Current Projects Using SEER-CAHPS Data

The following current projects are using SEER-CAHPS data under data use agreements, shared with permission from the listed Principal Investigators.

Project ID: 2020-043

Principal Investigator(s)
Ricciardi, Rocco
Project Title
Longitude Caregiver and Health System Support in Colon & Rectal Cancer Specific Aims
Institution
Harvard
Cancer Site(s)
Colorectal
Aims
Aim 1: Identify the informal caregiver needs of colorectal cancer patients
1A: Determine the level of assistance colorectal cancer patients need.
1B: Determine which subgroup of patients (based on cancer diagnosis, treatment rendered, or patient characteristic) that require the most intensive needs.
Aim 2: Measure the satisfaction level with care coordination by formal caregivers.
2A: Determine the use and value of the Medicare extra help program.
2B: Assess the level of care coordination- availability of medical records, communication regarding results, communication across specialists as per treatment rendered.

Project ID: 2020-041

Principal Investigator(s)
Payakachat, Nilan
Project Title
Disparities in care experiences and their impact on cancer-related treatments and healthcare utilization among older adults living with cancer
Institution
University of Arkansas for Medical Sciences College of Pharmacy
Cancer Site(s)
Prostate, bladder, kidney & renal pelvis, non-cancer
Aims
Aim 1. Assess disparities in care experiences among older adults living with prostate cancer, bladder cancer, and kidney cancer
Aim 2. Determine the impact of disparities in care experience on cancer-related treatments among older adults living with prostate cancer, bladder cancer, and kidney cancer
Aim 3. Evaluate the impact of disparities in care experience on healthcare utilization among older adults living with prostate cancer, bladder cancer, and kidney cancer

Project ID: 2020-039

Principal Investigator(s)
Hong, Alicia
Project Title
Patient Centered Care Experience and Cancer-related Health Outcomes
Institution
George Mason University
Cancer Site(s)
Colorectal, lung & bronchus, breast, prostate, pancreas, cervix
Aims
To address these gaps, we propose to use Medicare-CAHPS to answer the following research questions.
1) How does patient-centered care experience differ between social groups?
2) How does patient-centered communication affect patient’s health outcomes, comparing cancer patients and other chronic patients?
3) Does coordination of care differ between cancer survivors and other chronic patients?
4) Does access to care or access to information differ between patients of different health insurance or health plans and how these differences affect their health outcomes?

Project ID: 2020-038

Principal Investigator(s)
DiMartino, Lisa
Project Title
Associations of experiences with care and survival among individuals with cancer using the SEER-CAHPS dataset
Institution
RTI
Cancer Site(s)
Esophagus, Colorectal, lung & bronchus, breast, bladder, kidney and renal pelvis, prostate, liver & bile duct, pancreas, ovary
Aims
1. Describe characteristics of the study sample by experiences with care among Medicare fee-for-service (FFS) beneficiaries with cancer reported at diagnosis and key dependent variable (5-year survival) and other key variables that have been shown to influence associations between patient satisfaction and survival, including sociodemographics, clinical characteristics (e.g., self-reported health, cancer type, stage, co-morbidities, and health care utilization/expenditures).
2. Examine five-year survival among Medicare FFS beneficiaries with cancer as a function of experiences with care using a sequential modeling approach to assess the contribution of potential confounding variables.
3. Examine whether other key variables, including sociodemographic/clinical characteristics, moderate associations between experiences with care and survival among Medicare beneficiaries with cancer.

Project ID: 2019-032

Principal Investigator(s)
Halpern, Michael
Project Title
Effects of Care Experiences on Treatment Adherence and Outcomes among Women Diagnosed with Breast Cancer
Institution
National Cancer Institute
Cancer Site(s)
Breast
Aims
1. Among women with breast cancer who receive breast-conserving surgery, is there a significant association of care experience measures with (i) receipt of any radiation therapy and (ii) adherence to guideline-recommended course of radiation therapy?
2. Among women with breast cancer who receive mastectomy and who initiate radiation therap
y, is there a significant association of care experience measures with adherence to guideline-recommended course of radiation therapy?
3a. Among women with breast cancer who receive breast conserving surgery or mastectomy and who subsequently initiate chemotherapy, is there a significant association of care experience measures with adherence to a guideline-recommended course of chemotherapy?
3b. Among women with HER2+ breast cancer who receive breast conserving surgery or mastectomy, is there a significant association of care experience measures with (i) receipt of any anti-HER2 therapy and (ii) adherence to a guideline-recommended course of anti-HER2 therapy?
4. Among women in both FFS Medicare and Medicare Advantage with breast cancer who receive breast conserving surgery or mastectomy, is there a significant association of care experience measures with duration of survival, and among women enrolled in FFS Medicare, is this association mediated by adherence to a guideline-recommended course of adjuvant therapy?

Project ID: 2018-030

Principal Investigator(s)
Jensen, Roxanne
Project Title
Patient Experiences of Care and Chemotherapy-Related Hospitalizations
Institution
National Cancer Institute
Cancer Site(s)
Oral cavity and pharynx, colorectal, lung & bronchus, breast, bladder, prostate, esophagus, stomach, pancreas, nose, nasal cavity, and larynx, ovary
Aims
The objective of our study is to assess the relationship between patient experience (e.g., physician communication, experience with physicians, and access needed care/drugs) of care and chemotherapy-related hospitalizations and ED visits.

Project ID: 2019-033

Principal Investigator(s)
Lines, Lisa
Project Title
Effects of treatment for mental health on care experience ratings
Institution
RTI International
Cancer Site(s)
Oral cavity and pharynx, colorectal, stomach, liver and bile duct, pancreas, breast, bladder, kidney and renal pelvis, prostate, lung and bronchus
Aims
1. What percentage of Medicare CAHPS respondents with cancer over age 66 received a diagnosis or treatment for mood disorders within 5 years of cancer diagnosis?
2. What percentage of respondents with cancer diagnosed with/treated for mood disorders rated their mental health as fair or poor, and how does this compare to respondents with cancer who did not receive a diagnosis or treatment?
3. Does diagnosis/treatment for mood disorders modify, moderate, or mediate the relationship between worse self-rated mental health and lower care experience measures among respondents with cancer?

Project ID: 2019-034

Principal Investigator(s)
Calip, Gregory
Project Title
Differences in treatment, health care experience, and patient-reported outcomes in relation to breast cancer recurrence and survival: analyses from the SEER-CAHPS database
Institution
University of Illinois at Chicago
Cancer Site(s)
Breast
Aims
Post-operative treatment of breast cancer patients with radiation and chemotherapy has produced significant improvements in both local recurrence rates and long-term survival (1). In light of increased survival there is a challenge in identifying completion of treatment in many forms of cancer including breast cancer. This leads to the condition requiring extended treatment over multiple years and becoming a chronic condition (2).
Despite the survival improvement gained from additional therapy such as adjuvant hormonal therapy, a large number of women remain at risk for late recurrence (3). This study aims to investigate differences in treatment, health care experience, and patient-reported outcomes in relation to breast cancer recurrence and survival among elderly women with non-metastatic breast cancer. Specifically the study will:
1. Determine the difference in health care experience and patient-reported outcomes among older breast cancer survivors according to weather or not they experienced a second breast cancer events, including recurrence, second primary breast cancer and cancer-specific mortality.
Hypothesis: Patients with no secondary breast cancer have a better health care experience and patient-reported outcomes compared to those with second breast cancer event.

Project ID: 2019-035

Principal Investigator(s)
He, Jinghua
Project Title
Patient Experience of Care in Elderly Breast Cancer Patients
Institution
Merck & Co. Inc.
Cancer Site(s)
Breast
Aims
We propose a pilot study to investigate PEOC in US female Medicare beneficiaries diagnosed with breast cancer. The research questions are:
a) Does Patient Experience Of Care (PEOC) in elderly breast cancer patients vary across different subgroups, including but not limited to:
1) Cancer characteristics at diagnosis, e.g., stage, grade, and molecular subtypes of estrogen receptor (ER), progesterone receptor (PR), and human epidermal growth factor receptor 2 (HER2) (2010 and after).
2) Patient socio-demographics, e.g., age, racial/ethnic groups, education level, income level, Medicare coverage type (Fee-For-Service vs. HMO).
3) Other clinical factors, such as initial treatment modality and burden of comorbidities.
b) Is PEOC associated with survival outcomes, including both cancer-specific survival and overall survival?
c) Is PEOC associated with health care utilization (e.g., hospital admission, emergency room (ER) visit, outpatient visit) and associated costs?
d) Is Patient Experience Of Care (PEOC) associated with participation in Mammography Screening in elderly non-cancer women? Besides SEER and CAPHS survey data, Medicare claims data are required to address research question (c) and (d). The analysis therefore will be limited to Fee-For-Service beneficiaries during their Medicare Part A and B enrollment period.

Project ID: 2019-036

Principal Investigator(s)
Mollica, Michelle
Project Title
Care Coordination in Older Adult Cancer Survivors
Institution
National Cancer Institute
Cancer Site(s)
Colorectal, lung & bronchus, breast, cervix, uterus, bladder, kidney and renal pelvis, prostate, skin (excl. basal and squamous), Lymphomas
Aims
In a sample of older adult Medicare beneficiaries with a history of cancer (prostate, breast, colorectal, lung, uterine, cervical, bladder, melanoma, head and neck, Non-Hodgkins Lymphoma, and kidney cancers), this study will:
(1) Describe patient-reported care coordination; and
(2) Examine sociodemographic and clinical predictors of care coordination scores

Project ID: 2018-024

Principal Investigator(s)
Cockburn, Myles
Project Title
Cancer treatment and patient-based experiences among racial/ethnic groups
Institution
University of Colorado Cancer Center
Cancer Site(s)
Colorectal, lung & bronchus, breast, prostate, oral cavity and pharynx, nose, nasal cavity, skin (excl. basal and squamous)
Aims
AIM 1: To determine the association between cancer treatment and patient-reported outcomes and mortality
1.1: To determine the association between overall health status, physical functioning, and mental or emotional health with cancer treatment.
1.2: To determine if there are racial/ethnic differences in patient-reported outcomes and whether the differences are explained by differences in cancer treatment.
1.3: To determine whether age and comorbidity status are stronger predictors of patient-reported outcomes than cancer treatment.
1.4 To determine whether racial/ethnic differences in patient-reported outcomes are associated with mortality.

AIM 2: To determine the association between patient-experiences with care and receipt/initiation of timely evidence-based treatment.
2.1: To determine the association between patient-experiences with a) the ability to get care quickly, b) the ability to get needed care, c) the ability to get prescription drugs, d) how well doctors communicate, e) how well medical care is coordinated, and f) global ratings of care and receipt of timely-evidence based cancer treatment.
2.2: To determine if there are racial/ethnic differences in patient-experiences with care and whether the differences explain disparities in receipt of evidence-based treatment.

Project ID: 2018-022

Principal Investigator(s)
LeMasters, Traci
Project Title
The Impact of Quality of Patient-Provider Communication on Smoking Cessation and Health Service Utilization among Older Survivors of Smoking Related Cancers
Institution
West Virginia University School of Pharmacy
Cancer Site(s)
Colorectal, lung & bronchus, breast, oral cavity and pharynx, nose, nasal cavity, Cervix, bladder, pancreas, esophagus, stomach, liver and bile duct, kidney and renal pelvis, other acute leukemia
Aims
1) to determine how receipt of smoking cessation advice in the past six months among current smokers is associated with patient perceptions of patient-provider communication among older survivors of smoking-related cancers;
2) to determine how patient perceptions of patient-provider communication is associated with health service utilization among older survivors of smoking-related cancers.

Project ID: 2018-028

Principal Investigator(s)
Friese, Christopher; Fauer, Alex
Project Title
Hematological Cancer Care Experiences and Patient-Reported Outcomes during Treatment and Survivorship: A SEER-CAHPS Analysis
Institution
University of Michigan School of Nursing
Cancer Site(s)
Leukemias, lymphomas
Aims
Aim 1: Examine how rural/urban residence and neighborhood poverty levels are associated with patient-reported access to care, and emergency department visits.
Aim 2: Examine racial and ethnic differences in patient-reported provider communication and care coordination experiences between Fee-for-Service and Managed Care enrollees.

Project ID: 2018-025

Principal Investigator(s)
Siembida, Elizabeth
Project Title
The Role of Care Experiences in Adherence to Survivorship Care Following Breast Cancer Diagnosis
Institution
National Cancer Institute
Cancer Site(s)
Breast
Aims
Aim 1: Assess the relationship between self-reported care experiences and recommended provider visits (oncology, primary care, ob/gyn) within the first 3 years following first course treatment among older breast cancer survivors

Aim 2: Assess the relationship between self-reported care experiences, provider visits and receipt of mammography in the first 3 years post-treatment among older breast cancer survivors

Aim 3: Assess differences in the relationship between self-reported care experiences and follow-up care among older breast cancer survivors who received different forms of treatment for breast cancer

Project ID: 2017-019

Principal Investigator(s)
Samuel, Cleo
Project Title
Evaluating the Contribution of Patient-Provider Communication and Cancer Diagnosis to Racial Differences in End-of-Life Care among Medicare Beneficiaries
Institution
University of North Carolina at Chapel Hill
Cancer Site(s)
Colorectal, Breast, Prostate, Lung & bronchus, bladder
Aims
Aim 1: Assess racial differences in end-of-life care (i.e., hospice use, in-hospital death, ICU visit, number of ED visits or hospitalizations in the last 30 days of life) in a cohort of non-Hispanic Black and non-Hispanic White Medicare fee-for-service (FFS) beneficiaries with and without cancer.
Hypothesis 1: Compared with Whites, Blacks will exhibit lower rates of hospice use and higher rates of in-hospital deaths, ED visits, and hospitalizations in the last 30 days of life.

Aim 2: Evaluate whether racial differences in CAHPS-measured provider communication mediates racial differences in end-of-life care in a cohort of non-Hispanic Black and non-Hispanic White Medicare fee-for-service (FFS) beneficiaries with and without cancer.
Hypothesis 2a: Compared with Whites, Blacks will report worse provider communication.
Hypothesis 2b: Black-White differences in provider communication partially account for racial differences in end-of-life care.

Aim 3. Evaluate whether cancer diagnosis moderates racial differences in end-of-life care outcomes among a cohort of non-Hispanic Black and non-Hispanic White Medicare fee-for-service (FFS) beneficiaries with and without cancer.
Hypothesis 3a: The magnitude of racial differences in end-of-life care will differ among cancer and non-cancer patients, with larger racial differences among non-cancer patients relative to cancer patients.
Hypothesis 3b: The contribution of provider communication to racial differences in end-of-life care will not differ among cancer and non-cancer patients

Project ID: 2017-019

Principal Investigator(s)
Smith, Angela
Project Title
Racial disparities in cancer treatment, patient-experiences with medical care, patient-reported outcomes, and mortality among cancer patients
Institution
University of North Carolina at Chapel Hill
Cancer Site(s)
Colorectal, Breast, Prostate, Lung & bronchus, bladder
Aims
1. Evaluate the impact of processes (such as innovations) that may influence the patient experience with physicians, health plans and medical care – taking into account clinical (e.g. comorbid conditions) and sociodemographic (e.g., education, race) factors

2. Investigate how the patient experience impacts short- and long-term mortality and treatment-related morbidity

3. Compare how patient experience impacts HRQOL between cancer and non-cancer controls

Project ID: 2017-019

Principal Investigator(s)
Tan, Hung-Jui
Project Title
Health Status, Utilization of Cancer Therapies, and Outcomes
Institution
University of North Carolina at Chapel Hill
Cancer Site(s)
Colorectal, Breast, Prostate, Lung & bronchus, bladder
Aims
1. To compare self-reported health data and health trajectory—change in comorbidity and functional burden over time—between patients with cancer and non-cancer controls.

2. To understand the relationship between these new health constructs and receipt of aggressive therapy for cancer.

3. To investigate the impact of self-reported health and health trajectory on cancer outcomes relative to age, comorbidity burden, and other established measures of functional health.

We hypothesize that both self-reported health status and health trajectory will demonstrate significant relationship with cancer treatment and outcomes, beyond existing constructs of patient health.

Project ID: 2017-017

Principal Investigator(s)
Farias, Albert
Project Title
Racial disparities in cancer treatment, patient-experiences with medical care, patient-reported outcomes, and mortality among cancer patients
Institution
University of Texas Health Science Center at Houston School of Public Health
Cancer Site(s)
Colorectal, Breast, Prostate
Aims
Aim 1: To determine the association between cancer treatment and patient-reported outcomes and mortality

1.1.: To determine the association between overall health status, physical functioning, and mental or emotional health with cancer treatment

1.2.: To determine if there are racial/ethnic differences in patient-reported outcomes and whether the differences are explained by differences in cancer treatment

1.3.: To determine whether age and comorbidity status are stronger predictors of patient-reported outcomes than cancer treatment

Aim 2: To determine the association between patient-experiences with care and receipt/initiation of timely evidence-based treatment and treatment adherence

2.1.: To determine the association between patient-experiences with a) the ability to get care quickly, b) the ability to get needed care, c) the ability to get prescription drugs, d) how well doctors communicate, e) how well medical care is coordinated, and f) global ratings of care and receipt of timely evidence-based cancer treatment and treatment adherence

2.2.: To determine if there are racial/ethnic differences in patient-experiences with care and whether the differences explain disparities in receipt of evidence-based treatment.

Project ID:

Principal Investigator(s)
Halpern, Michael
Project Title
Models of survivorship care
Institution
RTI International, Temple University
Cancer Site(s)
Colorectal, lung & bronchus, breast, prostate.
Aims
To examine the influence of survivorship care model (predominantly from oncologists, predominantly from primary care physicians, or jointly from oncologists and primary care physicians) on satisfaction with health plans, physicians, and medical care among a large and diverse group of cancer survivors.

Project ID:

Principal Investigator(s)
Lines, Lisa
Project Title
Illness Burden Index
Institution
RTI International, University of Massachusetts
Cancer Site(s)
Colorectal, lung & bronchus, breast, prostate.
Aims
To answer the following 3 questions: (1) What is the most predictive algorithm for measuring morbidity in the SEER-CAHPS data? (2) What is the burden of morbidity in the SEER-CAHPS population from 1997-2013, and how has it changed over time? and (3) How is the SEER-CAHPS morbidity measure associated with global ratings of care, personal doctor, and specialist doctor?

Project ID: 2016-009

Principal Investigator(s)
Lines, Lisa
Project Title
Comparison of patient satisfaction among dual (Medicare-Medicaid) eligible and non-dual eligible ...
Institution
RTI International
Cancer Site(s)
Colorectal, Lung & bronchus, Breast, Prostate, Non-Cancer
Aims
(1) How do people with cancer who are covered by both Medicare and Medicaid (duals) differ from people with cancer who are covered by Medicare only (non-duals) in terms of experience with overall care, personal and specialist physicians, and health and prescription drug plans?

(2) Do dual beneficiaries have significantly different problems from non-duals in terms of accessing care quickly, accessing needed care, and appropriate physician communication?

Project ID: 2018-021

Principal Investigator(s)
Mollica, Michelle
Project Title
Association between prostate cancer treatment and patient experience
Institution
National Cancer Institute
Cancer Site(s)
Prostate
Aims
(1) Examine whether type of treatment received for clinically localized prostate cancer is associated with patient-reported quality of 1) overall care, 2) personal doctor, and 3) specialist physician.

(2) Examine whether type of treatment received for clinically localize prostate cancer is associated with patient experiences with 1) doctor communication, 2) getting needed care, and 3) getting care quickly.

Project ID: 2017-016

Principal Investigator(s)
Pandya, Chintan
Project Title
Association between patient-centered care and appropriate end-of-life care outcomes in older cancer patients
Institution
University of Rochester Medical Center
Cancer Site(s)
Esophagus, Stomach, Colorectal, Pancreas, Lung & Bronchus, Breast, Ovary, Prostate, Bladder, Brain & other nervous system, Non-cancer
Aims
Aim 1: Is better patient-centered care (measured by patient experience, patient satisfaction, and care coordination) associated with appropriate end-of-life care processes/outcomes in cancer patients?

Hypothesis 1: Better patient-centered care is associated with higher palliative/hospice care utilization in cancer patients.

Hypothesis 2: Better patient-centered care is associated with lower aggressive end-of-life care processes in cancer patients.
Last Updated: 18 Jun, 2020