PROSPR DataShare

Welcome to PROSPR DataShare

PROSPR DataShare, or PDS, allows individuals who are not part of the PROSPR initiative, known as external researchers, to request certain data from the PROSPR 1 and PROSPR 2 initiatives. PDS also allows external researchers to propose ancillary studies (defined below).

Public use data sets

External researchers can request PROSPR public use data sets, which are existing HIPAA-defined de-identified data sets. The public use data sets are unlikely to produce publishable scientific findings; instead, they are intended to give users a feel for PROSPR cancer screening process data. These data are expected to be most useful in educational settings, as well as in preliminary analyses to support grant applications or requests for PROSPR restricted data (described in the next paragraph). Requests undergo an expedited review process, and turnaround time is about two weeks. In general, PROSPR public use data sets are available to anyone who requests them as long as the requestor agrees to standard data use conditions.

Restricted use data sets

External researchers also can request PROSPR restricted use data sets, which are custom HIPAA-defined limited data sets intended to be used for manuscript preparation. Requests for restricted use data sets undergo review and approval by PROSPR investigators whose data are being requested. In most instances, approval requires collaboration with PROSPR investigators, and requestors must sign a Data Use Agreement. Please note that requests are reviewed in a two-step process and approval is not guaranteed. Applicants first submit an inquiry. If the inquiry is approved, applicants then complete a full proposal. The cost to receive a restricted use data set will depend on the extent of involvement of PROSPR investigators/staff and should be discussed with them as early as possible in the request process. The PROSPR DataShare website is used for both the inquiry and proposal. Review typically takes about three to four months from date of submission. Data set delivery typically takes 1-2 months.

Ancillary studies

External researchers also can propose ancillary studies, which are efforts that use PROSPR infrastructure to collect additional data. External researchers are required to partner with at least one PROSPR investigator when proposing an ancillary study. Requests for ancillary studies undergo review by PROSPR investigators. Please note that approval of requests is not guaranteed and that requestors are expected to fund the effort. The request review process typically takes about three to four months from date of submission. Additional time is necessary for data collection.

In summary, external researchers can use PDS to:

Please click on "Use PROSPR DataShare" on the side bar menu to access PDS. You will need an account with Information Management Services, Inc. (IMS), an NCI contractor, to use most features of PDS. If you do not have an account, PDS will direct you to an account creation screen. You will use that account each time you access PDS.

If you have questions, please contact us.