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Adolescent and Young Adult Health Outcomes and Patient Experience Study (AYA-HOPE)
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SEER-Medicare Linked Data Resource
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Medical Expenditure Panel Survey: Experiences with Cancer Survivorship Supplement (MEPS)
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Physician Surveys
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National Survey of Energy Balance-related Care Among Primary Care Physicians
Survey of Physician Attitudes Regarding the Care of Cancer Survivors (SPARCCS)
National Survey of Precision Medicine in Cancer Treatment
HealthMeasures
Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE®)
Patterns of Care (POC) Studies
Requesting Access to POC Data and Updating/Changing POC Data Requests
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Study Patient Eligibility and Data Items from Prior POC Studies
POC*Explorer
Interagency Consortium to Promote Health Economics Research on Cancer (HEROiC)
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HEROiC Conference on Health Economic Research Collaborations to Improve Cancer Care (2023)
Future of Cancer Health Economics Research Virtual Conference (2020)
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Adolescent and Young Adult Health Outcomes and Patient Experience Study (AYA-HOPE)
Overview and Key Objectives
Survey Instruments
AYA HOPE Publications
Social Determinants of Health by U.S. Census Tract
Note: This is a completed inititiative.
AYA HOPE Survey
MS Word
(DOC, 1.1 MB)
, 1.12 MB
PDF
(PDF, 336 KB)
, 326 KB
AYA HOPE Follow-up Survey
MS Word
(DOC, 2.5 MB)
, 2.54 MB
PDF
(PDF, 252 KB)
, 245 KB
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An official website of the United States government