The seven SEER registries noted under Overview & Key Objectives (i.e., Los Angeles, Seattle-Puget Sound, Iowa, Louisiana, Detroit, Northern California, and Greater California) are responsible for collecting the medical record and survey data.
Survey data collection for the original study is complete. See Harlan et al., 2011 for a description of the study's methods. Data from the follow-up survey were collected in 2009 and 2010.
Additional manuscripts have been published and others will be forthcoming.
This study will inform the development of future studies to focus on care and outcomes in the AYA population.
Last Updated: 14 Sep 2018