Current Projects Using SEER-CAHPS Data

Updated January 30, 2018

The following current projects are using SEER-CAHPS data under data use agreements, shared with permission from the listed Principal Investigators.

Project ID: 2018-025

Principal Investigator(s)
Siembida, Elizabeth
Project Title
The Role of Care Experiences in Adherence to Survivorship Care Following Breast Cancer Diagnosis
Institution
National Cancer Institute
Cancer Site(s)
Breast
Aims
Aim 1: Assess the relationship between self-reported care experiences and recommended provider visits (oncology, primary care, ob/gyn) within the first 3 years following first course treatment among older breast cancer survivors

Aim 2: Assess the relationship between self-reported care experiences, provider visits and receipt of mammography in the first 3 years post-treatment among older breast cancer survivors

Aim 3: Assess differences in the relationship between self-reported care experiences and follow-up care among older breast cancer survivors who received different forms of treatment for breast cancer

Project ID: 2017-019

Principal Investigator(s)
Samuel, Cleo
Project Title
Evaluating the Contribution of Patient-Provider Communication and Cancer Diagnosis to Racial Differences in End-of-Life Care among Medicare Beneficiaries
Institution
University of North Carolina at Chapel Hill
Cancer Site(s)
Colorectal, Breast, Prostate, Lung & bronchus, bladder
Aims
Aim 1: Assess racial differences in end-of-life care (i.e., hospice use, in-hospital death, ICU visit, number of ED visits or hospitalizations in the last 30 days of life) in a cohort of non-Hispanic Black and non-Hispanic White Medicare fee-for-service (FFS) beneficiaries with and without cancer.
Hypothesis 1: Compared with Whites, Blacks will exhibit lower rates of hospice use and higher rates of in-hospital deaths, ED visits, and hospitalizations in the last 30 days of life.

Aim 2: Evaluate whether racial differences in CAHPS-measured provider communication mediates racial differences in end-of-life care in a cohort of non-Hispanic Black and non-Hispanic White Medicare fee-for-service (FFS) beneficiaries with and without cancer.
Hypothesis 2a: Compared with Whites, Blacks will report worse provider communication.
Hypothesis 2b: Black-White differences in provider communication partially account for racial differences in end-of-life care.

Aim 3. Evaluate whether cancer diagnosis moderates racial differences in end-of-life care outcomes among a cohort of non-Hispanic Black and non-Hispanic White Medicare fee-for-service (FFS) beneficiaries with and without cancer.
Hypothesis 3a: The magnitude of racial differences in end-of-life care will differ among cancer and non-cancer patients, with larger racial differences among non-cancer patients relative to cancer patients.
Hypothesis 3b: The contribution of provider communication to racial differences in end-of-life care will not differ among cancer and non-cancer patients

Project ID: 2017-019

Principal Investigator(s)
Smith, Angela
Project Title
Racial disparities in cancer treatment, patient-experiences with medical care, patient-reported outcomes, and mortality among cancer patients
Institution
University of North Carolina at Chapel Hill
Cancer Site(s)
Colorectal, Breast, Prostate, Lung & bronchus, bladder
Aims
1. Evaluate the impact of processes (such as innovations) that may influence the patient experience with physicians, health plans and medical care – taking into account clinical (e.g. comorbid conditions) and sociodemographic (e.g., education, race) factors

2. Investigate how the patient experience impacts short- and long-term mortality and treatment-related morbidity

3. Compare how patient experience impacts HRQOL between cancer and non-cancer controls

Project ID: 2017-019

Principal Investigator(s)
Tan, Hung-Jui
Project Title
Health Status, Utilization of Cancer Therapies, and Outcomes
Institution
University of North Carolina at Chapel Hill
Cancer Site(s)
Colorectal, Breast, Prostate, Lung & bronchus, bladder
Aims
1. To compare self-reported health data and health trajectory—change in comorbidity and functional burden over time—between patients with cancer and non-cancer controls.

2. To understand the relationship between these new health constructs and receipt of aggressive therapy for cancer.

3. To investigate the impact of self-reported health and health trajectory on cancer outcomes relative to age, comorbidity burden, and other established measures of functional health.

We hypothesize that both self-reported health status and health trajectory will demonstrate significant relationship with cancer treatment and outcomes, beyond existing constructs of patient health.

Project ID: 2017-017

Principal Investigator(s)
Farias, Albert
Project Title
Racial disparities in cancer treatment, patient-experiences with medical care, patient-reported outcomes, and mortality among cancer patients
Institution
University of Texas Health Science Center at Houston School of Public Health
Cancer Site(s)
Colorectal, Breast, Prostate
Aims
Aim 1: To determine the association between cancer treatment and patient-reported outcomes and mortality

1.1.: To determine the association between overall health status, physical functioning, and mental or emotional health with cancer treatment

1.2.: To determine if there are racial/ethnic differences in patient-reported outcomes and whether the differences are explained by differences in cancer treatment

1.3.: To determine whether age and comorbidity status are stronger predictors of patient-reported outcomes than cancer treatment

Aim 2: To determine the association between patient-experiences with care and receipt/initiation of timely evidence-based treatment and treatment adherence

2.1.: To determine the association between patient-experiences with a) the ability to get care quickly, b) the ability to get needed care, c) the ability to get prescription drugs, d) how well doctors communicate, e) how well medical care is coordinated, and f) global ratings of care and receipt of timely evidence-based cancer treatment and treatment adherence

2.2.: To determine if there are racial/ethnic differences in patient-experiences with care and whether the differences explain disparities in receipt of evidence-based treatment.

Project ID:

Principal Investigator(s)
Halpern, Michael
Project Title
Models of survivorship care
Institution
RTI International, Temple University
Cancer Site(s)
Colorectal, lung & bronchus, breast, prostate.
Aims
To examine the influence of survivorship care model (predominantly from oncologists, predominantly from primary care physicians, or jointly from oncologists and primary care physicians) on satisfaction with health plans, physicians, and medical care among a large and diverse group of cancer survivors.

Project ID:

Principal Investigator(s)
Lines, Lisa
Project Title
Illness Burden Index
Institution
RTI International, University of Massachusetts
Cancer Site(s)
Colorectal, lung & bronchus, breast, prostate.
Aims
To answer the following 3 questions: (1) What is the most predictive algorithm for measuring morbidity in the SEER-CAHPS data? (2) What is the burden of morbidity in the SEER-CAHPS population from 1997-2013, and how has it changed over time? and (3) How is the SEER-CAHPS morbidity measure associated with global ratings of care, personal doctor, and specialist doctor?

Project ID: 2016-001

Principal Investigator(s)
Kent, Erin
Project Title
Examining the relative influence of multimorbidity on variations in cancer patients
Institution
National Cancer Institute
Cancer Site(s)
All cancers
Aims
Our objective is to compare cancer patients’ CAHPS measure based on level of multimorbidity.

Project ID: 2016-009

Principal Investigator(s)
Lines, Lisa
Project Title
Comparison of patient satisfaction among dual (Medicare-Medicaid) eligible and non-dual eligible ...
Institution
RTI International
Cancer Site(s)
Colorectal, Lung & bronchus, Breast, Prostate, Non-Cancer
Aims
(1) How do people with cancer who are covered by both Medicare and Medicaid (duals) differ from people with cancer who are covered by Medicare only (non-duals) in terms of experience with overall care, personal and specialist physicians, and health and prescription drug plans?

(2) Do dual beneficiaries have significantly different problems from non-duals in terms of accessing care quickly, accessing needed care, and appropriate physician communication?

Project ID: 2018-021

Principal Investigator(s)
Mollica, Michelle
Project Title
Association between prostate cancer treatment and patient experience
Institution
National Cancer Institute
Cancer Site(s)
Prostate
Aims
(1) Examine whether type of treatment received for clinically localized prostate cancer is associated with patient-reported quality of 1) overall care, 2) personal doctor, and 3) specialist physician.

(2) Examine whether type of treatment received for clinically localize prostate cancer is associated with patient experiences with 1) doctor communication, 2) getting needed care, and 3) getting care quickly.

Project ID: 2017-016

Principal Investigator(s)
Pandya, Chintan
Project Title
Association between patient-centered care and appropriate end-of-life care outcomes in older cancer patients
Institution
University of Rochester Medical Center
Cancer Site(s)
Esophagus, Stomach, Colorectal, Pancreas, Lung & Bronchus, Breast, Ovary, Prostate, Bladder, Brain & other nervous system, Non-cancer
Aims
Aim 1: Is better patient-centered care (measured by patient experience, patient satisfaction, and care coordination) associated with appropriate end-of-life care processes/outcomes in cancer patients?

Hypothesis 1: Better patient-centered care is associated with higher palliative/hospice care utilization in cancer patients.

Hypothesis 2: Better patient-centered care is associated with lower aggressive end-of-life care processes in cancer patients.