Supporting the Science of Informal Cancer Caregiving: Highlights of NCI-Funded Research

A Webinar Series

Tuesday, January 18, 2022
Wednesday, February 23, 2022
Thursday, March 17, 2022
Tuesday, April 19, 2022
Wednesday, May 18, 2022


The Outcomes Research Branch of the National Cancer Institute (NCI) is holding a 5-part webinar series on informal cancer caregiving. This series is intended to provide the state of the science related to informal cancer caregiving. In the series, attendees learn about current research by NCI-funded grantees as well as future directions in cancer caregiving research. Each session has dedicated presentations and opportunities for audience-based Questions and Answers. This webinar series concludes in May with an NCI-led discussion of themes among the funded grants and key opportunities for future research to support informal cancer caregiving.


Over the last decade, NCI has placed a strong emphasis on advancing research on informal cancer caregiving. In 2015, NCI hosted a workshop to identify research priorities, and in response, NCI developed a funding opportunity announcement (FOA), Intervening with Cancer Caregivers to Improve Patient Health Outcomes and Optimize Health Care Utilization PAR-19-352External Web Site Policy (R01), PAR-19-355External Web Site Policy (R21), to support interventions for cancer caregivers. Informal cancer caregiving research continues to be a priority at NCI and in the Healthcare Delivery Research Program. NCI remains committed to supporting future research in this area.

For background on NCI’s research focusing on cancer caregiving, please see the HDRP Cancer Caregiving webpage.

Intended Audience

This webinar is intended for extramural investigators, advocates, and the public. No experience with cancer caregiving research is necessary.

Webinar 1 - Tuesday, January 18, 2022

View WebinarExternal Web Site Policy
Presentation (PDF, 2.0 MB)

Presentation 1: Introduction and Updates from the National Cancer Institute

Ashley Wilder SmithAshley Wilder Smith, PhD, MPH
Branch Chief
Outcomes Research Branch
Healthcare Delivery Research Program
Division of Cancer Control and Population Sciences
National Cancer Institute

Presentation 2: The CARING study: Development of a support intervention for neuro-oncology family caregivers

Maija ReblinMaija Reblin, PhD
Associate Professor
Department of Family Medicine
Larner College of Medicine, University of Vermont

Presentation 3: Testing a Mindfulness-Based Intervention for Caregivers of Allogeneic Hematopoietic Stem Cell Patients

Christine VinciChristine Vinci, PhD
Assistant Member
Department of Health Outcomes and Behavior
Moffitt Cancer Center

Webinar 2 - Wednesday, February 23, 2022

View WebinarExternal Web Site Policy
Presentation (PDF, 4.8 MB)

Presentation 1: Decision Support Training for Advanced Cancer Family Caregivers: The Project CASCADE Randomized Factorial Trial

J. Nicholas Dionne-OdomJ. Nicholas Dionne-Odom, PhD, RN, ACHPN, FPCN, FAAN
Assistant Professor
School of Nursing
University of Alabama at Birmingham

Presentation 2: Talking About Cancer: Development and evaluation of a patient-caregiver communication intervention to improve advance care planning

Kelly TrevinoKelly Trevino, PhD
Associate Attending Psychologist
Memorial Sloan Kettering Cancer Center

Megan J. ShenMegan J. Shen, PhD
Associate Professor
Fred Hutchinson Cancer Research Center

Presentation 3: Cancer Survivors and Caregivers: Psychological Distress, Symptom Burden and Health Care Use

Terry A. BadgerTerry A. Badger, PhD, RN, PMHCNS-BC, FAPOS, FAAN
Professor and Eleanor Bauwens Endowed Chair
Chair, Community and Systems Health Science Division
University of Arizona College of Nursing
Professor, Department of Psychiatry
Professor, Mel and Enid Zuckerman College of Public Health

Webinar 3 - Thursday, March 17, 2022

View WebinarExternal Web Site Policy
Presentation (PDF, 2.5 MB)

Presentation 1: “Enhancing and Mobilizing the Potential for Wellness and Emotional Resilience of Surrogate Decision-Makers of ICU Patients” (EMPOWER)ing Cancer Patient Caregivers

Holly PrigersonHolly Prigerson, PhD
Irving Sherwood Wright Professor in Geriatrics
Professor of Sociology in Medicine
Director, Cornell Center for Research on End-of-Life Care
Department of Medicine
Weill Cornell Medicine

Wendy LichtenthalWendy Lichtenthal, PhD, FT
Director, Bereavement Clinic
Associate Attending Psychologist
Department of Psychiatry and Behavioral Sciences
Memorial Sloan Kettering Cancer Center

Presentation 2: Supporting Caregivers Who Parent a Young Child While Caring for a Spouse with an Incurable Cancer: A Pilot Trial of a Dyadic Parenting Intervention

Kathrin MilburyKathrin Milbury, PhD
Associate Professor
Department of Behavioral Science
The University of Texas MD Anderson Cancer Center

Presentation 3: Building Family Caregiving Skills Using a Simulation-Based Intervention for Care of Patients with Cancer

Susan MazanecSusan Mazanec, PhD, RN, AOCN, FAAN
Assistant Professor
Frances Payne Bolton School of Nursing, Case Western Reserve University
Nurse Scientist
University Hospitals Seidman Cancer Center

Webinar 4 - Tuesday, April 19, 2022

Presentation 1: Telephone Support Program for Adults and their Family Caregivers Coping with Advanced Gastrointestinal Cancer

Catherine MosherCatherine Mosher, PhD
Associate Professor
Department of Psychology, School of Science
Indiana University-Purdue University at Indianapolis
Department of Medicine, Weill Cornell Medicine

Presentation 2: A Self-Management Intervention for Lung Cancer Surgery Patients and Family Caregivers

Jae KimJae Kim, MD
Associate Professor and Chief
Division of Thoracic Surgery, Department of Surgery
City of Hope Cancer Center

Presentation 3: Emotional and Financial Health of Caregivers of Patients with Cancer

Cathy BradleyCathy Bradley, PhD
Paul A. Bunn, Jr. Endowed Chair in Cancer Research
Professor and Associate Dean for Research
Colorado School of Public Health
Deputy Director
University of Colorado Comprehensive Cancer Center

Webinar 5 - Wednesday, May 18, 2022

Conversation with NCI: Current research themes and key opportunities for future cancer caregiving research

Ashley Wilder SmithAshley Wilder Smith, PhD, MPH
Branch Chief
Outcomes Research Branch
Healthcare Delivery Research Program
Division of Cancer Control and Population Sciences
National Cancer Institute

Michelle MollicaMichelle Mollica, PhD, MPH, RN, OCN
Senior Advisor, Office of Cancer Survivorship
Program Director, Outcomes Research Branch
Division of Cancer Control and Population Sciences
National Cancer Institute

Last Updated: 18 May, 2022