SEER-CAHPS: SEER Program & Data
Overview of SEER
The SEER Program is an epidemiologic surveillance system consisting of population-based tumor registries designed to track cancer incidence and survival in the United States. Collection of the SEER data began on January 1, 1973. The registries routinely collect information on newly diagnosed cancer patients residing in geographically defined areas.
The registries collect information about all primary cancers that a person may develop. The SEER data contain information about an incident cancer diagnosis and cancer-directed surgery and radiation therapy provided for first course of treatment. The registries collect information about all primary cancers that a person may develop. The SEER data do not capture information about surgery and radiation provided past four months of diagnosis, nor is there information about recurrence or metastasis that is detected subsequent to the initial diagnosis.
For more information about the SEER program and data, please see the SEER Home Page.
The SEER data file
The SEER data released as part of SEER-CAHPS are in a customized file known as the Patient Entitlement and Diagnosis Summary File (PEDSF). PEDSF contains one record per person for individuals in the SEER database who have been matched with Medicare enrollment records. Basic SEER diagnostic information is available for up to 10 diagnosed cancer cases for each person. Refer to the 5-digit Site Recode Dictionary for the list of cancers available. PEDSF includes information on each person's month and year of birth, date of death (if any), sex, race, and state of residence. It also contains variables from other sources that have been added to assist investigators in their analyses. These include Medicare eligibility, reason for Medicare entitlement, and health maintenance organization (HMO) enrollment by month for the period 1996 – 2015. In addition, there are separate files that contain geographically-based (ZIP code and census tract level) socioeconomic information from the 1990 and 2000 Censuses and the 2008 – 2012 American Community Survey.
Links to PEDSF File Documentation are available below. All SEER variables copied directly from the SEER file are described in the SEER Research Data Record Description.
- PEDSF File Documentation (PDF, 197 KB)
- ZIP Code Census File Documentation (PDF, 51 KB)
- Census Tract File Documentation (PDF, 52 KB)
- 5-digit Site Recode Dictionary
- Attachment A: SEER Research Data Record Description (PDF, 820 KB)
SEER Cancer Registries Included in SEER-CAHPS
The map below depicts the SEER registries included in SEER-CAHPS. It is important to note that SEER-CAHPS does not include the Alaska Native and Arizona American Indian registries.Click here for more information.