Status;  Humans;  Middle Aged;  Neoplasm Staging;  Quality of Life;  Stress Disorders, Post-Traumatic;  Surveys and Questionnaires;  Survivors
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Authors: Waters EA, Arora NK, Klein WM, Han PK
Title: Perceived risk, trust and health-related quality of life among cancer survivors.
Type: Journal Article
Date: 2010 Feb
Journal: Ann Behav Med 39(1):91-7
Topic(s): none
Tumor Site(s): Colorectal;  Leukemia;  Urinary Bladder
Data Source/Project/Initiative(s): Assessment of Patients' Experience of Cancer Care (APECC) Study
Keywords: Adult;  Aged;  Cross-Sectional Studies;  Female;  Follow-Up Studies;  Health Status;  Humans;  Male;  Middle Aged;  Neoplasms;  Physician's Role;  Physician-Patient Relations;  Quality of Life;  Risk Assessment;  Survivors;  Treatment Outcome;  Trust
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Authors: Waters EA, Cronin KA, Graubard BI, Han PK, Freedman AN
Title: Prevalence of tamoxifen use for breast cancer chemoprevention among U.S. women.
Type: Journal Article
Date: 2010 Feb
Journal: Cancer Epidemiol Biomarkers Prev 19(2):443-6
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): National Health Interview Survey (NHIS) - Cancer Control Supplement (CCS)
Keywords: Adult;  Aged;  Breast Neoplasms;  Female;  Humans;  Middle Aged;  Prevalence;  Primary Prevention;  Selective Estrogen Receptor Modulators;  Tamoxifen;  United States
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Authors: Klabunde CN, Ambs A, Keating NL, He Y, Doucette WR, Tisnado D, Clauser S, Kahn KL
Title: The role of primary care physicians in cancer care.
Type: Journal Article
Date: 2009 Sep
Journal: J Gen Intern Med 24(9):1029-36
Topic(s): none
Tumor Site(s): Colorectal;  Lung
Data Source/Project/Initiative(s): Cancer Care Outcomes Research & Surveillance Consortium (CanCORS)Cancer Research Network (CRN)
Keywords: Adult;  Aged;  Attitude of Health Personnel;  Continuity of Patient Care;  Data Collection;  Female;  Humans;  Male;  Medical Oncology;  Middle Aged;  Neoplasms;  Physician's Role;  Physician-Patient Relations;  Physicians, Family
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Authors: Reeve BB, Potosky AL, Smith AW, Han PK, Hays RD, Davis WW, Arora NK, Haffer SC, Clauser SB
Title: Impact of cancer on health-related quality of life of older Americans.
Type: Journal Article
Date: 2009 Jun 16
Journal: J Natl Cancer Inst 101(12):860-8
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;  Analysis of Variance;  Benchmarking;  Case-Control Studies;  Comorbidity;  Cost of Illness;  Female;  Health Status;  Health Surveys;  Humans;  Male;  Medical Record Linkage;  Medicare;  Mental Health;  Neoplasms;  Prospective Studies;  Quality of Life;  SEER Program;  Severity of Illness Index;  United States
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Authors: Jeffery DD, Tzeng JP, Keefe FJ, Porter LS, Hahn EA, Flynn KE, Reeve BB, Weinfurt KP
Title: Initial report of the cancer Patient-Reported Outcomes Measurement Information System (PROMIS) sexual function committee: review of sexual function measures and domains used in oncology.
Type: Journal Article
Date: 2009 Mar 15
Journal: Cancer 115(6):1142-53
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes Measurement Information System (PROMIS)
Keywords: Female;  Health Surveys;  Humans;  Male;  National Institutes of Health (U.S.);  Neoplasms;  Outcome Assessment (Health Care);  Psychometrics;  Quality of Life;  Research Design;  Sexual Behavior;  Sexual Dysfunction, Physiological;  Surveys and Questionnaires;  Survivors;  United States
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Authors: Bellizzi KM, Rowland JH, Arora NK, Hamilton AS, Miller MF, Aziz NM
Title: Physical activity and quality of life in adult survivors of non-Hodgkin's lymphoma.
Type: Journal Article
Date: 2009 Feb 20
Journal: J Clin Oncol 27(6):960-6
Topic(s): none
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Experience of Care & Health Outcomes of Survivors of Non-Hodgkin's Lymphoma (ECHOS-NHL) Study
Keywords: Aged;  Cross-Sectional Studies;  Female;  Humans;  Lymphoma, Non-Hodgkin;  Male;  Middle Aged;  Motor Activity;  Prevalence;  Quality of Life;  Survivors
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Authors: Arora NK
Title: Importance of patient-centered care in enhancing patient well-being: a cancer survivor's perspective.
Type: Journal Article
Date: 2009 Feb
Journal: Qual Life Res 18(1):1-4
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-centered Care & Communication
Keywords: Anecdotes as Topic;  Humans;  Neoplasms;  Patient Satisfaction;  Patient-Centered Care;  Physician-Patient Relations;  Quality of Health Care;  Quality of Life;  Survivors
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Authors: Arora NK, Gustafson DH
Title: Perceived helpfulness of physicians' communication behavior and breast cancer patients' level of trust over time.
Type: Journal Article
Date: 2009 Feb
Journal: J Gen Intern Med 24(2):252-5
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Patient-centered Care & Communication
Keywords: Adult;  Attitude of Health Personnel;  Breast Neoplasms;  Communication;  Female;  Follow-Up Studies;  Helping Behavior;  Humans;  Longitudinal Studies;  Middle Aged;  Patient Satisfaction;  Perception;  Physician-Patient Relations;  Time Factors;  Trust
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Authors: Smith AW, Alfano CM, Reeve BB, Irwin ML, Bernstein L, Baumgartner K, Bowen D, McTiernan A, Ballard-Barbash R
Title: Race/ethnicity, physical activity, and quality of life in breast cancer survivors.
Type: Journal Article
Date: 2009 Feb
Journal: Cancer Epidemiol Biomarkers Prev 18(2):656-63
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;  African Continental Ancestry Group;  Aged;  Aged, 80 and over;  Breast Neoplasms;  Chi-Square Distribution;  European Continental Ancestry Group;  Female;  Hispanic Americans;  Humans;  Middle Aged;  Motor Activity;  Prospective Studies;  Quality of Life;  Regression Analysis;  Survivors
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Authors: Meeske KA, Sullivan-Halley J, Smith AW, McTiernan A, Baumgartner KB, Harlan LC, Bernstein L
Title: Risk factors for arm lymphedema following breast cancer diagnosis in Black women and White women.
Type: Journal Article
Date: 2009 Jan
Journal: Breast Cancer Res Treat 113(2):383-91
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;  African Americans;  Age Factors;  Antineoplastic Agents;  Arm;  Breast Neoplasms;  Cohort Studies;  Combined Modality Therapy;  Comorbidity;  Contraceptives, Oral;  European Continental Ancestry Group;  Female;  Follow-Up Studies;  Humans;  Hypertension;  Infection;  Lymph Node Excision;  Lymphedema;  Middle Aged;  Obesity;  Radiotherapy;  Risk Factors
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Authors: Hammond CT, Beckjord EB, Arora NK, Bellizzi KM, Jeffery DD, Aziz NM
Title: Non-Hodgkin's lymphoma survivors' fertility and sexual function-related information needs.
Type: Journal Article
Date: 2008 Oct
Journal: Fertil Steril 90(4):1256-8
Topic(s): none
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Experience of Care & Health Outcomes of Survivors of Non-Hodgkin's Lymphoma (ECHOS-NHL) Study
Keywords: Adolescent;  Adult;  Attitude to Health;  Cohort Studies;  Comorbidity;  Female;  Health Knowledge, Attitudes, Practice;  Humans;  Infertility;  Los Angeles;  Male;  Middle Aged;  Patient Education as Topic;  Prevalence;  Registries;  Risk Assessment;  Risk Factors;  Sexual Dysfunction, Physiological;  Sexual Dysfunctions, Psychological;  Surveys and Questionnaires;  Survivors
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Authors: Keating NL, Landrum MB, Klabunde CN, Fletcher RH, Rogers SO, Doucette WR, Tisnado D, Clauser S, Kahn KL
Title: Adjuvant chemotherapy for stage III colon cancer: do physicians agree about the importance of patient age and comorbidity?
Type: Journal Article
Date: 2008 May 20
Journal: J Clin Oncol 26(15):2532-7
Topic(s): none
Tumor Site(s): Colorectal
Data Source/Project/Initiative(s): Cancer Care Outcomes Research & Surveillance Consortium (CanCORS)Cancer Research Network (CRN)
Keywords: Adult;  Age Factors;  Aged;  Aged, 80 and over;  Antineoplastic Agents;  Chemotherapy, Adjuvant;  Colonic Neoplasms;  Comorbidity;  Decision Making;  Female;  Humans;  Lung Neoplasms;  Male;  Middle Aged;  Neoplasm Staging;  Physicians
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Authors: Arora NK
Title: Advancing research on patient-centered cancer communication.
Type: Journal Article
Date: 2008 Mar
Journal: Patient Educ Couns 70(3):301-2
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-centered Care & Communication
Keywords: Communication;  Health Services Needs and Demand;  Humans;  Neoplasms;  Patient-Centered Care;  Professional-Patient Relations;  Research
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Authors: Aiello Bowles EJ, Tuzzio L, Wiese CJ, Kirlin B, Greene SM, Clauser SB, Wagner EH
Title: Understanding high-quality cancer care: a summary of expert perspectives.
Type: Journal Article
Date: 2008 Feb 15
Journal: Cancer 112(4):934-42
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Cancer Research Network (CRN)
Keywords: Expert Testimony;  Humans;  Interviews as Topic;  National Academies of Science, Engineering, and Medicine (U.S.) Health and Medicine Division;  Neoplasms;  Quality of Health Care;  United States
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Authors: Ambs A, Warren JL, Bellizzi KM, Topor M, Haffer SC, Clauser SB
Title: Overview of the SEER--Medicare Health Outcomes Survey linked dataset.
Type: Journal Article
Date: 2008 Summer
Journal: Health Care Financ Rev 29(4):5-21
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;  Aged, 80 and over;  Cohort Studies;  Comorbidity;  Cooperative Behavior;  Database Management Systems;  Female;  Humans;  Male;  Managed Care Programs;  Medical Record Linkage;  Medicare;  Neoplasms;  Outcome Assessment (Health Care);  Program Evaluation;  Quality of Life;  SEER Program;  Sickness Impact Profile;  Survivors;  United States
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Authors: Clauser SB, Arora NK, Bellizzi KM, Haffer SC, Topor M, Hays RD
Title: Disparities in HRQOL of cancer survivors and non-cancer managed care enrollees.
Type: Journal Article
Date: 2008 Summer
Journal: Health Care Financ Rev 29(4):23-40
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;  Aged, 80 and over;  Demography;  Female;  Healthcare Disparities;  Humans;  Male;  Managed Care Programs;  Medicare;  Mental Health;  Multivariate Analysis;  Neoplasms;  Outcome Assessment (Health Care);  Quality of Life;  SEER Program;  Sickness Impact Profile;  Socioeconomic Factors;  Survivors;  United States
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Authors: Clauser SB, Haffer SC
Title: SEER-MHOS: a new federal collaboration on cancer outcomes research.
Type: Journal Article
Date: 2008 Summer
Journal: Health Care Financ Rev 29(4):1-4
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;  Cooperative Behavior;  Humans;  Managed Care Programs;  Medicare;  Neoplasms;  Outcome Assessment (Health Care);  Quality of Life;  SEER Program;  Survivors;  United States
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Authors: Hays RD, Smith AW, Reeve BB, Spritzer KL, Marcus SE, Clauser SB
Title: Cigarette smoking and health-related quality of life in Medicare beneficiaries.
Type: Journal Article
Date: 2008 Summer
Journal: Health Care Financ Rev 29(4):57-67
Topic(s): none
Tumor Site(s): Head and Neck;  Lung
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;  Aged, 80 and over;  Chronic Disease;  Cohort Studies;  Database Management Systems;  Demography;  Female;  Humans;  Least-Squares Analysis;  Male;  Managed Care Programs;  Medical Record Linkage;  Medicare;  Neoplasms;  Outcome Assessment (Health Care);  Quality of Life;  SEER Program;  Sickness Impact Profile;  Smoking;  Socioeconomic Factors;  Survivors;  United States
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Authors: Reeve BB, Smith AW, Arora NK, Hays RD
Title: Reducing bias in cancer research: application of propensity score matching.
Type: Journal Article
Date: 2008 Summer
Journal: Health Care Financ Rev 29(4):69-80
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;  Aged, 80 and over;  Chronic Disease;  Cohort Studies;  Comorbidity;  Cost of Illness;  Database Management Systems;  Epidemiologic Research Design;  Female;  Humans;  Male;  Managed Care Programs;  Medicare;  Neoplasms;  Observation;  Outcome Assessment (Health Care);  Quality of Life;  SEER Program;  Socioeconomic Factors;  Survivors;  United States
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Authors: Smith AW, Reeve BB, Bellizzi KM, Harlan LC, Klabunde CN, Amsellem M, Bierman AS, Hays RD
Title: Cancer, comorbidities, and health-related quality of life of older adults.
Type: Journal Article
Date: 2008 Summer
Journal: Health Care Financ Rev 29(4):41-56
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;  Aged, 80 and over;  Comorbidity;  Demography;  Female;  Humans;  Male;  Managed Care Programs;  Medical Record Linkage;  Medicare;  Neoplasms;  Outcome Assessment (Health Care);  Poisson Distribution;  Prevalence;  Quality of Life;  SEER Program;  Sickness Impact Profile;  Survivors;  United States
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Authors: Garcia SF, Cella D, Clauser SB, Flynn KE, Lad T, Lai JS, Reeve BB, Smith AW, Stone AA, Weinfurt K
Title: Standardizing patient-reported outcomes assessment in cancer clinical trials: a patient-reported outcomes measurement information system initiative.
Type: Journal Article
Date: 2007 Nov 10
Journal: J Clin Oncol 25(32):5106-12
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes Measurement Information System (PROMIS)
Keywords: Clinical Trials as Topic;  Continuity of Patient Care;  Humans;  Neoplasms;  Patient Satisfaction;  Psychometrics;  Quality Indicators, Health Care;  Quality of Life;  Reproducibility of Results;  Sickness Impact Profile;  Treatment Outcome
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Authors: Bowen DJ, Alfano CM, McGregor BA, Kuniyuki A, Bernstein L, Meeske K, Baumgartner KB, Fetherolf J, Reeve BB, Smith AW, Ganz PA, McTiernan A, Barbash RB
Title: Possible socioeconomic and ethnic disparities in quality of life in a cohort of breast cancer survivors.
Type: Journal Article
Date: 2007 Nov
Journal: Breast Cancer Res Treat 106(1):85-95
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;  African Americans;  Aged;  Breast Neoplasms;  Disability Evaluation;  Employment;  European Continental Ancestry Group;  Female;  Health Status Disparities;  Hispanic Americans;  Humans;  Mental Health;  Middle Aged;  Population Surveillance;  Prospective Studies;  Quality of Life;  Recovery of Function;  Socioeconomic Factors;  Surveys and Questionnaires;  Survivors;  Time Factors;  Treatment Outcome;  United States
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Authors: Bellizzi KM, Miller MF, Arora NK, Rowland JH
Title: Positive and negative life changes experienced by survivors of non-Hodgkin's lymphoma.
Type: Journal Article
Date: 2007 Oct
Journal: Ann Behav Med 34(2):188-99
Topic(s): none
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Experience of Care & Health Outcomes of Survivors of Non-Hodgkin's Lymphoma (ECHOS-NHL) Study
Keywords: Activities of Daily Living;  Adaptation, Psychological;  Adult;  Aged;  Aged, 80 and over;  Family Relations;  Female;  Health Behavior;  Humans;  Life Change Events;  Lymphoma, Non-Hodgkin;  Male;  Middle Aged;  Quality of Life;  Sick Role;  Socioeconomic Factors;  Survivors
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Authors: Meeske K, Smith AW, Alfano CM, McGregor BA, McTiernan A, Baumgartner KB, Malone KE, Reeve BB, Ballard-Barbash R, Bernstein L
Title: Fatigue in breast cancer survivors two to five years post diagnosis: a HEAL Study report.
Type: Journal Article
Date: 2007 Aug
Journal: Qual Life Res 16(6):947-60
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;  Aged;  Aged, 80 and over;  Breast Neoplasms;  Fatigue;  Female;  Humans;  Logistic Models;  Los Angeles;  Middle Aged;  Multivariate Analysis;  New Mexico;  Prevalence;  Prospective Studies;  Psychometrics;  Quality of Life;  SEER Program;  Severity of Illness Index;  Sickness Impact Profile;  Survivors;  Washington
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Authors: Alfano CM, Smith AW, Irwin ML, Bowen DJ, Sorensen B, Reeve BB, Meeske KA, Bernstein L, Baumgartner KB, Ballard-Barbash R, Malone KE, McTiernan A
Title: Physical activity, long-term symptoms, and physical health-related quality of life among breast cancer survivors: a prospective analysis.
Type: Journal Article
Date: 2007 Jun
Journal: J Cancer Surviv 1(2):116-28
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Activities of Daily Living;  Adaptation, Psychological;  Adult;  Aged;  Aged, 80 and over;  Breast Neoplasms;  California;  Cohort Studies;  Exercise;  Fatigue;  Female;  Health Status;  Humans;  Middle Aged;  New Mexico;  Pain;  Prospective Studies;  Quality of Life;  Registries;  Regression Analysis;  Survivors;  United States;  Washington
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Authors: Arora NK, Finney Rutten LJ, Gustafson DH, Moser R, Hawkins RP
Title: Perceived helpfulness and impact of social support provided by family, friends, and health care providers to women newly diagnosed with breast cancer.
Type: Journal Article
Date: 2007 May
Journal: Psychooncology 16(5):474-86
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Patient-centered Care & Communication
Keywords: Adaptation, Psychological;  Adult;  Breast Neoplasms;  Decision Making;  Family;  Female;  Friends;  Humans;  Longitudinal Studies;  Middle Aged;  Patient Education as Topic;  Patient Satisfaction;  Physician's Role;  Quality of Life;  Self Efficacy;  Self-Help Groups;  Sick Role;  Social Support;  Surveys and Questionnaires
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Authors: Arora NK, Hamilton AS, Potosky AL, Rowland JH, Aziz NM, Bellizzi KM, Klabunde CN, McLaughlin W, Stevens J
Title: Population-based survivorship research using cancer registries: a study of non-Hodgkin's lymphoma survivors.
Type: Journal Article
Date: 2007 Mar
Journal: J Cancer Surviv 1(1):49-63
Topic(s): none
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Experience of Care & Health Outcomes of Survivors of Non-Hodgkin's Lymphoma (ECHOS-NHL) Study
Keywords: Adult;  Aged;  Female;  Health Status;  Health Surveys;  Humans;  Los Angeles;  Lymphoma, Non-Hodgkin;  Male;  Middle Aged;  Quality of Life;  Registries;  Research Design;  Surveys and Questionnaires;  Survivors;  Treatment Outcome
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Authors: Alfano CM, McGregor BA, Kuniyuki A, Reeve BB, Bowen DJ, Baumgartner KB, Bernstein L, Ballard-Barbash R, Malone KE, Ganz PA, McTiernan A
Title: Psychometric properties of a tool for measuring hormone-related symptoms in breast cancer survivors.
Type: Journal Article
Date: 2006 Nov
Journal: Psychooncology 15(11):985-1000
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;  Aged;  Antineoplastic Agents, Hormonal;  Breast Neoplasms;  Carcinoma in Situ;  Climacteric;  Combined Modality Therapy;  Estrogens;  Female;  Humans;  Middle Aged;  Prospective Studies;  Psychometrics;  Quality of Life;  Reproducibility of Results;  Sickness Impact Profile;  Survivors;  Tamoxifen
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Authors: Malin JL, Ko C, Ayanian JZ, Harrington D, Nerenz DR, Kahn KL, Ganther-Urmie J, Catalano PJ, Zaslavsky AM, Wallace RB, Guadagnoli E, Arora NK, Roudier MD, Ganz PA
Title: Understanding cancer patients' experience and outcomes: development and pilot study of the Cancer Care Outcomes Research and Surveillance patient survey.
Type: Journal Article
Date: 2006 Aug
Journal: Support Care Cancer 14(8):837-48
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Cancer Care Outcomes Research & Surveillance Consortium (CanCORS)Cancer Research Network (CRN)
Keywords: Aged;  Cohort Studies;  Colorectal Neoplasms;  Comprehension;  Decision Making;  Feasibility Studies;  Female;  Health Services Research;  Health Status;  Health Surveys;  Humans;  Interviews as Topic;  Lung Neoplasms;  Male;  Middle Aged;  Pilot Projects;  Quality of Life;  Research Design;  Retrospective Studies;  Surveys and Questionnaires;  Treatment Outcome;  United States
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Authors: Han PK, Coates RJ, Uhler RJ, Breen N
Title: Decision making in prostate-specific antigen screening National Health Interview Survey, 2000.
Type: Journal Article
Date: 2006 May
Journal: Am J Prev Med 30(5):394-404
Topic(s): none
Tumor Site(s): Prostate
Data Source/Project/Initiative(s): National Health Interview Survey (NHIS) - Cancer Control Supplement (CCS)
Keywords: Adult;  Cross-Sectional Studies;  Decision Making;  Humans;  Interviews as Topic;  Male;  Mass Screening;  Middle Aged;  National Center for Health Statistics (U.S.);  Physician-Patient Relations;  Prostate-Specific Antigen;  Socioeconomic Factors;  United States
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Authors: Alfano CM, McGregor BA, Kuniyuki A, Reeve BB, Bowen DJ, Wilder Smith A, Baumgartner KB, Bernstein L, Ballard-Barbash R, Malone KE, Ganz PA, McTiernan A
Title: Psychometric evaluation of the Brief Cancer Impact Assessment among breast cancer survivors.
Type: Journal Article
Date: 2006
Journal: Oncology 70(3):190-202
Topic(s): none
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;  Aged;  Breast Neoplasms;  Factor Analysis, Statistical;  Fear;  Female;  Health Status;  Humans;  Middle Aged;  Psychometrics;  Quality of Life;  Recurrence;  Reproducibility of Results;  Role;  Stress, Psychological;  Surveys and Questionnaires;  Survivors
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Authors: Finney Rutten LJ, Arora NK
Title: Importance of physicians' communication behavior across the cancer continuum
Type: Book Chapter
Date: 2006
Book Editors: O'Hair Dan, Kreps Gary L, Sparks Lisa Daniel
Book Title: Handbook of communication and cancer care
ISBN: 1572736828External Web Site Policy
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-centered Care & Communication
Keywords: none

Authors: Arora NK
Title: Interacting with cancer patients: the significance of physicians' communication behavior.
Type: Journal Article
Date: 2003 Sep
Journal: Soc Sci Med 57(5):791-806
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-centered Care & Communication
Keywords: Communication;  Decision Making;  Humans;  Neoplasms;  Patient Participation;  Physician-Patient Relations;  Quality of Life;  Uncertainty
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Authors: Kreps GL, Arora NK, Nelson DE
Title: Consumer/provider communication research: directions for development.
Type: Journal Article
Date: 2003 May
Journal: Patient Educ Couns 50(1):3-4
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-centered Care & Communication
Keywords: Communication;  Forecasting;  Humans;  Needs Assessment;  Patient Selection;  Physician-Patient Relations;  Research;  Research Design
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