PROSPR DataShare

Welcome to PROSPR DataShare

PROSPR DataShare, or PDS, allows individuals who are not part of the PROSPR initiative, known as external researchers, to request certain data from the PROSPR 2 initiative.

Public use data sets

External researchers can request PROSPR 2 public use data sets, which are existing HIPAA-defined de-identified data sets. The public use data sets are unlikely to produce publishable scientific findings; instead, they are intended to give users a feel for PROSPR cancer screening process data. These data are expected to be most useful in educational settings, as well as in preliminary analyses to support grant applications or requests for PROSPR restricted data (described in the next paragraph). Requests undergo an expedited review process, and turnaround time is about two weeks. In general, PROSPR public use data sets are available to anyone who requests them as long as the requestor agrees to standard data use conditions.

Restricted use data sets

External researchers also can use PDS to inquire about receiving PROSPR 2 restricted use data sets, which are custom HIPAA-defined limited data sets intended to be used for manuscript preparation. Requests for restricted use data sets undergo consideration by PROSPR investigators whose data are being requested. In most instances, approval requires collaboration with PROSPR investigators, and requestors must sign a Data Use Agreement. The cost to receive a restricted use data set will depend on the extent of involvement of PROSPR investigators/staff and should be discussed with them as early as possible in the request process. Applicants will be contacted by a PROSPR grantee after an inquiry is submitted. Additional steps will be discussed at that time.

In summary, external researchers can use PDS to:

Please click on "Use PROSPR DataShare" on the side bar menu to access PDS. You will need an account with Login.gov to use most features of PDS. If you do not have an account, PDS will direct you to an account creation screen. You will use that account each time you access PDS.

If you have questions about data, you may contact the following PROSPR grantees:

If you have questions about PROSPR in general, please contact NCIPROSPR@nih.gov.